Currently on mezavent with imuran and tapering onto 10mg of prednisone but my symptoms are slowly getting worse throughout the taper. Already on 100mg and I'm only 60kg so I doubt the doctor would...
It's good to see remicade is working for you, I see a lot of failure with medications and far less success stories. Good luck and I wish you a long remission...
No point playing guessing games it helps you in no way psychologically/mentally. just get a colonoscopy they don't hurt and you don't feel a thing and it's over within the hour, then you'll know and...
We are not crybabies. We are people trying to live normal life's despite having an extremely painful and debilitating disease both physically and psychologically. We are stronger then most people...
Yeah I searched I didn't see anything, I apologise if I'm reposting i am a bit incoherent right now from the pred...
Been having 6-10bms per day taking mezavent so my specialist has put me on imuran with a combination of prednisone to help with mucosal healing to get into remission. what are your experiences with...
yes I have tried pred, it worked immediately. 1-2 bms a day. But once I got to 10mg it started not working and once I was completely off it symptoms returned as per usual in about a month...
I've been on Mezavent since April this year. I've never been in a remission from it not even close. Mezavent in combination with salofalk enemas has brought down the bms from 15-30 times a day to...
God damn, 7 whole years. That's great to hear. How often did you get remicade infusions?...
Just interested in how long you guys have managed to stay in remission and what medication you used to reach it. The longest I have stayed in remission was of course on prednisone and was for a month...
Currently I'm on around 4-5 bms a day, sometimes I'll have 3. I was on 8 before salofalk. Sometimes I get the feeling of incontinence during and after an enema as well as rectal pain and cramping and...
Would just like to update you all on the Salofalk enema usage. Last night I used a 1gram salofalk enema (I'm meant to use two but I can't physically hold two dosages at once yet so I'm going to work...
Before I started taking Mezavant I was going to the bathroom 25-30 times a day, now on a very bad day I go ten, recently I've been going 7 or 8 and most usually 4 or 5...
im glad to hear that I have heard that for some people they make symptoms worse and as i have a lot of important school work to stay on top of that isn't really an option but considering you've been...
It's not really about slacking off, i've just read somewhere that for some people they can actually make uc worse. So sometimes I do them but sometimes I get a bit iffy on the idea. I think I should...
ferrograd C works very well, I didn't even have to have it every day to rid the iron deficiency. At one point i was losing an extremely large amount of blood to the point I couldn't even go to...
[quote="imagardener2"]They worked very well for me (whereas oral RX did not) but you'll have to decide whether they help you or not. It sounds like your # of BM's is greatly reduced but you think...
I was on prednisone about two and a half months ago, it kept me in remission for about a month after the course was finished but then symptoms started showing. What exactly is cdiff? I'll ask my doc...
Go get a blood test to see if you're still anaemic, if you are then that is probably the reason you're still exhausted. Even slight anemia can cause extreme exhaustion...
Hey guys I'm new to this forum and have been recently prescribed Salofalk enemas. I've been using them off and on for about three weeks but they don't really seem to be working? I'm meant to be using...