Hi everyone, I've been having a bit of a battle with my IBD team for a couple of months now as I had a colonoscopy in March after flaring for a few months. I felt so ill that I was fully prepared for...
Thank you for all the replies My symptoms at the moment are blood, left sided pain, exhaustion and a fever that comes and goes. It’s affecting my day to day life quite a bit as i’m having to have...
I'm having a colonoscopy next week as I'm three months into a flare up which is getting progressively worse, and my GI wants a proper look. He's only ever been able to do a sigmoid in the past 5...
Thank you very much for your replies. I've just had bloods/stool test done so I'm going to wait for the results of those before I decide what to do. The flare does seem to be getting worse day by day...
Hi everyone, I'm currently a couple of months into my first flare in just over two years, mainly struggling with blood, pain and fatigue. The blood is bright red, which is unusual for me as when I...
Hi everyone, just looking for a little bit of advice after not posting for while as I'm feeling really thrown off balance. I've been doing fairly ok for a while now after being on Azathioprine for...
Thank you so much everyone for your lovely replies, it always makes me feel so much better knowing that there are people that understand what it's like. I did go to A&E the other day and had some...
Hi everyone, I hope you don't mind a bit of a long ranty post, because that's what this is. I'm just so tired and frustrated. To cut a very long story short, i was diagnosed with ulcerative colitis...
I've been on Imuran for about a year and 3 months now (50mg, quite a low dose). It helped me to reach remission after an awful 18month flare that almost required surgery, and I've been regular with...
iron levels were my initial thought too but I'm taking quite a high dose of ferrous sulphate as it is. and my blood work came back close to normal last month. I'll book another one for this week and...
Hi everyone, I've been in a fragile remission for 7 months now after a year and a half flare (Been on Azathioprine for a year along with Pentasa and mesalazine enemas which I've been on for just over...
hiya, it took about four months to start noticing a change. i was on pred until mid feb, but i had been on the pred since October without success, so I'm pretty sure it's the imuran that's helped me....
Hi everyone, this is just a post to tell you all how grateful I was for all of your support and advice over my 1 & 1/2 year long flare. I'm finally three months off pred, six months on imuran, and in...
Hiya, I'm really sorry you're not feeling well! Try and keep positive if you can, I know its hard. For me personally, my flares have been worse each time, but i think thats due to my GI not getting...
I've been on imuran for 4 months now and so far haven't noticed any ill effect from it. Like others have said, take it at night to avoid any side effects (or with your evening meal). Take vitamins...
Hi guys! I've been in remission for just about 3 months now after a horrible 8 month flare (20+ times a day, blood, hospitalisation etc). While in hospital my diagnosis changed from UC to...
I was on Prednisone for just under five months this time and gained about 10lbs (I finished my taper in mid February). I ate very healthily while I was on pred and have continued to do so since. The...
Having an iron infusion for the first time tomorrow as my ferritin is at 5 and I desperately need an energy boost after a bad flare. I've tried oral iron with no avail (it didn't make me feel unwell,...
hiya, no there's no pain at all thank goodness. i'm really lucky with the fact that i don't get too much pain even if i'm flaring really badly, so maybe the bloating is just down to the flare. just...
My most recent flare started last August and I finally went into remission at the beginning of this month. I've been on 40mg of Pred for four months now (two weeks on IV), and am now completely off...
Yes, my GI told me that he put me on a low dosage to begin with because he saw from my blood works that my tolerance might not have been great and he wanted to minimise the risk of side effects......
Me again! My nurse rang today to let me know that my HGB is very low and that I need to go in for an iron infusion. I've taken oral iron many times in the past but never had IV, so I don't really...
I started Azathioprine back in December so not really noticing it's effects yet, but I have a couple of questions regarding blood works. The first three weeks I was going for weekly blood works, and...
So great to hear that you're feeling better! Really hope it continues for you. :-)...
Sorry to hear you're having a horrible time with it! I started up on a 50mg dosage because my GI thought I might have the same trouble as you, but I'm not sure if reducing your dose would help or...
