Thanks everyone! You are the best. I appreciate all the great advice. I do take Imodium during a flare if I need to occasionally and my GI is okay with it. Just had an appointment with GI today....
Hello! I’m looking for any tips or advice you can share. I’m in a flare but have to fly to see family in a little over a week. I cannot postpone the trip. It’s a very ill loved one that I need to go...
Wow Oligodar- That is a great attitude. You are a pro at this, having had 25 colonoscopies already. I’m going for my third, so it’s somewhat new to me. I appreciate your perspective. I hope you stay...
Thank you for the replies and suggestions everyone! It gets confusing reading about it in medical journals, and understanding what is really going on. Quincy- Originally, I was placed on oral meds 15...
Hi everyone. I have some dumb questions. Hoping maybe some of you can help me figure this out. I was diagnosed 15 years ago with UC. It was procto-sigmoid at that time. I was having 10 bms a day with...
@ Troubled-My last major (persistent) flare was 3 years ago. Typically if I get a flare, I can knock it out fairly quickly with meds and getting enough sleep, avoiding certain foods, etc.Last scope...
Thanks for the friendly advice! I will call tomorrow to set something up....
Hi everyone- I’m due for colonoscopy this month. I’m feeling ambivalent about going into a hospital setting for a screening while still in covid Shelter in place. I’ve had a flare since late April....
Thanks everyone....
Thanks everyone. I’m not afraid of being higher risk to contract the disease. I’m afraid of not being able to fight it off if I get it, because my immune system is already a little wacky. My...
Hello. I have had UC for 14 years and usually it’s well controlled. I’m having a few symptoms... nothing too bad, a little blood, some frequency/urgency and mild abdominal pain at times.I wouldn’t be...
Hi there. Have you checked in with your doctor? I have had similar symptoms but not sure what’s going on with you. I have had nausea and vomiting along with diarrhea, and it isn’t with every flare...
Just changed healthplan and connected with new GI. Just started my new flare with the new doc. I feel a little nervous. She seemed very nice, but in reviewing my medical records a few months ago, she...
When not in a flare, I feel great overall. I have regular BMs, no pain or bleeding, constipation, diarrhea or nausea. I can eat whatever I want and suffer no consequences. It's like not being ill at...
Hi there UCjustsucks- I have had UC for 12 years now. I've been lucky with only a handful of flares and usually I get into remission In 6 mos or less. My diagnosis was age 34 before I had kids. That...
Thinking of you, You-See. This disease is miserable. I'm sorry to hear the meds are not working. I hope you like what you hear at your surgical consult....
I'm going to give you some hope. Yes, I did flare for 4 months after the birth of my first child. However, my baby was born preterm with jaundice, concerns about her heart, etc. and I was a basket of...
I think it depends on how severe the flare is, and if there's a pattern to your flares, where you work, etc. When I was first diagnosed, I worked part time, but it was 10 bathroom trips a day. The...
Hi- Just wanted to share my experience with Canasa. I know we are all different, and you may not have the same response. I started Canasa for the 1st time about 3 months ago after a flare kicked in....
In my previous flare, I was extremely nauseated from asacol and colazol. I used rowasa and had no side effects. Maybe you could give them a try?...
I don't know why so many medications bother me, either. The funny thing is it isn't the first dose that gets me, it's after I have been on meds 24+ hours. I had the same reaction to PCN after oral...
Thanks for the replies. I take the immodium because I work in a job where I am traveling into the community and have no bathroom access. MY GI said 2 immodium a day is ok if I need it. Some days I...
This is a really great question. I think stress plays a huge role. I feel it compromises the immune system and weakens us so the UC flare can take hold. I am only in my 3rd flare in 10 years, and all...
I never had a flare when I was pregnant, but I had one right after I delivered! It makes sense you might have a flare while pregnant due to the immunosupressed state of pregnancy. I have no helpful...
