Yes, I had a kink after my colectomy/j-pouch surgery. I couldn't eat solids until my takedown five weeks later. When my surgeon did the takedown he detached the adhesion from my pelvis and...
When I had my ileostomy I practically lived in yoga pants, especially high-waisted ones that I could pull up over my pouch. I could also wear fitted tops, and the pouch was not noticeable. I echo...
Medical MJ helped me sleep a little better. I think it slowed down my gut a little....
I lost about a third of my hair on 6-mp. It was so distressing, even though most people couldn't tell. I bought clip in extensions (Luxy Hair--expensive but beautiful), and it made me feel so much...
I had an NG tube after my colectomy and it was traumatic. It was a possibility this time, but my surgeon, knowing how much I hated it, let me ride it out without it. I was passing some stool and some...
I think the Remicade is worth a try--much better than prednisone, which you know for sure will give you horrible short-term and long-term side effects. As for the needles, I had a nurse one time numb...
Hope it all goes well! I'm twelve days out from mine....
I'm on day 12 with the same thing. This happened after my last surgery, too. Mine is getting better, though not as quickly as I'd like. If she can't walk, I found that even just changing positions in...
Hi all, I had my takedown surgery eleven days ago and developed an ileus on the third night. I've gone back and forth from NPO to clear liquids a couple times. Yesterday they did another x-ray, and...
Thanks, everyone. I will take both Calmoseptine and some A&D to the hospital. I had my pouchogram today and the radiologist says it looks good. Takedown surgery Wednesday! I hope it all works--I've...
Hi all, I've got some raw skin right around my stoma from constant pure liquid output. I've got some Calmoseptine, and I know some people use it around the stoma. Do you use it directly on raw skin?...
I counted it as one poop if the second was within ten minutes. I figure if I had just sat on the toilet a bit longer it would count as one. For a shart that had no dripping into the toilet, I counted...
Thanks, Ryan, that's encouraging!...
I will ask about trying Imodium (a slowing agent?)--good idea. Yes, I'm using Coloplast convex wafers that they gave me at the hospital. They've actually done a good job at sealing--I've had fewer...
Yes, the loop ileo is a problem. It's just shooting out pure liquid, I guess also because that's all I'm putting in. I'm having skin breakdown, but that seems the least of my worries right now....
Hi all, I've been on the UC forum, but am now shifting to this one, since I no longer have UC! I had step 1 of 2 of the j-pouch surgery on May 27. I had a post-op ileus, so was in the hospital for 13...
I just had step 1 of 2 of my J-pouch surgery on 5/27, and my left hand is partially numb too. I also had a huge bruise on the inside wrist. It's been the least of my worries, though--had a post-op...
Your case sounds somewhat similar to mine. I started flaring about ten months ago, last July, and burned through pred, 6mp (for about four months), Remicade, Humira, and Entyvio. I had antibodies to...
Angela, I'll be right behind you--I'm having my j-pouch surgery the 27th. I'm excited and nervous about it--can't wait to start healing, but hope I don't have complications. My surgeon and GI say six...
You're not going to die! It can get way worse, and you still wouldn't die. I'm not sure that's much consolation--hope you don't get worse! :) It's too bad you don't have better support....
Prednisone stopped working for me after several flares. To me, it seems like twelve days would be enough. I would try moving on to biologics....
I also think that physical activity stimulates it, so I can drive pretty well without having to go, but once I stand up, I have to go--sometimes can't make it from the car to the restroom (which...
I'm having j-pouch 2-step surgery in two weeks. I actually already have a diversion ileostomy (still have my colon--the ostomy was giving my bowel rest, but it's not healing completely and I'm out of...
I was having accidents almost every time I left the house. It became a "good" thing when I would have an accident but no one could tell (say, just a small amount of mucus and blood). I've tried...
I was on Imuran my entire pregnancy with no ill effects--my daughter is 11 now and very healthy. It was all approved by my GI and ob/gyn. So you may be able to be on it. Better to be in remission...
I know how you feel! When my standard of a "good" day at work became returning home in the same clothes I left in (i.e., didn't have to change due to accidents), and then I was failing that, then I...
I would be careful fasting on your own. When my flare first started, I had the same instinct. I pretty much fasted and lost 10 pounds in a week. The flare didn't go away, but I'm still trying to gain...
I tried it for a couple of sessions, but like London Lurker, it was too stressful for me to be lying there worried about having to run to the bathroom while I was full of needles. It didn't seem to...
Yes, I've stopped taking my birth control pills too, now....
NSG, were you at UCLA? I think I remember you mentioning it in another thread. I was there for the diversion surgery, but I never got an actual room. I had heard they were beautiful, but I was stuck...
I forgot to mention that today was the day my j-pouch was actually scheduled for....
Thanks for all the good wishes, everyone. Yes, we are apparently at risk because of the general inflammation in our bodies--the same reason we also get extra-intestinal inflammation of the eyes,...
Ugh! I was finally ready for surgery, even looking forward to it, when a few days ago I suddenly had severe shortness of breath and had to have an ambulance take me to the hospital. Extensive blood...
Oh yes, sounds familiar. I sometimes choose routes where it's easier to pull over--better coverage! Now I keep a kiddy potty seat in the car, lined with a plastic trash sack. Works great. I find that...
Infliximab is Remicade....
Good luck! One of my docs said it takes till 14 weeks to really start working....
I haven't gotten to remission with medical MJ, but I do use it to help me sleep through the night. So glad I live in California where I can get it!...
Well, I seem to have developed diversion colitis. Bleeding, lots of mucus, tenesmus, and cramping. It's very painful. If it's not diversion colitis, I don't know what else it could be except a...
I had a c diff test with nothing but blood and mucus in the sample and they said it would be fine....
I just called the pharmaceutical company to ask about its status. They say they have had distribution problems and are hoping to have it available in June....
My doctor said Entyvio needs at least four infusions before determining whether it's working. In the meantime, I had a temporary ileostomy that has given me a great deal of relief--it's complete...
How do you exercise when you're trying to gain weight? I'm trying to gain weight, too, and find it difficult, but these posts are good suggestions. I'm going to try the smoothie-between-meals...
Ha, I always crave the worst junk food when I can't have it. I normally eat very healthy, though! Blksteeda, wow, it sounds like you've been through a lot. My surgeon didn't mention anything about...
Congrats! I'm envious!...
Yes, my doctor is going to scope me in a few more weeks. But no drinking the nasty prep, since it won't get down there! Should be a piece of cake. I'm not sure about the cancer risk--my surgeon only...
I don't think moon face is caused by water retention. I think they are fat deposits. My doctor told me that pred redistributes the fat in your body from your limbs to your face and trunk. I don't...
I'm doing well on the Entyvio. It's a little hard to tell whether the improvements are coming from the surgery or the Entyvio, but I'm having less and less blood, cramping, urgency and frequency....
That's ridiculous that your doctor would make you wait that long! I would be infuriated....
Notsosicklygirl, I'm doing well! I had a setback for about a week but figured out it was the Rowasa enemas causing the problems. I quit them, and the bleeding cleared right up. Now I have just a tiny...
Thanks for the info, everyone. Are adhesions good or bad? The only exercise I've been doing so far is walking, but I hope to start building some strength soon--I've lost so much weight I look like a...