I don't think it's just my doctor, and I don't think it's just about Simponi. It's just the NICE guidance for biologics unfortunately: https://www.nice.org.uk/guidance/ta329/chapter/1-Guidance But...
Thanks for your replies :) Just to confirm, I am still on azathioprine as well but just a low dose because I had issues with side effects on higher doses. I don't think it does anything for me...
Hello all, it's been a while since I've been on here and I hope you're all okay. Simponi really did the trick for me and I've been living a good UC-free life for a long time. That seems to be the...
I think my triggers were me starving myself and thus confusing my body, depression (which is thought to be inflammatory) and extreme stress. Coupled with good old fashioned bad luck of course....
NSSG - The symptoms haven't just started when I stopped simponi, they've been brewing for a few weeks now... But the last few days I've actually been feeling pretty good. I'm personally pretty happy...
Hi everyone, not been on here in a while, so hope you're all doing well! So my year long Simponi trial finished, my last injection was four weeks ago. The trial nurse told me that they saw a 47%...
I've been having this recently too :0...
Yes, I have about 4 bms a day and consider myself pretty much in remission because there's no blood and they're formed. I want to start curcumin supplements, but I'm seriously struggling to figure...
I'm struggling in this department too... I've not had a meaningful relationship in years, and even my platonic friendships aren't that strong or meaningful anymore. I'm quite introverted, and just...
Thanks everyone. I guess I thought myself to be in semi-remission, but writing it all down, maybe I'm not doing as well as I thought. Today I was in such pain I even though that getting surgery...
Since my endoscopy didn't turn up anything, my GI has decided that my throwing up must just be a side effect of the Simponi, and wants me to start on something else. I'm on a clinical trial for it...
Haha I kinda agree that neurotypicality is dangerous though, not only with autism but with things like schizophrenia as well. Who's to say what's 'normal'? I think when we prize 'social skills' so...
^ And if 35 years old is too young to 'risk' biologics, I'm wondering at what age our lives become dispensable to gamble with....
That sucks, I'm sorry :/ I was under the impression there were therapies that could help sometimes? Meh, I don't know. I'm not nearly as depressed as I used to be, and even now when I do get...
I've never tried antidepressants but yeah, pred did miracles. It was what I needed at the time, but in general it's not worth the lows. The weight gain was what bothered me most as well, but I think...
I'm 21 and on Simponi. Risks are minimal. It took about eight to ten weeks to work for me, and can take up to four months for some people, so I think you should wait to give it a fair shot....
Hahaa can't believe you conned them out of extra pred! :p Though you're right, it's not exactly hard - we could make a fortune on the black market if we were so inclined. I do find it quite shocking...
Fully agree that we're all going to die anyway so may as well just do the best we can and enjoy ourselves while we're at it pb4, but I don't think we can apply that to smoking. You are not just...
Holy crap. It's weird. I seem to be the only person on this site who didn't really have any bad side-effects from pred. I've always had depression, and pred honestly helped me more than any...
I've always had depression, but pred induced was the worst. I would hide under my bed all day literally screaming with anguish and fear....
I was given propranolol for anxiety a while back (a beta blocker) and that helps with the heart rate. But otherwise nah, it's annoying but just standard relaxation techniques and stuff....
I'm completely aware of that? I never expected to be fully under, but I felt absolutely nothing at all. I always remember my scopes and everything that happens, but I am normally more...
Okay I sort of understand the disgust surrounding people who share their UC stories on facebook, but a lot of you seem to be judging people who tell people about it at all. A lot of you keep saying...
I highly recommend it notsosicklygirl! I'm absolutely dreading the next few years when people my age start having babies and getting married - I'd be very sick of it too....
Okay fair enough about privacy concerns, but people who moan about their newsfeeds really confuse me. Facebook is literally just what you make of it? Just 'unfollow' all the people who post pics that...
Yeah for us with free healthcare it would be counterproductive to sue. Guess it's more an American thing, where you expect to get what you pay for. I was very torn on the issue a couple of years back...
I know you didn't elzb, thanks for the support. I was given sedation but I guess it didn't have time to kick in. Also from what I've read on here, other countries seem to knock you out completely ?...
It's not childish in the slightest, you're taking a massively life-altering step today. It's an incredibly brave thing you're doing, and of course it will be difficult to adjust, but just focus on...
I really wish they had waited... I would have been able to tolerate it so much more if I wasn't panicking. I was more upset than annoyed yesterday, but thinking about it more I'm angry. You're all...
Sounds like you need a hug NCOT......
Okay so my report says I was given: Midazolam 1mg Fentanyl 50mcg Buscopan 10mg I know nothing about sedation, does this seem like a lot to you? Come to think of it, I don't remember the flex sig part...
Thanks for your perspective. It's very interesting that you throw up when you have inflammation - when I initially posed the question to the forum a few months back, the general consensus seemed to...
Bananagirl - yes, entyvio is the next option... ideally I'd like to delay it as long as possible though. I'm 21, only diagnosed two years ago, and I'm running through these medications like anything....
Thanks worriedgirl! I was always slightly wary of having a procedure done on a weekend.... thing is I attend apparently one of the best bowel hospitals in the world, but the care has often be...
Thank you all for your kind words, your sympathies mean a lot - it's nice to be reassured I'm not just upset over nothing. It hadn't even crossed my mind to complain - as London Lurker explained,...
Earlier I'd posted about being scared for my endoscopy today. After everyone's reassurances I wasn't too worried, but it couldn't have gone much worse. They were about the put the tube in my mouth...
I have depression and anxiety, but even without that I'm still extremely introverted...
I never get hearburn, only gas, and tums does the trick for me too...
I've also always had this. It upsets me a great deal, because it makes me feel like this illness is all in my head, and I just need to try harder....
I guess they could make the case that covering your face would hinder your communication with the kids?...
Sorry you're going through the same thing skyflyerjen... have you got it checked out yet? For me it's only rarely 'chunky', most of the time it's just liquidy. That's brilliant that you've found...
Thanks pb4! Tests are on the 22nd, I'll be sure to update. DB: Yes, I'm definitely going to need sedation for the flex sig. I don't really know how this is going to down, having both on the same day...
Happy for you!!...
Thank you all! Feel better about it now, I will definitely ask to be put to sleep, just hope they do it. I've got a flex sig the same day too, so it's gonna be brutal. Don't suppose anyone has any...
Thank you all for the encouragement. I wonder if it's different in England though, because I was told I would be given a drug to make me drowsy and relaxed, but will still be awake....
Thanks :( I've just graduated and set to start my new job in a few weeks, and I'm scared they'll find something wrong and I'll have to decline the job :(...
I can't handle having things in my mouth, I have the worst gag reflex ever, my mouth physically can't open very wide at all and it's just going to be awful. Is there anything I should know to make...
And people who've never smoked a day in their life get lung cancer. Just because it's not a trigger for EVERYone doesn't make it any less important....
Very interesting. I'd like to see statistics for emotional abuse too....
Oh god so sorry! Glad you're out of there and hope your bloods settle down soon......