Thanks for the replies. Sorry I'm being a wally. I am taking 3 X 750mg balsalzide daily. Also a salofalk enema each night. I have called my nurse to see what they want me to do just waiting for...
Hi Gang I havent been on here for a very long time as have been doing really well on Aza medication, where i sustained normality for about 4-5 months. Then Christmas came..... ....i thought as all...
Hi all I started Azathioprine 6 week ago and for the first time in 2 years i've had no blood and no ulcers in my mouth! YAY. However, i do seem to be going to the toilet, this past week ALOT more...
Hi all Has anyone ever had a side effect from aza where small sore lumps appear under the arms. I've had 3 in the past 5 weeks, they're blooming sore and go away after about 3-7 days. I've been on...
I'm well within the decent range of TMPT apparently so let's hope it's ok. Just taken it tonight and I do seem to have some pain just under my ribs on the left. Feels like a stitch. Guessing it's...
Thanks kiwi. I've just started tonight. Took my first 100mg just after dinner. Just about to go to bed. Fingers crossed it works and I don't get any side effects. Everything I read says about he...
Thanks dikid. Would you say it's ok to take for mild symptoms? It seems like a step up he medication ladder and my UC doesn't seem to cause me many problems. Just a bit of urgency and there's little...
Also have only been in a mild flare for about 2 years. Once to three times daily with blood. Does it seem a bit crazy going on such strong medication?? My doc is worried that the ASAs aren't working...
Just started this. Should I be worried about side effects? Anyone do alright in this?...
Thanks for all your replies. I think I'll hold off on the pred until/if things get worse. For now I'll take the aza and stick with rectal meds and balsalazide. Fingers crossed. I don't ever have any...
Hi all I just came off a taper from 40mg pred, last 5mg dose about 3 weeks ago. I'm flaring again now. Not hugely but there's blood and mucus and I'm going about 3-5 times daily. Anyway, my...
Oh and also for the guys that asked. I'm currently on 6 x balsalazide a day and mes enemas 3 times a week. The enemas do really help and I notice a massive reduction in blood the day after. I'm...
Thanks for all your replies. Some mixed views there with meds and diet. I'll give the diet a bit longer and see what happens. The thought of going on long term meds that screw with my immune system...
I've just been on 3 months worth of pred and felt human again after so long feeling like crap. Now it's been 2 weeks off the pred and I have significant amounts of blood. No D but still blood. I've...
Hi kiwi That's really interesting. Do you think the fatigue and strength loss is due to the medication or the illness in general? I'm a very keen cyclist (+100 miles a week) and have to over...
Hi all I've been on here quite a bit lately and have mentioned in previous posts that i've began to flare again (3 x solid stools a day but with blood some of the time) after a year in the "safe...
Hi all Here's an update for you. I've been on the steroid enemas for a week now and I'm worse than ever. Lots of blood, to the point where today I was quite worried with the amount. I've stopped the...
That's right. Liquid retention enema...
Ok thanks both. I'll stick with it as was wondering if my body just was shocked by the new regime. I've been on 2g salofalk enema for over a year. The enemas seem to be the medication of choice for...
Quincy understand its a treatment but my symptoms have become dramatically worse overnight. Months of not being so bad to being pretty bad today, I don't think that's a coincidence some how. I've...
Hi folks Did the enema last night and things are ALOT worse today. Keep in mind I had minimal blood and solid stools. Did the steroid enema last night and today I've had major bloating, left sided...
Hey juststud, the diet thing, well I find if I eat certain foods the next day or sometimes the same day my bowels react, sometimes it's gas, sometimes its D. I've kept a log and through trailing for...
Hi, me again! As stated in previous posts I've seen an increase in BMS (3-4 a day) with urgency and noticing slight blood each time. My doc has now asked me to change from salofalk enemas to pred...
Thanks all for your replies. I thought it could be the start of something but was wishing it wasn't. I'll get onto my consultant and see what he wants to do. Talks about the next stage of medication...
I've never 'given up' or lost who I am due to this disease and I've always managed to keep things 'normal'. I realised very quickly to not fight the disease but learn to adapt with it. However, the...
