Thanks for the reply, sorry it's been ages as I have been burying my head in the sand again, still waiting for counselling. Thanks, I did find the same thing about the coating being different and...
Hiya, I have this problem too. Every time I have been in hospital, once I come out and start to recover, my hair falls out. Not completely, just much thinner all over. I was in hospital in august and...
Aah welcome back, fingers crossed that 2016 will be a better year!...
Hi there, in answer to your questions, the first thing I noticed is that 15mg of Prednisolone is a very low dose. I don't think that is a high enough dose to work. Usually when flaring I would start...
Hi Catherine, hugs to you, being in over Christmas can't be nice. I was going to respond to your original post by saying that I would not start tapering until the bleeding has completely stopped. A...
Hello everyone. So today I got a letter from the GP's saying that in the UK, Asacol is being replaced with Octasa. I have been googling it and trying to find out what the difference is, so far I...
Aah thanks, still in a bit of pain now but better than it was. :)...
I always found the fatigue to be more a symptom of my UC rather than just being caused by the steroids alone (I'm not saying steroids doesn't cause it). Even when I am in remission I get very...
I've never really found an effective way to combat fatigue, but I would say take naps during the day if possible (even just a quick hour as soon as you get home, before you start cooking your tea),...
Hi everyone, I'm really sorry for the late reply. My depression got overwhelming and I just kind of withdrew from talking to people at all for the past few months as I couldn't cope. So after my post...
Hello I am now in hospital as of yesterday, and I got told that the doctor wants to halve my asacol. I was terrified and got very upset, so the nurses are currently letting me take my normal dose, as...
Thanks, I've googled it a little bit just now but sort of need to go to bed, so I'll have another look tomorrow. That sounds like it works well, it's encouraging. Must make you feel a bit safer. I've...
Yep lol! I do hate taking them but I just grumble about it and do it anyway....
Thanks, that might make sense as I do get very bad hayfever aswell. How did you find out, did you go for tests or something?...
No, sorry, I meant 2 types of mesalasine - you know, like Asacol for a couple of months, then Salofalk for a couple of months. Both were every night, I also tried Salofalk twice a day for a few...
Hiya, I always get fatigue, even when in remission. I tend to be anaemic a lot too, which can make you very tired. I asked the nurse about it once, and she said it is just part of having UC and is...
Hi, in my case I usually notice a reaction very quickly, within 30-60 mins of eating the food. It can be anything from mild to severe pain (you know how your colitis pain feels different to anything...
Hello, like others have said I would definitely get your doctor to put you on some oral mesalasine as your maintenance medication (for the rest of your life). Also antibiotics can make UC worse, so I...
I have used 2 mesalasine enemas in the past, Asacol in about 2010, and Salofalk very recently. Both times I noticed no improvement in my symptoms, and in the case of the Salofalk, I did wonder if it...
Hello, I'm in a flare at the moment. I was starting to get better, but then I went away for a week to Wales, and I got ill again. I have noticed a few times that I feel ill after eating...
I have had some problems with working. I was hospitalised in 2010, and my boss was very unsupportive, I was returned to work on a phased basis, with my hours slowly increasing (by my doctor, with...
Hugs to you. I got diagnosed in 2002 and some people in my life have never understood. My mum is one of the worst actually, especially for saying stupid insensitive things. I don't really have any...
My symptoms usually go like this (mild at top to severe at bottom): 1. Usually nausea as a 'warning'. 2. Abdominal pain in lower left side of abdomen. 3. Worsening of pain and and nausea, often with...
Hi, I have taken 2 different mesalazine enemas, and I found the Asacol to be much easier to retain than the Salofalk (both foam and similar dose I think). Last time I was in hospital the nurse...
I find food really affects my UC. I tend to stick to a more or less low residue diet when in remission, and avoid eating large meals. When I am ill, I stop eating altogether and just drink Complan...
I have to agree with garylouisville, I saw a hospital dietician after my 1st hospital stay in 2002, and she was well-meaning but pretty useless. She kept nagging me to eat more, when I definitely...
