So deeply sorry for your loss....
Hope everyone is well this evening. For those of you with osteoporosis which drugs have you tried and what has worked best for you? I'm trying to decide which to try after researching side effects....
Hi, I have the same yogurt maker and love that I can eat the yo even with severe lactose intolerance. What starter are you using? I use GI ProStart, works great. I keep it in the freezer. One tip,...
Sorry you have not been feeling very well. I do FODMAP and have learned which FODMAP foods are ok in small amounts and which are always a problem. For me onions are a killer, but I can have a little...
Thinking of you and wishing you peace, comfort, and the best of luck with your treatment....
Hope you were able to have a nice rest after all of that and probably battling Seattle traffic as well. It is hard and stressful to lose your best furry friend, hugs and hope your future tests go off...
Sorry about your dx, have you discussed taking Budesonide instead of pred? There is a version for the large intestine, maybe less side effects than straight pred....
I think you can have thickening and not have a stricture, that's what my MRI indicated last year. Not sure if the thickening was inflammatory or scar tissue, probably both....
Sweet story, made me cry on my gluten free bagel, and the I fed the last little bits to my dog friends. Thanks for sharing, Gumby....
Hugs to you Gumby, Losing a best furry friend hurts like hell. In some ways they can be better company than people. Hope you feel better soon....
Grinding and clenching is the worst, I do it until my mouth aches and Catch myself doing it during the day as well. My night guard, (the one I got from the dentist) made me gag until I trimmed the...
Yeah, it does cause tinnitus, especially if you are on other meds that thin the blood. Are you on Pentasa for crohn's? It didn't help me and many others agree not very effective for CD....
My GI, (who is very knowledgeable about this subject), says that Entyvio is more helpful for inflammation in the colon and less effective in the small bowel. I've also heard that Remicade has more...
Agreed, a terribly sad outcome for this lady and her family. It seems like something is broken here, simple compassion from one of her doctors should have prevented this disaster....
So sorry to hear about the additional dx of CREST. I googled around a little bit and learned that Gerd like symptoms are associated with CREST, do you think you might have reflux and it could be...
Hi Beth, welcome! I think most people on here would agree that Pentasa does nothing for Crohns. I was on it for a while, it seems like doctors prescribe it because the side effects are minimal unlike...
I have been slightly overweight in the distant past and struggled with diets, etc, so presume that I am not genetically prone to be thin. Do flares make one burn more calories? Losing weight here...
Hi Amy, Try not to sweat the CT scan, prednisone can make anxiety more intense for some so you may be able to put the risk of one CT scan in better perspective when you are off of steroids. If you...
If only crohn's would catch a clue and just go away. Here's a gentle nudge in the direction of the dr's office, and hopefully they have the potion that will help you feel better. I'm with you though,...
On my scope prep. It was Movi prep. Tasted disgusting but did the trick. Miralax gatorade prep tasted better....
wow, best news ever! Good job mom!...
Thank you for sharing the article Canada Mark, this is really great info....
Thanks for keeping us updated{{CROHNS}}, hope you find something that works for you soon....
Hi, this diet has helped me go from a gigantic gas blimp with a constant leak to a tiny balloon, perfect for birthday parties, (except I can't eat the cake or ice cream : ( Some foods on the list are...
Oops, didn't see sci fi's post, Budesonide is the generic version of Entocort....
Hi Nomad, Depending where the inflammation is it might be worth asking your doctor about replacing the pred with Entocort. It has less side effects for most people. Good luck!...
Your MRI may be able to tell how much inflammation and thickening is in your bowel, and if more than one section is affected. I had an MRI about a year ago and decided with the blessing of my GI not...
So sorry if I offended anyone. People who are in pain should be able to have access to what they need for relief without having a stigma attached....
MJ for medical reasons should be legal so it's use can be out in the open and controlled. This could help with keeping it out of the black market as well as being easier to access high quality...
So sorry you are having a hard time with the disease and the meds. Just a couple of questions: Have you been on Azathioprine yet? Has your dr ordered a bone density scan so you know where you're at...
Have you asked your dr if Humira might increase the chance of getting an infection in the broken bone? I don't know but can't imagine why else there would be a problem healing a fracture while you're...
Are you lactose intolerant? Lactose gives me huge problems, but home made yogurt, (the SCD type), that is fermented a full 24 hours works just fine. The 24 hours give the good bacteria time to eat...
Oh Brother, I think Gumby Is right, you don't want that GI. There are plenty of fish in the sea......
Hi, so sorry you got the crohn's dx, but at least you know what you're up against. Some folks on here have done well with SCD, others not so much. I tried it and it didn't work for me. At least SCD...
Yes, their questions seem a little odd, never heard of a cortisone shot for crohns, except maybe for joint pain? You can have an MRI, I just had one, only it was called an MRE and was done with...
That sounds great Texikka, the difficult experiences you have had will give you a lot of depth and material to explore with your comedy and acting career if that's what you decide to do. People who...
Hugs Texikka, You and your family are going through a lot of changes and that can be stressful for anyone. I'm happy to hear that you are in remission-that's huge! I'll bet everyone in your class is...
Welcome CC, IBD and it's meds can be hard on the liver, I would steer clear of alcohol as much as you can. Beer and wine are full of yeast which many crohn's patients react to. Last time I had a beer...
Changing my diet helped with bad gas, are you lactose intolerant? Check out the FODMAP diet, some sugars are hard to digest, especially for those of us with gut problems....
Allergies or parasitic worms! I wouldn't worry about the worms unless you've been going around barefoot in the tropics :devil:...
Yes, hoping for the best for you-please keep us updated and take care....
Flowergirl, I would be freaking out too if my dr mentioned lymphoma, but one thing to keep in mind is that crohn's presents itself differently in people who have the disease. My mother had crohn's...
Are they giving you any meds yet? I am Dx with crohns, had active crohns at my last scope but the biopsies did not show any granulomas. I think you can have crohns without those being evident on a...
Glad it was painless, but not painless for your wallet--holy smokes that's expensive!...
Good for you Jen, hope it works quickly and gives you a very long remission : )...
I have those internal hems as well. Is this a gastroenterologist doing the banding? I almost had skin tags removed which would have been a huge mistake, this was before I knew I had crohns. The...
CT scans expose you to a crazy amount of radiation, especially the old machines. Some of the newer ones "measure" you and only deliver the amount of radiation needed to do the job. I asked for an MRE...
A terribly painful butt crack (fissure) was one of my first symptoms along with skin tags 25 years ago. Those things hurt like hell : ( I was so clueless then. Had no idea that my guts and butt were...
Dorri, I was surprised that I could tolerate Ensure, it must be lactose not milk or soy protein that gets me. Thanks for the kind words, I wish the diet had worked for me. Not much seems to help, but...
Thanks Gumby, Glad to hear you are feeling much better now : )...