I've never really reached full remission since my diagnosis in 2013. My longest full on flare (with blood, mucus, urgency etc) though has been going on since last August, so about 6 months now....
Hi there, really sorry to hear you're having a hard time! I was diagnosed with UC at 18 in 2013 and it completely freaked me out too. I'd never heard of UC before my diagnosis and from what the...
I'm also on Pred and Azathioprine and am experiencing very similar symptoms to you (utter exhaustion, feeling cold, night sweats, frequent uruination, aching everywhere). My prognosis also recently...
Thanks for the reply. No, definitely not just relying on Pred! I'm currently on 4g Pentasa od, 50mg Azathioprine and a Salofalk enema. The aza is fairly new so not noticing it's effects yet, but I've...
I've been on Pred for nearly 4 months now after a bad flare, and am so close to tapering off completely. (Was on 40mg originally, now down to 15mg and tapering by 5mg a week). I've never been on Pred...
I was recently on IV for 10 days before switching back to oral. My BM's had decreased almost back to normal while on IV and the blood had completely stopped. Two days back on oral I completely flared...
For me personally, diarrhoea is the first thing to disappear (I usually only get d for a couple of days when a flare starts, and then during it I have formed stool with lots of blood and mucus). Then...
For me personally, remission is very close to my life before UC. The only difference for me is that I tend to have one bowel movement a day, whereas before UC I'd go once every few days. I also take...
Really sorry to hear you're having a rough time. Unfortunately what worked for a past flare may not work again, so you might need something a bit stronger/different to treat this one. I would get...
My Grandad has UC. Although he's only ever had one flare about 30 years ago and has only ever taken Pentasa for it. Not even religiously, he just takes it if he notices any signs of a flare and it...
I've been on Pred since the beginning of November now (currently tapering, on 25mg down from 40mg). The dreaded moon face started to appear while I was on IV, and has since got worse and worse while...
Glad to hear that you're doing well! Take care and keep us updated....
I can't comment on anything else you mentioned, but I'm fairly new to Aza too and the nausea stopped after around 4 weeks in my case. The only thing that really helped me was to take it at night so I...
Glad you managed to get hold of someone, hopefully it gets cleared up for you very soon! I just started Azathioprine too, it's not ideal by any means but I'd happily take it over surgery for now....
Sorry you're having a rough time! I think it's definitely worth going to your doctor. Every flare is different, so what didn't work for you last time may work this time. Same goes for frequency of...
This sounds so familiar! Back in November I couldn't even move or sip water without passing gas with blood and mucous. Over 30 times a day, it drove me mad! Not sure how 'normal' it is for a flare,...
It's definitely frustrating! I live in England. IV hydrocortisone is what put me into remission, then oral Pred after that. I've been taking 4g Pentasa daily since diagnosis and Salofalk Enemas on...
I was hospitalised and diagnosed with moderate Ulcerative Colitis a year and a half ago at 18. After my first flare I was very lucky and didn't flare up again fully until September of 2014 (the flare...
Currently tapering off Pred by 5mg per week (start dose 40mg, down to 30mg at the moment), and having a bit of trouble with side effects. I'm happy to be tapering as I've been on Pred since October...
That's great to hear, glad you've managed to get hold of something. Hopefully it works fast for you! As for fruit juice/dairy, like malaika said, it can be a bit of trial and error. I personally...
I definitely suffer from reflux. More so when I'm flaring too, not sure why! - Not nice. I take Lansoprozole for it which I find helps me, have taken Omeprozole in the past too which was also...
I really sympathise with you there. I've been in a flare for about half a year now which has also meant that I haven't been able to exercise or eat as well as I'd like to. it is hard to know what's...
Welcome to the forum! So sorry to hear that your son is having such a rough time. I was in a similar situation a month or so ago (BM's with lots of blood 20+ times a day) and Pred just would not...
I get pretty horrible fatigue on Aza, although I'm also on Prednisone at the moment so it could be that too. Is there any chance you could be anaemic after the flare-up? That's a killer for...
Don't be too disappointed just yet, it's still early days :-) Your GP/GI should be back from the Christmas break by now I would think, so try and get hold of someone tomorrow if you can. You may be...