I agree it was also the danger zone for me. I scoured for best practice research on tapering and it was so poor. I found one that suggested going down by 2.5mg per step after 20mg. You can get 2.5mg...
As said above, CMV could be a cause of colitis. When I was in a bad period and not getting better on meds I was biopsied for it (negative) and antibody tested for it (negative). Good gastro...
That would make sense for me. My big flares have come after food poisoning incidents. Old Mike - have you looked into ACE2 in relation to UC ever? I've been diving into it since breaking out into a...
I'm hoping that the vast amounts of new research money that has gone into SARS Cov 2 will help us too because of the overlaps with the meds that have been effective for cytokine storms in Covid-19...
It could just be that you are of the group for whom UC reduces with age but nonetheless, I have been meaning to look at supplements for this because Tim Spector (book - The Diet Myth), who has done a...
Thank you for the link to the calculator. Had to smile at this one. I just put my details through the calculator (I'm in the UK) and then tried it with different country of residence out of interest...
as others have said, my understanding of this is that they sent both control group and vaccinated group out to live their lives and are comparing infection, hospital and death rates. There is ongoing...
Hi OM. I saw a news alert about this today and remembered your thread on HP and the Pravda theories. I don't have journal access these days so could only see the abstract too...
I saw a piece a few years ago about a special ultrasound in Canada that can detect (but not biopsy) but in most places, not it can't. Agree that calprotectin screening important to monitor...
Glad to hear your Corona has improved. There seems more and more research that if the systemic inflammation can be dampened, you'll avoid the worse, so being on IBD meds could even turn out lucky....
sorry if this is frightening [please skip over this post if you suffer from anxiety] to some but as someone who works in healthcare, those posters who think this virus focus is overdone have not seen...
just looked at that link. No one with IBD should be taking Ibruprofen anyway as it can cause gut inflammation and yes, the advice I've seen for those on steroids is taper off if possible, but not if...
It's a frightening time in many countries and frankly annoying when people compare it to flu because we all have the choice to have the flu jab but there is no jab for this. Also upsetting when it's...
Haven't been on the forum for a bit as happily have been doing better. Happy for you to see this post. Anti-viral properties of olive leaf perhaps helping? Some of us seem to be helped by anti-virals...
Some new UK sponsored research building on the discoveries about mitochondrial DNA, probably won't lead anywhere for a long time but good to see it all the same...
Been a while since I posted this. Done a couple of ubiome since and still no AM appearing. Maybe it never will now for me without FMT. However, I've also read more about it since this post and seen...
saw this and thought of this thread... http://www.nature.com/articles/nrmicro.2017.158 "The germ-organ theory of non-communicable diseases" Recent insights suggest that during homeostasis, epithelial...
You should discuss with your doctor that you have discontinued. You may flare in the next few months or you may not but you are taking a risk. Hopefully they'll agree to regularly monitor your fecal...
Yup, as OM says, MF seemed to make me flare more, I am Homoz for MTHFR c677t. Trying to eat folate foods, not always easy with UC. I really don't know how much these gene results matter - what I did...
think we talked about that too. There has been resistance in the UK to folic acid supplementation to flour which so far has won. There is such a strong lobby to put it in because of the fear of spina...
Thank you KCFLY. I will check out that forum. Glad to hear that your UC has not been affected. Do you feel you are benefiting from CPAP? Are you any less fatigued?...
I have suffered with mild sleep apnea for years and controlled it with a mouth splint but the apnea is worse now after weight gain (due to meds and menopause) and I guess just muscles losing tone, so...
I posted a lot around this on the MTHFR threads. Quite a few of us got worse with any supplementation including methylfolate. I try now to just eat high folate foods....
Thanks MK. When I first looked into Vit D I remember coming across an explanation that it is not really a vitamin, it is a steroid-like hormone. So it would make sense that it has an effect on the...
