Hi everyone, Just wondering if there is anything that you can take for pain. My husband is at 17% filtration, so we are trying to keep it there and not add any additional issues for his kidney. I...
Hey Judy, sorry I'm late to the party! ;) My doc took me off the Remi many years ago, probably about five. I'm now on two Lialda that I take at night, and I feel better than ever. I too had no...
Hey Bananagirl -- I was on Remi for 5 1/2 years and taking nothing else but an antihistimine before my Remicade. If you have had a good scope and are in clinical remission, I bet you will be okay...
I had to switch to Lialda recently, and the pharmacist was alarmed at the high cost of the med; about $500 a month cash price, and with deductible about $150. Pulled out the Lialda savings card...and...
After years taking Pentasa, two pills three times a day, I had to do the switch to Lialda as well. The only problem I had was that they put me on one pill twice daily, and I was really dizzy. After...
Yes, so much of the article was something I could relate to. I too am about 10 pounds overweight right now...but I'll take it because I'm in remission. And after being so very sick; I absolutely take...
So glad to see this article which may add some attention to this bummer illness. Wishing you all a happy day....
Devick -- how are you feeling today? Did you have any movement at all?...
I'd say wait until morning -- if there are no results then give your doc a call. Everyone is different though, so I'd say go with your gut (pun intended!) Are you having any cramping at all, and have...
Hi Devick, Immodium lasts for me about 12 hours. Also, sounds like you have a good plan with your GI, but you know your personal and body situation better than anyone -- we can only give you...
I think Quincy is right. The older I get the more "I don't care attitude" I get. It is what it is....well, most of the time, lol. I'm with you Judy; I was so sick when I was dx'd, I'm too chicken to...
Quincy -- he did take biopsies, so I'm anxious to hear the results from that. The original GI that dx'd me was so much better to deal with. I'm sorry that I had to switch insurance that left me with...
Ha, ha, ha, me too!! I almost started laughing at the GI when he said that because I was like....."What?" I keep telling myself that I misunderstood him. He never even talked to my hubby...so heck I...
I can't eat the skin -- love grapes though. I'll have to stick with red wine...bummer....
Oddly enough, I had a colonoscopy about two weeks ago. I've had two clear colonoscopies, and oddly enough, I think this GI -- who didn't dx me with UC -- doesn't think I have UC anymore. I was on...
Yes, I have used one for about 10 years -- it works great!...
Hi Totes, glad the infusion went well for you. I'm sure you did a lot of research beforehand to reach your decision. I too was on Remi for over 5 years. I was very sick when I started it, and it...
Absolutely the most fabulous people on this board. They have gone through the bad times and good times with me, given me great advice, and lots of support. Even though I don't participate as much as...
Glad to hear you can see the doctor of your choice. I had a terrible GI at Kaiser, then I switched to another GI at Kaiser who was amazing. I still thank him for my remission. I'm now in a different...
My company seeds our HSA accounts at the beginning of the year, and then when we reach deductible, it's 80/20. I also have about $200 every two weeks deposited from my paycheck into my HSA so I have...
Darn, Kazbern, I was so looking forward to the Versid! /community/emoticons/smile.gif Now I'll have to look at the other drug to figure out what it does. Thanks so much!!...
Yep Keith, in December I reached the ten year mark! Hurray for me /community/emoticons/smile.gif I just checked and my insurance will cover the colonoscopy so I'm all set for February. The only thing...
Yes, my husband and I discussed this at length last night and decided that since both Pentasa and Lialda are Mesalamine based, I'll just continue taking the Pentasa until it runs out. It just ticked...
Yesterday I had a visit with my GI -- it's been almost three years. I haven't had a reason to see him, but my new GP wanted me to check in with my GI. Since the demise of Asacol, I have been taking...
I eat greek yogurt as well; I like the Trader Joes Mango and just tried Safeway's open Nature; pretty good. Also drink Lifeway Kefir...and it's lactose free. I eat it for the extra protein, and yes I...
Done! I'll make sure my family and friends sign as well. Thanks!!...
So sorry for your loss Andrina, safe travels to Germany. ((Hugs))...
Wow Collicat! So happy to hear that Dillon is doing so well. And congrats to him on living a full life and getting his pilot's license; so awesome. Merry Christmas to you, and thanks for letting...
That's funny Guardian 7. The other night, me and my husband were laughing at all the TV advertisements for new meds -- and the names are ridiculous. I'm thinking about writing a jingle for them. :)...
Katmom, here's to her healing quickly and moving on with her life. I'm hoping this surgery brings new and happy memories for her, and for many years to come. Your a A-1 Mom!! Carol...
That's awesome Contentprof! Remi did the same for me, I've had two clear colonoscopies and rely on Pentasa to keep me in remission -- and it's been about 4 years since I stopped Remi. Celebrate...
Thanks Judy! I haven't had an ANA done, but I'll ask my GI when I see him in January. Seems the "episodes" are getting more frequent... :-( Not sure if it's age related or UC related! Hope you are...
I'm glad I saw this post; I was on Remi for 5 1/2 years and it did wonders for me. Now I have joint pain almost all the time, but sometimes it gets so bad I literally feel like I have the flu and...
By the time I pay for my meds, I am low-income. It's so frustrating....
Yep, always carry my med set with me in a shoulder carry on bag. Never know if I'll be stuck or luggage lost...good to be prepared! Also make sure and take some snacks with you. Good luck with your...
I moderated with Kitt for many years; what a precious person she is. I wish her and the family peace....
Scrambled eggs, one yolk, two whites and Canadian Bacon. Sometimes I add in a piece of Dave's Killer Bread. Later in the morning I eat a piece of fruit for a snack....
Yesterday I was exclaiming to my husband, "If I didn't have this stupid illness, I could retire right now!" The Pentasa I take is an astronomical amount so if I go Affordable Care Act until I'm 65,...
Susie!! So glad to hear from you. /community/emoticons/smile.gif Sounds like you are doing really well...as notsosicklygirls said, I remember when you were in a totally different place. You sound...
Katmom, so happy to hear that your daughter is doing well. Ya' kicked that bad colon to the curb! Keeping the healing thoughts coming your way....
Agree with the above posters; don't go off your meds. I've been in remission for a few years and feel well just on maintenance meds. Every once in a while I consider dropping the meds (because they...
Sending good wishes to both of you. Absolutely a rebirth of health for her! You've both endured so much, and she's fortunate to have such an amazing Mom. Keep us posted on how she is doing. Next...
I take two 500 mg blue capsules three times daily, and have been on the Pentasa for about a year (since they terminated Asacol.) The Pentasa seems to be working well....
He was a great comedian and actor, and what a big heart he had! Depression is a lonely disease; I know his family must be devastated. Peace Robin, and thanks....
Joey, you can also try coconut water. I get horrific leg and foot cramps, and about 15 minutes after I drink the water the cramps go away. On airline trips, I drink Smart Water during the flight --...
Checking in from California...same goes here!...
I had a friend that doesn't have UC mess her pants. I walked into the work bathroom, and it smelled horrific. I never use that bathroom. She said, could you please go out and call Carol and ask her...
Yay, glad you are doing well and the bad colon is now gone. Sending you good thoughts for quick healing. Carol...
I pretty much now stay away from anything that has a label of "Foster Farms" on it. A once reputable company has gone the way of corporate and has had one sanitary issue after another. They've been...
I'd say my hair loss was from Asacol and just plain old being sick and not keeping any nutrients in my system. I started taking a B-100 supplement which helped, and then eventually went on Remicade...