How did it go? How are you??...
Hi all! I’ve been a member here and active on some other boards for quite some time now...first time here though. Last week I had my first 40 year old mammogram, my 2nd one ever though. The first was...
Bleeding out is not the only reason you would receive blood. Early on in my surgery, my surgeon decided that I was so malnourished and my blood was lacking so many things vital to health and healing,...
Hey all! So, I've had my ostomy for 5 years, as a result of Ulcerative Colitis. Everything has been super great since my surgery! For the past few days I have had an achey, crampy, tight and...
I have noticed that my output changes/increases often when I am sick....no matter what short of sickness I have. I chalk it up to my body fighting off an illness, trying to purge things from my body...
I had nausea and fatigue often during UC flares, I don't think that is uncommon. Though after I started Remicade, I did end up with CDiff, so if you are really feeling awful it might be worth getting...
It is possible that prednisone will not help you any longer. My UC was never responsive to prednisone...or any other drug really. I went as high as 60mg/day, and did months of 30-40 mg/day, but I...
Not quite the same thing, but a few years after my UC diagnosis and about a year after my first surgery, I developed a lung problem called BOOP. Apparently it is a bit rare and is thought to be auto...
This time 5 years ago I was nearly at the start of the UC flare that ended up leading to my surgery. For me the unthinkable thing would've been continuing to suffer and not having the surgery. I had...
Sorry it's taken me a few days to get back to this! Hopefully I can answer your questions in a way that helps with your decision making process. So you got your first surgery as just the end...
While it is not unsanitary or abnormal to have some output on the stoma, it is NOT OK if they are only emptying the bag once every few days and even LESS OK if they are only changing the flange once...
The sewing up of the anus is usually dependent partly on the thoughts and typical practice of your surgeon and whether or not you want to go ahead and just take care of everything, or leave that part...
Over 4 and a half years ago, I made the decision to have surgery, and I really never even considered a J Pouch. To me it made much more sense to do less surgeries, have less risks and be healed and...
Mine is called Pepe! I named him on a day that he was being particularly active and peppy! His full name is Pepe Roma, because he sort of looks like a weird little Roma tomato! :)...
Glad to hear things seem to be going quite well for you so far! Keep resting and healing! Also, for anyone with UC that is reading this....that surgery sounds like it was much more involved than my...
Having things just "slosh around" in the empty space left when your colon is removed can actually be dangerous for some. Different surgeons have different ways of doing things, but mine put a type of...
So soon after surgery, there are a few reasons you could be having bleeding from that area. It is very normal to feel like you have to go and to pass mucus from time to time. But, it is also possible...
Not knowing ALL of your story, I would say you have some options before surgery...but it also doesn't help to think of the possibility before you are actually faced with the decision. Of course,...
Probably nothing more than a coincidence, but the man I was dating at the time of my diagnosis/illness/surgery, ended up being diagnosed with UC himself about 2 years after my initial DX. His mother...
Hey Ash! Sorry to hear you are having such a rough time with this awful disease! My time with UC was short and VERY rough, and I did choose to get surgery, for may reasons. Thing is....I didn't...
Not exactly the same situation as yours, but I had pancreatitis about 5-6 months before I was diagnosed with Ulcerative Colitis. The only reason they could find that might have caused it was some...
Do you have an ileostomy or a colostomy?? With an ileostomy, it is normal for the output to be thinner and come randomly throughout the day...though there usually is schedule of sorts eventually. I...
I do run and jog and all sorts of other stuff, but I have an ileostomy. I'm guessing from the wording of your question that you have a J-pouch or something similar....is that correct?...
Happy for you feeling great!! I'm nearing 4.5 years since my big surgery and I too am doing super great!! I certainly feel like I made the best decision I could for myself....
Welcome to the forum, yet sorry you had to find us! My case is not exactly the same as yours, but very similar. My original DX was mild ulcerative proctitis, which was quickly brought under control...
So sorry you are still dealing with all of this! Did they say why they couldn't remove your anus from the back side? When I had my 2nd surgery to get everything removed and sewn up, they did it all...
I love having someone to talk about this stuff with who really knows what it's like! I have had some bladder problems since surgery, and was even sent to a urogynecologist (who knew there was such a...
Thanks for coming back to give the update and info! I will be making my yearly girl doctor appt. soon, and will definitely ask what she thinks too. I have no doubt my parts have moved around a bit,...
I have thought about posting on this topic myself. I have had my ileostomy for a little over 4 years, and have had my backside sewn up for a little over 2 years. All in all, sex has still been pretty...
Welcome! Sorry you are having troubles, but you have come to the right place. So, is your "temporary" loop ostomy now a permanent ostomy of some sort? Either way....I'll answer the questions I can...
Thanks for the kind words everyone! @soynomore..... Well, if you are talking about the guy I was with when I was sick and had surgery, then no....we didn't get married and are no longer together....
I know it has been a while since I've posted, but I do still lurk around here quite often, and chime in when I feel like I have something useful to contribute. But, I thought there might be some...
I know it has been a while since I've posted, but I do still lurk around here quite often, and chime in when I feel like I have something useful to contribute. But, I knew if there was any group of...
Are you sticking to the low residue diet that is suggested for after surgery?...
I have flown quite a few times now with my ostomy, and I've been pulled aside for additional screening all but once. If you go through the full body scanner thing with your arms up, it will spot your...
I have always heard that one should follow a low residue diet for the first 6-8 weeks after surgery. That means pretty much avoiding high fiber products, nuts, seeds, raw fruits and veggies,...
My original diagnosis was mild UP and I was treated with suppositories which gave me instant relief and totally stopped all my symptoms. My GI had little concern it would advance much beyond that. 4...
Sorry you are still dealing with all of this. I had my proctocolectomy with end ileostomy creation in March of 2013. My surgeon new I would probably also need the anus removed, but she felt I was too...
I have also heard that some people are just prone to hernias, while others are not. I have also heard that proper attention to recovery after surgery, and that the further out from surgery one is,...
I have had my ileostomy for about 3 and a half years, and have tried every brand of pouching system I could find. In my experience, the filters do not work at all, on any of them. Sometimes they even...
Sunny!! Good to see you here.....how are you?!?...
Hello, I hope everyone is feeling great today! For those of you on social media, you should check out #ostomonday and the sites for the United Ostomy Associations of America. I posted in support of...
I don't really have a good suggestion as to why you are feeling those pains, so probably won't be much help. But, I can at least assure you that you aren't the only person who deals with similar...
That was a pretty poorly produced package. There was no information about what her previous surgeries had been, whether she had an ostomy or if the twist in her intestines had been caused by the UC...
Sorry to hear you are having troubles! While recovering from my first surgery (proctocolectomy with end ileostomy), I started to notice some changes in bladder function. I mentioned the issues to my...
Sorry to hear you are going through so much, but sadly...many of us have been there! My UC was severe, did not respond to any drugs and was killing me....so I decided to get surgery. For many...
Maybe we have different things then, because mine has a pretty strong smell. This is what I used....
I wasn't saying that it has failed...haven't used it long enough to make that call. So far it seems to be holding the wafer on very well...I'm more concerned with the fact that it seems like it might...
This is just part of the same thing I had posted in my thread about leaks, and I'd still love leak feedback there, but wanted to post the part about using Benzoin Tincture in a separate thread: I...
I had been on pred varying from 35-60 mg/per day for about 3 months leading up to my surgery. It wasn't helping me AT ALL, but my GI thought it might at least have kept me from getting any...