Hi all, well following my scope yeserday and the discovery that my proctitis has spread most of the way around my colon, there's talk of azathropine. I just wondered what people's experiences were...
Oh that's intereseting I didn't know that, I'm in the uk so sure our treatment options are more limited but yes I've only ever been on pentasa, didn't know there were other types of mesalasine, I'll...
Hi all, it's been a while since I posted but in a nutshell: first started bleeding March 2010. Flex sig showed inflammation in rectum and splenic fixure. Colonoscopy a month later looked normal but...
Hi I'm 36 and have had ulcerative proctitis for 3 years. Controlled with oral mesalasine granules. Have had one flare since diagnosis earlier this year which consisted of mucus, blood, softer more...
I'm seeing a rheumatologist on Monday for possible enteropathic arthritis which I'm hoping isn't AS. Started back pain in feb, lasted for 3-4 months varying in intensity. Worse in morning etc, all...
Wow those are long waiting times! Also can't believe he wanted you to stop your meds! Uc is always there and needs meds to control it! I'm in the uk and sometimes there are long waits to see certain...
Wow paradiso76 that's a long time to see a rheumatologist. I was very lucky they manage to get me an appt within 3 weeks. Sounds I've you need to get in sooner with that much pain. It's a shame you...
Enteropathic arthritis comes under the umbrella of spondyloarthropathies which is cover arthritis of the spine and peripheral joints. AS is part of this umbrella too. I feel like I could write an...
Yes it is Leo, I take 2g pentasa orally in the granule form. I know they say oral isn't always best for proctitis as it has a long way to go to reach the area needed lol but it's worked for me. As a...
Hi leo I too had pancreatitis with apparently no cause shortly before my uc symptoms started and i too have proctitis. At the time they put it down to a side effect of the omeprazole I was taking at...
Hi I'm a 36 year old female with mild uc diagnosed 4 years ago. It I well controlled with pentasa. To cut a very long story short I was diagnosed with arthritis in both my hips a couple of weeks ago...
Thanks all for your reassurances, felt so much better today :) bit of lower abdo pain now but nothing different to normal....
Hi I had a colonoscopy yesterday afternoon. Felt ok last night, little bit tired from sedation but no gas or pain. This morning had a mild generalised abdo tenderness but have had a lot of cramps,...
Thanks guys thAt article was indeed interesting. I'll await my biopsies to see if they can shed any further light........
Hi all well after being in a flare for 2 months I went for another colonoscopy today to see what was going on. They had a really good look and took loads of biopsies. Visually I was very inflamed up...
Hi all, how long (I know everyone's different!) would you expect steroid rectal meds (I'm on colifoam and pred supps) to clear a flare before you consider other things. It's been about 2 weeks for...
Sorry have a really bizarre and gross question (even for this board!) but have been on colifoam for 3 days now and seems to be helping, less blood mucus, etc. but this morning have really bizarre...
Hi, I'm currently flaring with my ulcerative proctitis and Ibd nurse has booked me a colonoscopy as it is unclear if I just have proctitis or inflammation higher up (previous scopes showed mild...
We have plenty in the uk but like yours some of them esp in rural areas are starting to close due to vandalism , cost of upkeep etc. they're generally clean over although sometimes whiffy but can't...
Hi I've popped over from the uc board. I'm very new to this. Was diagnosed with ulcerative proctitis (up to 20cm) in 2011. And after getting that flare under control was taking pentasa daily orally...
Wow they only give a general anaesthetic over her for extreme extreme anxiety, preferring instead to use midazolam for sedation, we are also offered entonox, aka laughing gas, do any of you use that?...
I find sitting on the toilet while massaging my tummy helps, although I would most definitely not recommend this in a public toilet as in my case it's very loud lol :tongue:...
Yep I've got reflux and up. I had what you described a lump in my throat along a with an intermittent hoarse voice, occasional pain. Take omeprazole 20mg once daily and never have heartburn or other...
God my husband forgets the name of my condition and had to phone me to ask me for it when he was sorting out travel insurance! He hasn't a clue what's going on with me and has no clue about this...
Ooh interesting you should say that, I've had recurrent colds with lots of thick green mucus (sorry lol) , plenty of frontal pressure headaches and one proper episode of full blown sinusitis since...
My feeling is,take your meds for the cardiac issues. That has the potential to be more catastrophic. X...
Sorry I should have added to my sig that I'm currently using pred suppositories to deal with the flare, was using pentasa too but it was giving me black bits in my poo so Ibd nurse recommended...
Hi all thanks for your replies. No I haven't seen ent yet I'll ask for a referral from my gp cos it's getting ridiculous now! Re the pentasa, when I was first disagnosed literally knowing nothing...
Hi all, I just wondered if any of you have problems with recurrent viruses since been diagnosed with uc? I was diagnosed with proctitis two years ago and since then have had countless coughs, colds,...
Hi, i work night shifts, usually one or two a week combined with day shifts (I'm a children's nurse). I'm flaring with my proctitis at the moment And definitely found it got worse after doing two...
Thanks for your replies, I had haemorrhoids a while back and they were very sore, not getting that soreness now during or after BMS, so am thinking not that? Been on pred suppositories a week now,...
I'm from the uk so we have foam mesalizine enemas. But to be honest I found them very difficult to retain and have had to go back to suppositories. Although having said that I'm flaring and not...
Hi I have proctitis and experiencing my first flare after diagnosis. It started with bloating and gas and after a couple of days came the mucus and blood. Doubled my oral mesalizine and started...
That's what I was afraid of. I already take pentasa orally and have increased the dose. Have an appt with my Ibd nurse tomorrow and have a feeling they'll want to be re scope me :/ x...
goodness you're all so healthy, how on earth do you find time to cook all of that in the morning? Im a cereal girl with the mandatory cup of tea....
Hi, i have tried a steroid enema so cant comment on that but have been using the asacol foam enema for a couple of weeks and have been finding it almost impossible to retain in all night. After doing...
Hi all, i see many of you are taking various vitamins and pro biotics presumably to keep yourself in optimum health. Other than a multivitamin with iron i dont take anything and was wondering if what...
Hi all, ive got procitis and am cuurently having a flare and it was getting better on pentasa foam enemas and pred suppositories. I changed the foam enema to pentasa suppositories last night as a...
Hi, sorry to hear about what you've been through sounds v rough. I'm quite new to this, just having my proper real flare after being diagnosed 2 years ago. Over that time I've had a couple pd days...
Hi again, as a new member I've been reading through a lot of the threads and I'm interested in how treatment varies acc to which country you live in. I guess as an American site many of you are...
Hi, this is my first time posting to any forum but have been reading some of your posts and think it's best to get advice and views from the experts-the actual people living it every day! Anyway a...