Glad to hear you're doing well. I'm just a few weeks from my 2 year take down procedure anniversary. My situation probably couldn't be any better. The 3am poop is the only real annoyance for me. I'm...
1 year update.....wow, 1 year ago right now I was in the OR. Not really a lot to report. Life is completely normal. Nothing to complain about. The outcome has far exceeded my expectations. I've...
I don't really keep track anymore, but I average 5x/day I guess. I think yesterday was 4, and so far today I've been twice. It's infrequent enough that it doesn't impact my comings and goings at all,...
Dang, nearly 6 months since I've looked in here :smile: So, if anyone is interested, things have been pretty great. I've literally had zero issues or complications from my surgery. I'm still planning...
Glad to hear your girl is doing well! I'm almost 9 weeks post take down, still doing great. Started lifting weights again last week and that took things to the next level. Nothing much to say other...
I never imagined this would turn out so good. Having a BM about 4x/day now....no pain, no urgency, no big deal. It seems I can hold it indefinitely too. Went over 10 hrs. one day last week between...
My take down (which was done 3 weeks ago) was 6 weeks after the 1st surgery. I've had no problems at all. The stoma site wound has been slow to heal, but never any infection or complications with it....
I have the Champion Juicer from championjuicer.com It's a pretty rugged unit, and it seems like it'll probably last forever. I've used it a lot and I'd buy another one just like if something happened...
Wow, this is turning out *much* better than I ever expected. Less than 1 week after take down and I'm down to 6x/day in the bathroom :turn: I can even pee standing up :smilewinkgrin: I think I'm...
I had the take down surgery this past Friday. Back home now and everything seems to be o.k. Saturday was pretty rugged.....I puked a couple of times and the resident Dr. started talking about an NG...
I only know one other person with a j-pouch, and we talked a few days ago about this.....he says he has used baby wipes from day 1 and has never had a problem with burning or rashes. Do you guys not...
Totally with you on the "torturous loop" comment. My take down is Friday, and I'm so excited about getting this ET off my belly I haven't really thought much about pooping regular(ish) again. It...
The last few days I've had a slightly better result by dusting stoma powder on top of the BCT after it has dried, blowing the excess off, then dabbing with a 3M Cavilon wipe. Barrier adhesion is...
All I can offer is that my Coloplast belt works with Hollister barriers, so if you find one of those. Tried the local hospital(s)? You could jury rig something with some 1/8" twine tied with a slip...
No powder, just BTC on the irritated skin after I've dabbed the moisture off. I've got it on my finger, and some got in the sink and wouldn't come up with anything other than alcohol. Its the...
This stuff isn't working. I think its allowing the irritated skin to heal somewhat, but when the alcohol flashes off there's still moisture on top, so the barrier doesn't stick. The powder is the...
I just got tired of being sick, and jumping from one medication to the next. My surgeon told me my colon was "pretty sick" at my post-op follow up, so regardless of whatever new medication was, or...
I thought I had a leak, so I went ahead and changed barriers this morning. Not sure about the leak.....had moisture in navel under barrier fabric, but couldn't see a breach when I peeled the barrier...
I'd be afraid to cut it smaller, but its not round, so there's a spot I have to guess at how much inside the line to cut to get it close. This barrier cut is very close to perfect....
I removed the old bag, cleaned everything, dried everything with hair dryer, applied BCT all around the stoma, dried with hair dryer, applied barrier, applied additional BCT to exposed skin/barrier...
I'm not 100% sure it's working. I'm still getting that stinging/burning feeling, but maybe it's just isolated to the skin that's not underneath the barrier. I coated everything pretty good after I...
Got everything changed over this morning. BTC application stung pretty good, but the alcohol flashes off pretty quickly, so it only hurts for a few seconds. Stoma cooperated.....moved around quite a...
My 2 piece Hollister convex barriers came today, so I'm going to try this method out later this evening when the stoma output calms down a little....
I got a bottle of this the other day, but I don't have any convex 2-piece barriers yet. The skin around my stoma is pretty irritated, and weeps some blood.....aside from the stinging (it has alcohol,...
