I apologize for not providing any update. Clinical Remission for a long while thankfully. This drug has been my silver bullet. I wish everyone on this drug, and starting it, well!...
Been relatively quiet on my end, also till in remission. Living life without any colitis concerns :-) . Last scope showed no signs of disease. Glad to hear Entyvio is working for some!...
Completely agree with IPoop, hit it from every angle....
Can be longer than 10 weeks before any real noticeable improvement in movements. Based on anecdotal experience I'd push for you to hang in there for another infusion or two. Have you had a...
CCinPA I'm glad you're doing well. Couldn't agree more with your advice on giving the drug a bit of time. As for everyone else, hang tough! Had a colonoscopy today, still in clinical remission. Been...
Yes, try immunomodulators like imuran/aza or 6mp before biologics if you can manage. My own longest remission came from a pred taper to imuran with 5asa. If you're worried about pred you could always...
Jessicaaa, I too base my diet on the physicians in your post. Don't forget Garth Davis MD, or Kim Williams MD (President of American College of Cardiology). I was waiting for someone to chime in...
You'll be alright. I've had mine with no adverse reaction. If you're feeling well I don't see why there'd be any trouble. I think there is added caution with adding anything to biologic therapy but...
Soy- I would say positive but I have no way to quantify that statement. What I can say is that the severity of my flares has greatly diminished when compared to the severity of uc flares...
Sure thing soynomore 1) 5-asa class, imuran, vsl 3, and now entyvio (+coupled with the occasional rescue steroid when I have had to move between maintenance meds) 2) I notice my body has a quicker...
Edamame is a good high protein snack I sometimes eat late night as well. Also is Gf....
I'm a sucker for nut-butters. Almond butter specifically, pretty sure most if not all brands are gf, I eat maranatha raw almond butter by the spoonful. Totes is right about orgain, good organic...
I'm a vegan (except for the ibd drugs), didn't start until after diagnosis going on maybe 4-5 years now. No problems with any foods during a flare with the exception of spicy foods...
Exactly what NiceCupOfTea said. If my memory serves me correctly there was actually a long time member on here who recently had a change in diagnosis but I can't remember the tag. It happens. That...
Been a bit of time since I've posted an update, my apologies, I've been out enjoying life :-) So it's been over a year since the start of treatment and I've been in clinical remission for some time...
Because there's a chance you've been misdiagnosed and actually have Crohn's instead of UC. I've heard a few stories of people having several pathology reports/biopsies with the best pathologists and...
Sorry to re-bump this old thread. I just wanted to check-in from remission land and perhaps give some people hope. Hang in there entyvio troopers. I guess it has almost been a year? It's crazy how...
Had a recent infusion along with a doc appointment yesterday. We're going to start pulling the imuran. After I was on imuran for a time and in remission with my last GI he also pulled me off imuran....
That's a good question. My aunt who was diagnosed at one of the most reputable GI groups in the country was initially diagnosed with Ulcerative Colitis (after many a colonoscopy, and many a biopsy)....
I'll be watching this as well :)...
This is actually a good question. I'll be paying attention to this thread. There's got to be some protection under the ADA. How you actually get technically registered and request reasonable...
nssg-like yourself, I imagine if someday I have to have the procedure that I won't be doing much of anything while having the temp loop ileo. Your recommendation about nothing over 10lbs for a good...
This might be better posted on the ostomy board but am curious as I finish up my morning workout routine. For you fitness fanatics, how long after take-down were you able to directly work your...
+1 to the orgain. I use it every morning....
Glad to hear Contentprof! I've been well myself. Go in for my next infusion in a few weeks....
Not right away but definitely had a response, and you nailed it, it'll likely take at least your first 3 doses at earliest before you notice anything. Give it 4-5 doses before you judge whether or...
you're a lifesaver nssg. Was just grilled shark-tank (on campus, actually still in class) style and a big start-up issue is getting voice of customer/survey material out for perspective. Firing off...