Hi- Just curious about the normal interval for evaluation of whether new meds are working. I have an appt in 2 weeks (8 weeks after starting Canasa). I think Canasa helps a little (hardly any...
Sorry you are going through this! Sounds like the GI office is a disorganized mess. I don't see why they couldn't write admitting orders for you instead of sending you to the ER. I would be looking...
I am a fan of the SCD diet. When I was diagnosed 10 years ago, I was on rowasa enemas, colazol & asacol. At the time, my GI wanted to give me prednisone, but I refused it. I couldn't get rid of the...
Sorry you are having a rough time! I felt quite desperate too during my worse flare, which was only "moderate." I was in the restroom 10x/day and worked the whole time. I had accidents at work and...
No. And that is what is confusing! :-s I do think some foods make it worse. I think I need to do a food journal. Feeling great today with good energy. Had 5 trips to the restroom, but no chills or...
Leeo- I have fingers crossed for you! I hope the remicade kicks in soon. I had all night bathroom trips with my first flare. It only got better when I healed. Sorry you are not getting good rest! I...
Hi! I take immodium and it helps me. I usually have the worst symptoms within the first hour of getting up each morning. I am in the bathroom 5x. Then I take 2 immodiums and it holds me so I can work...
Thanks for the replies. I appreciate the voice of experience. :-) I had bad nausea Friday and the zofran kicked in after about 1 hr. It worked great!! I haven't had severe nausea since (just mild). I...
Thanks everyone. The nausea came back this morning while I was cooking breakfast for my kids. I took my first zofran! Fingers crossed. I feel like I'm on a boat at sea during a storm. Ahoy mateys!...
I am on FB, but am super private about my UC. I have a love/hate relationship with FB. I am on there to keep in touch with people.But it is a bunch of phoney BS and drama, too. FB also snoops into...
You-see-How awful! I have been there. In my experience, when the UC wakes you up at night it's because you are needing something more to battle the UC. I don't think sleep aids will work. I would...
That is a really personal decision, isn't it? I don't feel qualified to advise, as I don't have an ileostomy or j-pouch. I would be tempted to lean toward j-pouch for myself, but I hear it depends on...
Thanks guys. I made it through the work day yesterday, but I felt very ill. I am a master at hiding it from my co-workers, but I won't be able to work if it continues like this.I felt just miserable...
Leeo- Sorry you are having a rough time. I am thinking good thoughts that the remicade will help you feel better and heal....
Hi Sarah- I'm somewhat new to this board, too. You are not alone. It helps to have others who understand....
Good luck NiceCupofTea! Sending healing wishes your way......
Hi. I read through old posts on this topic, trying to understand why I am having nausea and vomiting. This is my 3rd UC flare, and I feel in a holding pattern. Started with bleeding x 3 weeks, then...
Hi Miss Prim- I agree, as I am over UC too! I thought I got rid of it, but it keeps coming back. It's even worse when it drags on.You've had a rough journey. No fun at all. If you are feeling...
I am so glad for this forum. It helps so much to know that I am not alone. I do not feel comfortable sharing my situation with many (of course). No one seems to know how awful it is to have UC except...
Sorry you are in this place! I always felt like all the GI docs had to offer was medication. I tried the SCD diet, and I swear it helped me in ways the meds could not. Perhaps it was a combination....
Remission for me was no pain,no bleeding, no frequency/urgency, no diarrhea. It was 1-2 BMs/day. I ate whatever I wanted. I was on no medications. I no longer worried about tracking down the nearest...
Hi- I am new here. Was diagnosed 10 years ago with UC. Had a horrible 6 months of hell (10 BMs/day).Accidents right & left. I guess I was lucky- only had moderate UC, but the meds didn't work, made...
Hi- I am new here, and am certainly no expert.But I agree we all all different. There is nothing wrong with having hope for remission! I was dx UC in 2005. First flare was 6 mos.I took three...