Great news you’re improving kweeks! While we’re all chatting about blood I almost never get blood - frequency & urgency my biggest issues. You’re right blood looks alarming but I’d def choose solid...
Been in this situation & feel for you. I def use immodium & it helps me although can take a few to work when things are bad. So I get up early & make sure I’m empty as pp said it can be more...
All good points. I don't actually look at my poop but I do keep a track of how many times I go. Frequency and urgency are my ongoing issues. its this annoying IBS and UC thing. But after my other...
Yay sounds like you've got the knack. I've also upped by asacol & are planning on doing an enema tonight. Do you feel like the enemas are helping yet?...
Kweeks hang in there you can come and talk poop here as much as you like. Periods often mess with my UC, hopefully it settles down again....
How are you getting on? I also did as above with tips from here, last thing before bed, lie on left side in bed and not try and do whole bottle to start with, I would even have a rubbish bag next to...
Hi Guys I have IBS and UC. Lucky me I know. Do any of you use any kind of app to monitor BM? At the moment I make notes of what time/how often I go in the notes on my ph lol but its a bit hard to get...
so if you don't mind me asking if you're not flaring are your poops reasonably predictable?...
Have you heard there's a great new app that can control our colitis so we no longer have to crap ourselves in public? Me neither. But I was wondering if any of you are using/have used in the past...
Gah flares are horrible aren't they. You're done awesomely with one flare in 15 years. It sounds promising that your BM are already decreasing on the upped dosage hopefully once you get some rectals...
one thing I did learn over on the IBS boards in case its helpful for others is many were noticing an association between melatonin and D. I found this interesting as I often take melatonin. I'm sure...
hmmm sounds interesting like you say as a support to symptoms given I have both UC and IBD-D. Although it says its not a probiotic sounds similar ie as a support and obviously doesn't work for...
Thanks for listening to the moan everyone. I usually consider myself lucky in comparison but I also think that mindset can be part of my problem. this IBS/UC combo is annoying as it creeps up...
such a PITA. As if UC disease isn't bad enough. Blood, mucous, frequency, urgency = obvious flare. but a lot of the time feel like I live in a frequency, urgency zone where I'm questioning is it UC,...
I'm tapering from 20 to 10 for 1 week then just supposed to stop. Do you think that's ok to go from 10 to 0?...
I do find the brain fog helps with the anxiety although not great for work. Do you know do you have to take with food? That's what it says in bottle but I try to take in morning so I can sleep at...
I'm only on 20mgs for 2 weeks, start tapering tomorrow. I'm not sure what's happening if its just built up in my system but last few days I feel really spaced out & brain foggy after taking it. I've...
My doc said to stop the colifoam as I'm now taking oral steroid & had been taking Colifoam for a few weeks prior to starting that. I haven't had a stool sample. In the last few days I've started to...
LOL I know right. I've seen a few over the years I'm hoping as this one is dedicated to the GI office she might know what she's on about...
enemas are 1g per 100 I asked doc if there was higher available here & she looked it up she said no. Will ask my gastro next week. I've only got 3 days of pred left until I cut down to 10 so guess I...
Great I'm going to get some tomorrow see if it helps so over this...
Thanks Samantha. did you ever add a soluable fibre supplement? The dietitian at the GI office said I could try very small amounts like 1/4 teaspoon & build up every 3 days to see how I go. It seems...
Update - went properly first time in 3 days but yup timing was impeccable as usual was in car about to take kids out piled them all back inside & went normally - result! Thought that was it then then...
So up until now I've been pretty 'lucky' diagnosed 11 years ago proctosigmoiditis mainly been able to be managed with pentasa maintainence then upping during flares. Until now. I've been flaring prob...
Welcome. Hugs about the stressful mornings especially being a teacher. It's a nightmare trying to work it all out isn't it & figure out what's causing what. Unfortunately there's often not an easy...