I'm currently in graduate school and am working on a project for my final assessment course (the culmination of every course we've taken in my program). I desperately need perspective in the form of...
Filiform Polyposis-I'm completely unfamiliar with that pathophysiology. I still think you can quell inflammation with a Uceris or Pred bridge until the imuran kicks in and reevaluate then keeping TNF...
I'll be honest with you, I've never used rectal meds... shame on me I know. I've heard nothing but good things but other than my first GI (who ended up almost costing me my colon) none of my other...
I say step-up to Imuran or 6mp ALONE (with maybe a uceris bridge). Keep remicade in your back pocket for later and make that clear to your GI (if you heed my advice). My longest remission was brought...
So you wouldn't even try Entyvio which has a different mechanism of action and is arguably one of the safest medications for our condition? Intriguing. Would you do simponi or humira before...
This could be a useful thread for those that have failed the immunomodulators (6mp, imuran) and aren't sure what the next best step to take is. There are 4 'big guns' on the market today, as the...
No problem! If you can get the prescription vsl (DS) it'll certainly save you a lot of money and you'll get a higher dose than the regular over the counter vsl 3. The data out there on Xeljanz looks...
VSL #3 DS http://www.ncbi.nlm.nih.gov/pubmed/15984978 Xeljanz off label http://www.ncbi.nlm.nih.gov/pubmed/22894574...
Welcome to the Entyvio log/thread Kinaydein_grrl & welcome to the forum! I don't see Uceris in your list of medications, if I were you I'd strongly advise you speak with your GI about switching from...
Exactly what iPoop said. Imuran asacol combo gave me my longest remission....
I had #6 done about a week ago, fairly confident I'm in remission (per GI). I've already dropped dose on the lialda and my doc wants to get me off the imuran by this summer. Glad to hear you're well...
Xeljanz-Tofacitinib Imagine we're some time off from this next hypothetical but wouldn't it be something if they could create a gut specific oral biologic? Someday......
Vegan as well, Orgain was mentioned in this thread. +1 from me, it has never bothered my stomach even when in a flare. I prefer the chocolate flavor, I do that every morning along with a bowl of...
I was toying with the idea of starting a similar thread to see which (if any) NSAIDs bothered UCers. Myself? Even when flaring Naproxen or Celebrex don't make me worse. I'm actually taking Naproxen...
After 5 infusions I'd talk to your doc about a scope. See what's going on. Also if you were at 15-40 BMs a day pre and are down to a half dozen due to entyvio it sounds like maybe you're still...
Sorry for the delay on the response, thought I'd update regarding my colonoscopy Wednesday. I don't have a follow up with my physician until next week but his words post procedure. "I'm pleased to...
Thought I'd update. Infusion 5 completed. Colonoscopy scheduled for Wednesday. Other than that blip several weeks back I'm feeling great. Between infusion 3 & 4 I felt like the medication was losing...
No idea if Orgain fits the bill (no idea what SCD is), but it's the vegan protein powder I often supplement with. http://orgain.com/products/organic-protein-powder/...
Thanks for the suggestion U B Tough and thanks for the update mk11. I thought I'd share an update myself, so I haven't gotten back onto the uceris yet as I followed up with my GI today. He said as of...
Past week has been bad. Really bad. No blood but incredible urgency is back. I've been off uceris since infusion 3 (exception of one or two days around infusion 4) and am about a month out from...
I think we've had a similar experience. I was on the steroid until right around infusion 3. I have no doubt that something started happening (nothing drastic) around the third dose. If your body...
Ducolax. Anecdotal, on the colonoscopy brochure I receive prior to procedure it states to take the two prep bottles within 4 hours of each other then 2 ducolax tablets a few hours later. I'd make...
Have you noticed any positives a few days after the infusion? Firming up, less mucous, etc? Do you have a base CRP blood test prior to beginning entyvio that you could compare with new bloodwork to...