Hi, no I would say that is an average starting dose. It all depends how ill you are when you start oral steroids. They can only give you a certain amount orally, and if your body needs a bigger dose...
Hi guys thanks for answering. DBwithUC - Thanks, but I'm in the UK, so things are a bit different here (I'm assuming you are in America from looking at your profile). The steroids which I usually...
Thanks for replying guys. I will try squeezing a bit out, hopefully it will help. I could ask for liquid next time but I've got 1 and a half boxes of foam left. Just did it 30 mins ago and my hand is...
Hello, I'm having another flare-up at the moment. It's very similar to my last flare (Dec 2014 - Feb 2015) in that there is no bleeding, vomiting or anything yet. I am just having pain and gurgling....
I find that I think about it a lot during a flare-up, and am in a kind of denial when I am in remission. When I am ill, I come on here a lot, Google allsorts of things, etc. But when I am in...
Sorry, but I have to admit I haven't read all the posts in this thread. I got about halfway down page 2 before stopping. Sorry everyone, it's just that it's nearly 4am here and I'm only staying up so...
Hiya, my sister drinks a lot of coke. I'm not sure how many cans a week, but my mum buys her at least 2 big boxes (she only likes cans, not bottles). When in remission, I usually drink apple juice,...
I'm sorry if I have offended you Jcljag, that was not my intention (or to offend anyone else on here). I am trying to be helpful, although I might not have expressed myself very well. I wish you good...
When I have been in hospital they have taken my antibiotics away (taken for spots), and told me it can make my UC worse. I must admit I have been taking them during remission, but am starting to...
Hi juststud. No I wasn't saying that I know how Jcljag's son feels. I am lucky enough to have not been in his position. I was saying that I know how it feels to have UC and depression. Sorry if I was...
Guardian7-You're welcome, and I agree with you again. Jcljag-I'm sorry but I respectfully disagree, in my opinion that was insensitive. You and your son are different people, and what has worked for...
I personally only count myself as bleeding if I can see blood in the toilet or on the toilet paper. I've always seen soft stools as a separate symptom. Fingers crossed that you get better soon x...
If yours says 'How hopeless did you feel over the past whatever # of weeks' it sounds like the ones I had to do every time I went for a counselling session. I was seeing a counsellor for depression,...
Oh the poor, poor thing :( What a dreadful thing to have to cope with anyway, but teenagers have virtually no self-esteem as it is. I can totally understand him not wanting to see his friends, he...
You can refuse any medical treatment as far as I'm aware. It's your body and you should have the final say what is done to it. Your doctor should be able to sit down with you and discuss...
So I've started using the Proctofoam enemas. I'm sure many of you are familiar with them, the applicator is like a little syringe with no needle. Anyway last night, I was about to fill up the...
Not to rub it in, but chocolate doesn't bother me. However I was upset when I found out I couldn't eat raw apples, and I used to love porridge aswell, but now it is forbidden forever....
Oh, I see, thank you. I think I will still go for the steroid one. I'm hoping it will be stronger than the mesalazine ones anyway. I've never tried steroid enemas before so I don't really know if...
Aah I wish I could help, but I also live in the UK, so have no idea of what foods are available/cheap where you live. I do have some ideas though. First of all, I know some people's UC is not...
Thanks, I will try again on monday :)...
Hiya, have you thought of keeping a diary of your symptoms for a week or so? Then you could compare and see if you are getting better. You could write down every time you go to the ladies, how much...
Hi, thank you both for answering. I have been researching it and found this report stating the differences. It's the 2nd result down. It won't let me link to it directly, not sure why. WARNING-It is...
Thanks, it hurts a lot. No I have seen the hospital gastro doctor, I had a routine appointment, so we discussed my flare-up then. It was last week though, so the GP advised me to ring the gastro...
Hello, I am at the end of my tether and on the verge of tears. I'm currently in a flare-up. Before Christmas I was given some steroid enemas. I was reluctant to take these because I am not bleeding...