John I think you're right re meds I've got my sigmoid scope Monday so my GI is waiting to see what it says before readvising on meds. At the end of the day at the moment I'm only taking 2-3 asacol...
I haven't been told I do but I can tell I do, I think a lot of it is down to dehydration due to so much diarrhoea etc. I try and drink lots of fluids/water and use breath mints. And I also floss lots....
Wow lots of great tips. I can totally relate to the anxiety. I've been so close to being caught out before I held on as we were about to get off the flight & then when we got off we had buses to take...
So I've had this disease for about 12 years and I've managed to juggle work without having to let anyone know. It may sound silly but I choose not to tell people at work because I'm in a really...
Sounds interesting. What were your main UC symptoms? And what brand did you buy? I've wondered about trying Chinese herbs...
Great advice here. I feel teary just reading it all tbh. I've been really struggling with this flare I've been quite lucky with this disease generally just been able to chuck more drugs at it if in...
I think I had full blood work done & that's where the low iron read cane from but will check again with my doc. I felt way better on the iron tabs but had to go off them for the breath tests & now...
I've taken probiotics every single night for years it's one supplement I'm religious about. Even for general health there's that stat about the % of immunity that comes from your gut. Can't remember...
I'll do this scope & then he said if it looks to have progesssed further we'll need to do a full one. I hate the prep for colonoscopy so happy to give this a go. Enemas are 1g. I was doing colifoam...
Very wise words about the inconsistency. So just looking at my reports - in 2006 I first got diagnosed with moderately severe proctosigmoiditis. Via colonoscopy. In 2015 my 2nd colonoscopy he wrote...
Gah think I jinxed it! Didn't have a great morning - went kind of normally a few times then had lots of feeling like I need to go & felt like lots of pressure but hardly anything coming out & more...
Whipped cream lol so true! Just need some chocolate sauce & a few cherries Because the enema is a bit cold I could feel it going right up felt like into my stomach but guess it's the colon when lying...
with my pentasa enema in I find it comforting to know there is an awesome community here that know what it's like to insert, what I like to think of as, a cold juice box up my ass. I don't know...
@flowersgal what anxiety meds do you take? I have some beta blockers that I sometimes take as my job requires presenting & I was starting to sound nervous due to stressing about my UC. I'm not sure...
That book sounds interesting think I need to read it too. I don't really have any suggestions just wanted to say I get it. Anxiety now a major issue for me too. It's hard because usually you can talk...
It's hard isn't it. Do you eat eggs? I have eggs & avocado on GF plain toast, soups, smooth peanut butter & banana on plain GF toast, rice cereal, mash potato & easy to digest protein like stews I...
Hi Matt - been thinking about you prob because I was around the same age when I first got diagnosed. Did you see your GI? How's it going?...
So I've been back on Pentasa for a few months now and overall its been great, should have gone back on it ages ago, I've actually had some normal mornings & think the inflammation has died down. But...
Notsosicklygirl I can relate, I wouldn't say I worry per se but I do sometimes think about the limitations of this disease. Like when watching programmes like amazing race or the bachelor & I think I...
Chantrelle there isn't one in my area either so I'm doing a SKYPE consult...
Thanks PB4 the specialist dietician I've booked in with has crohns herself so I'm hopeful....
Dikid - big hugs, it is awful about the anxiety this disease can cause I find having plans helps, ie sitting near doors etc. like PP above have said. once you get the first day under your belt you'll...
Donna - so know where you're coming from I started a new eating regime, felt amazing, lost 5 kgs then boom flare. think all the fibre etc. wasn't a good thing. I've now gone off it, am eating junk...
Yay for a good date! So happy you made it through with no accidents. I take fish oil as it also helps with some of the dry skin and other effects I get from the pentasa. But I have no idea if it...
Thanks for the response Katmom, I'm on pentasa and the inflammation is improving ie less blood, mucus but morning urgency/frequency is still insane some days! I'm hoping that will improve soon too...