Sorry, can't seem to get it right. my signature should look like this: >Pancolitis 2012, Left-Sided UC 2015, Rectal wall thickening 2017, MRSA 2017 >Lialda 2.4 g/day, Biotin, Vitamin D, Vitamin B12,...
Hey all, back again with my problems. I've been in remission for about a year following a hospitalization. I called the ambulance due to uncontrollable vomiting and was in the hospital for a week on...
It took me a long time to get to remission after I was diagnosed. But I got there after many months of working with my doctors and sticking with the meds. It's almost equally as difficult as the...
Hi all, I noticed most of the existing threads on MM are a few years old, and it seems like the various MM treatments have changed a bit, so I thought I'd start this thread with some of my recent...
Thats HORRIBLE!! My last scope was scheduled wrong, so the doctor had a double booking. Thankfully they found someone else to do my procedure. I would have been crushed if I had to do prep all over...
Pred might leave your body after 24 hours, but I have definitely noticed longer term effects after tapering off. The last time I was on it, I was on 30mg for 9mo and then tapered down 5mg/week. The...
UPDATE: I was vomiting again on Sunday, and having a lot of upper belly and kidney-area back pain yesterday, so I went into the ER to have some tests done. The most significant finding was from the...
This issue was horrible for me in the 6 months leading up to my most recent flare. My gastroenterologist was just telling me to treat my external hemmie with OTC hydrocortisone cream and I spent a...
Do you live in a medical marijuana state/province? I've been struggling with headaches and nausea from my norcos and t3's and have been considering asking my GI about some sort of cannabis oil or...
That's a good idea about the follow up testing. I've been in my UC mindset, but I definitely need to get some of these other factors checked out. I do have a pretty good GP and I'll make an...
Hello everyone, Long time no flare, but I am back and wanted to share my most recent story about my first flare hospitalization! There's lots of weird stuff in here, tell me what you think! (all...
This was one of my most distressing symptoms when I was first diagnosed. I was absolutely crushed by the bald spot on the back of my head after a horrible flare and 9 mo on 30 mg Prednisone. I...
Shortly before I was diagnosed I travelled to Sri Lanka on a study abroad trip. We visited with a local family and they made us a wonderful lunch. After the lunch we did a tour of their house and...
Hello everyone! There is a spot on my cheek that has been darkening for the past 6-12 months. It looks sort of between a birth mark and some dirt on my face haha... I read Asacol can cause some skin...
If you are in remission, I agree with the other posters that it doesn't seem super necessary to have the scope right now. But I don't agree that 7 or 8 years is the magic number. I had my second...
My IBD genes come from my mother's side. My grandfather and cousin had/have IBS, and my uncle died of colon cancer at a young age. We all lived/live close together (in the same state). My cousin and...
Yes, its super frustrating! I would say the 5 lbs came off in about 2 months. I think it was that 'water weight' ppl have been talking about. It was along the same timeline that my moon face...
About a year ago, I was on Prednisone for 6 months, and I gained 20 lbs! About 5 lbs came off right after I finished the steroids, but a year later I am still dealing with excess weight. And like the...
First of all - prednisone is the worst. my bf's mom had the best description: "Its like there's a hungry demon inside you." I was on prednisone for 6 mo. when I was first diagnosed. I gained 25 lbs,...
I'm sorry you're dealing with this Haley. It would be surprising to me if this was a reaction to the Asacol. I'm not a doctor, so I guess I wouldn't rule it out, but I agree with previous posters...
I have had some struggles adjusting to my diagnosis with my partner. Having a chronic disorder like this is hard, and not just on the person w/ the condition. I've had to cancel on family trips, ask...
The other scary aspect of this is the complicity of the doctors, who must have known the FDA's ruling but prescribed the drug to people anyways....
This is somewhat OT/not in direct response to amy_vt's original question - but I was struck by the fact that the doctor ordered a scope every 8 years for a severe case. When I was diagnosed with...
I stay away from alcohol if I am in a really bad flare. But most times I can drink wine with no problems. My main issue though is beer - I think the carbonation is a problem for me because soda gives...
I'm sorry. Just seemed like a scary experience. Guess it hit close to home because I have had an endoscopy and need regular colonoscopies. I didn't mean to misrepresent the situation....
Completely unacceptable - I'm so upset for you! Not only would I complain, I would call my lawyer. Can't believe they do this procedure with no sedation in the UK. I was out cold for my endoscopy....
Norcos have worked well for me. I've had several short-term scripts from urgent care clinics and emergency rooms when I was in a bad flare. Also try a heating pad on your belly or back that helps...
It's so hard to talk to even my closest loved ones about pooping my pants or not wanting to go out because I have to be near the bathroom. My boyfriend of 5 years wouldn't even look at my colonoscopy...
After lots of trial and error after my diagnosis, I never found any food sensitivities. Even raw greens and spicy foods are fine for me. The most helpful supplements to my prescribed medication are...
A couple things - I had nausea and vomiting with my colitis before I was diagnosed and put on medication. Also, I had my first colonoscopy with an upper endoscopy and it was a piece of cake. Even...
Very interesting article. I think the hygiene hypothesis has merit. Clearly there are other diseases in less developed countries that can be harmful or dangerous, but we can always re-evaluate own...
Looks like a very promising study. I like how they used the word "chow" in their abstract :)...
Thanks so much for the replies everyone! Feels good to know I'm not the only one experiencing this. @Dikid I think I will request a blood test for vitamins and thyroid, especially with my vegetarian...
For the past several months I have been losing quite a lot of hair. Not clumps but many hairs are coming out each time I brush. I thin spot on the crown of my head is getting worse. My UC has been...
It sounds like you are doing a lot of things right by having frequent colonoscopies, staying on your meds, and having an active dialogue with your doctor. But stress and anxiety are symptoms that...
A friend of mine described being on steroids the best - "its like there's a hungry demon inside you"... I only gained 10-15 lbs but have been unable to lose more than a couple after a year....