If I'm understanding right, he's limited in his ability to work in India, isn't making enough money, and wants to move to a different country where he can work in the video/photography industry. My...
Bananas, peanut butter, pretzels.....and bad carbs (pastries, cake) seem to thicken mine. But I'll still have liquidy output along with the thicker output. I'm taking a couple loperamide per day as...
I'm emptying my bag about 10x/day, and I'm only letting it get 1/3-1/2 full before emptying. Any idea how, or if, this will correlate to my j-pouch after take-down?...
Also, and this is probably something that won't happen in my lifetime, but a research lab at a university (forget which one) has successfully bio-3D printed a liver, so I can definitely envision a...
Yea, the k-pouch is a good option if you don't like the external appliance, but finding a surgeon that can/will do it might be difficult unless you can travel to the place in Florida that does them...
I saw a change after 2-3 weeks, but it wasn't anything significant. It definitely lessened my symptoms, but no remission. After about 6 months, I doubled the dosage without any further decrease in...
I can't tell mine is gone......I mean, I can tell I'm not hurting and cramping anymore, but my insides feel completely normal, and emotionally there hasn't been a change at all. This stoma and bag...
Had my follow up appt. with the surgeon Monday. She was pleased with my progress, and we went ahead and scheduled the takedown surgery for the 4/24, 6 weeks and 1 day between surgeries. The...
I saw that stuff in the store with all the other supplies. Started to get a bottle, but had no idea what it was for. I'll pick some up this afternoon and give it a whirl. Do you paint it on just...
Basically get everything clean and dry, apply paste or moldable ring, then apply bag. I've cut the hole in the barrier slightly larger than the stoma measures. I'm still having problems though, even...
I've actually been out and doing stuff for a few days. My wife carried me out to dinner last Fri. & Sat. afternoon, which was just over 2 weeks after surgery. I attribute it completely to the robotic...
3 weeks post surgery and I'm doing whatever....except lifting. Feel great, and I love being able to eat anything and everything again. Had fish n chips at Bonefish Grill today and it was fantastic....
So the ostomy nurse says my leakage problems can be solved by using a bag with a convex barrier. Those came today, and I'm pretty sure I see how they work, and I'm pretty sure it'll stop my leakage....
I'm about ready to dub this impossible. Its like the range of motion from sitting to standing creates contours around my stoma that causes the barriers to fail in short order. Very frustrated with...
So its OK to shower without a bag on? Does it not make a mess while you're drying off?...
Yea, I just tried again with the ring......rolled it out and wrapped it around the stoma, but the area of skin just beneath the stoma just will not dry enough to allow the putty ring to stick. I...
I have some of the coloplast rings but they seem to be as useless as the paste in that they don't really provide a barrier......they just don't seem to stick for very long....
I'm having lots of trouble with my barrier losing its seal right at the stoma. I get everything dry, put a ring of paste down, smooth it out, then stick the bag on. I could swear I'm doing it exactly...
I've had a couple of rough patches since getting home, but I feel like I'm out of the woods now. Pain meds are absolutely mandatory.....I don't think recuperation would be possible without them....
As of today, so far so good. Surgery was originally scheduled for 2/19, but the weekend prior, the surgeon was in an accident, so I was rescheduled for 3/12 (discharged on 3/18). As far as I can tell...
I used azathioprine at one point. Tolerated it well, and blood work was always o.k. It eventually stopped working like everything else. I suppose it depends on your classification. If you're...
Both teams are very good at finding a way to win. I just hope it's a 4th Q, or better still, an OT game. This season has been the worst for blow-outs and wide score margins, so I'm just hoping the...
I'm having mine at UAB, Birmingham, Al....
Asacol HD gave me diarrhea unless I took it after a meal, then it was more like regular-ish BM's. I could take it if I wasn't flaring, and it seemed to help, but if I started flaring it just made...
That's great to hear Todd. 3-4x/day is totally fine with me. I've wondered about how controllable the frequency is with caloric intake. I am, or at least hope to be again, a weightlifter (not...
What I've came to realize over the years is that correlation doesn't equal causation. Figuring out what foods/supplements/medications, etc. cause problems or don't cause problems isn't a documentable...