I've seen quite a bit on H Pylori being protective against esophageal cancer too. I was on very high dose vit D for a few months this winter. I went into remission on cyclopsorine so don't know if...
Glad you got out and the UC stayed calm enough. I've been watching all of this on the news from far away in England and thinking what a nightmare this must be for all but of course we personalise if...
I don't know if this is relevant but I was just reading an article on tryptophan and IBS https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266036/#CIT0054 (having read the recent study that L Reutri...
I've just caught up with this one. I remember an old thread on reuteri where some said it really helped and others not. I wonder if the reuteri is key in helping tryptophan in the production of...
Not sure if this was noted on another thread but I've just noticed that the latest trial began after Nestle and Dr Falk bought into the treatment was terminated early, can't find any page reporting...
Thanks MarjieKay There's been a bit of discussion on it here in the threads about mucous :-) At first it seemed it would be bad because it seems to eat mucous for its energy but on the other hand...
Swidsinski's research has come up a lot in threads discussing colonic bateria. Just been pointed in the direction of this interesting paper on the effect of a keto diet on the microbiome of MS...
I know I'm not alone on here in having a fist degree relation who had MS. Was fascinated to come across this study that stumbled across compounds in sunscreen which appeared to be protective against...
For sure SCD yoghurt does not have bifido, Elaine G thought it could overgrow in the UC colon and cause problems. It could also be that some bad bacteria was in there and got grown along with the...
I think anyone would be concerned at your results who was not supplementing but as Quincy said, all of those conditions can be tested for with other tests. I hope it all is OK for you. With regards...
I got adverse side effects from being on high B12 for a long time, I was supplementing as I felt so much better when I got off my lows which were around 200 but I was hovering around 900 - 1000 for a...
I've just managed to get access to his clinical poster in the Journal of Inflammatory Bowel Diseases from 2011, Volume 17 Sounds like he had amazing results with a mild/moderate distal UC. Am...
Strange, I tried it in a different browser and it still worked The link is not adding the https:// for some reason, if that is added at the front it works I got to it via a Google search with terms...
Just revisiting this thread after having read an article on some probiotics producing excess H2O2 and I see you've covered it already. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4884264/#CIT0018...
Just been reading this one myself. It's no wonder when we are so susceptible when you look at the collection of meds we are often put on - steroids lowering the immune system, calcium supps while on...
Haven't visited for a while and funny to see a ginger thread as I was just reading about "ginger bug" as a starter for homemade sodas today and thinking I must give it a try...
My usual warning. I used this regularly, can't remember for how long, maybe for a couple of months and I ended up with bad D. I think I wiped out too much with it. Thus probably fine as a short...
Got to say a big thank you to those participants in remission who risked this! Recently I was prescribed some high dose vitamin D tablets, the list of non active-ingredients sounded like a cocktail...
This study looks hopeful, very technical though, maybe part of the puzzle as to why dysbiosis not necessarily seen at onset of UC but seems to worsen over time...
Can't say I have great evidence for improving but I did when at my worse cut out all supplements. B vit supplements for instance were a culprit for me which is the last thing I expected. Psyllium...
A large plate of pasta so hot that you perspire sounds like it has the potential to give many people indigestion. Indigestion is not UC but more stress on the digestive system is noticeable when you...
Thanks again OM. From the reading seems it is important to have the seeds and not just the juice. My Ubiome stated I have no detectable Ak Mun. It certainly is confusing that it is listed as a mucin...
Thank you OM. Grapefruit is a no no on my current med. I'm on high dose D at the moment too. Pomegranate is a new one on me, will have to look that up....
il-23 is what is targeted by Stelara/Ustekinumab I know from my 23andme test that I have that gene implicated, in their outdated list of risk genes for UC it is one. I wish I could afford to try...
Old thread here with not positive reviews of creatine http://www.healingwell.com/community/default.aspx?f=38&m=1723242 ...
I would definitely get checked for C Diff again. If you did have it mildly the steroids can make it much worse. Hope you have a better day today....