Hi Is this classed as a flare? Solid stools 3-4 times a day, a little amount of blood in most movements. No D. Urgency has always been there for years, even before I was diagnosed when I had to go I...
Hi ipoop Symptoms were non existent for about 9 months but now they're back a little. 3-4 solid ish bms a day with a bit of blood, a fair bit of gas and pain. Also the sudden run to the toilet on...
Hi all Does anyone out there have any travelling tips? I've just booked a trip to barbados with the wife and was wondering if it's a prime "stomach bug" region (you know the ol' dreaded travel...
Banana I'll have a read of that article. Looking at the link I'm assuming it's related to the paleo diet? Have you guys tried that? Any success?...
I can imagine kazbern. I've had the odd niggle here and there but nothing to keep me from training. Speedy recovery to you. I'm sure I've got all this to come, I'm 27 and since I've had UC (just over...
Oh and for the rest guys. I was normally a nightmare for not resting but after I got diagnosed for this i now listen to my body, a bit too obsessively. I can assure you I'm resting up. Just a couple...
Kazbern that's a shame. I'm not sure what I'd do without the exercise. Keeps me sane and is hugely de-stressing. Especially as I have a pretty stressful job. Banana - I honestly do think that the...
Kazbern you're bang on. Sounds like you may have done that before. No Gatorade for me though and not so much water on the 12 milers as its 0 degrees Celsius here at the moment, so just a standard...
Hi all Firstly to answer garylouville question. Training for me consists of a lot but definitely not any horrid concoctions or carb drinks. Real food and water does it for me. As for McFarl, the pain...
Hi guardian Thanks for the quick reply. I'm also currently taking slippery elm, pro biotic and glutamine 2 times daily. It normally sorts me out right away and I feel an improvement daily. This time...
Hi all So for about 8 months everything was good. I then started training for a marathon and found that when running the longer distances (12 mile plus) I'd get a pain in my left side. Ive stopped...
Thanks for the soystud. I'd like to get my bloods done. Do you know how I go about doing that (guess you may not as I'm in uk). Kazber I do tend to keep the up every night. However my last scope...
So what's this story that I will actually believe then soystud?...
Soystud I couldn't help but read your signature and can see you're on no meds, with pancolitis. Very well done sir. How do you do it? I've been strict with my diet and ruled out a lot that I know...
That's true soystud I'm sure I'll figure it out. PS. I'm English and watch the real men's sport. Rugby!!........haha...
I am actually on 6 x balsalazide a day at the mo. Yes had the scope. Mild inflammation but wih 'symptomatic remission' (I think that's what he called it). How long do these things take. It's been...
I was diagnosed September 2013 with left sided UC all the way up to the bend. I was assuming this might just be the norm for me now and that its be this way forever?? Doesn't seem to be affecting my...
Hi all So for months now I've had solid 'normal' bms but they always start with a tiny bit of liquid which I can hear hit the water, followed by the formed bm. When I wipe I can see blood on the...
Hi all I'm in remission and havent had any symptoms for a long while but i do have a dull ache in my left side. Not painful as such, just a mild annoyance. I do quite a bit of exercise...
Hi Geeker, i take the Glutamine in powder form (making sure it's 100% pure) and the slippery elm in capsule form. I have been taking the Glutamine twice a day for the past few weeks but have this...
Hi all I come to this forum alot to read the views of others on how they are "managing" their UC and i wanted to share my most recent experience as i have tried many of the things noted on the forum....
Hi and thanks for your thread. I find this extremely interesting as i have also been experimenting with nicotine for the past 6 weeks. I have been smoking an e-cig (vapour pipe) and i've...
Thanks alot for your replies. I am going to keep at it as the symptoms i mentioned before have calmed down. I'll see how it goes. Just need to start the path to healing this colon of mine....
Hi Does anyone have any experiences with slippery Elm? I've tried it twice and each time with a couple of days my bms become more frequent and I have more blood and mucus. Is there a few days where...
Hi, this mirrors exactly what happened to me. I was on a steady 2-3 solid bms a day, had the colonoscopy, and now have upto 5 with blood and mucus I am just assuming it's due to the prep and scope...