I haven't been on the boards since 2015, or early 2016 (I think). I stopped reading and posting for two reasons: 1) I was in complete remission from colitis - zero symptoms, could eat anything -...
Glad you're someone who speaks up. Not everyone is able to do that. I cant remember the user name of the person who had terrible joint pain for Remicade but search this forum for joint pain and...
Give the Salofalk time but if it continues to get worse, he may be intolerant of mesalamines. I am and found out after Rectal mesalamine made my symptoms worse. Usually, if there's an intolerance,...
Wow, that's crazy. I hope your pain improves quickly. I've never heard of UC causing so much pain that walking is impossible. Were you ever on Remicade? Several here have had terrible joint pain from...
Hi Totes, I've been on Wellbutrin (bupropion) instant release for over twenty (!) years. The instant release formula is indeed an anti-TNF that has been shown to help with UC. I started taking it for...
Hey there. I've been wondering about how you're doing. Any improvement? Do you think the curcumin is helping?...
Please, please don't blame yourself. You made the best decision you could based on expert advice, research, your age, etc. Your pouch isn't a "mistake"-you're simply having very bad luck with it....
Great news! Don't forget to bring your tablet and sign up for Netflix, if you haven't already. I don't know how I survived my early flares without those two things. During my last flare, I watched...
Very early in my pregnancy, I had a mini-flare that lasted 7-10 days. Hormonal changes always made me flare so I suspected I was pregnant when it happened. So it could be pregnancy hormones but my...
Jason, I'm sorry about your cancer diagnosis. I hope they caught it early and you recover well. I'm in a similar situation, age 47. If they find dysplasia, the colon has to come out and I don't know...
Did you increase your Lialda when the flare started? You could have a sensitivity which isn't so bad at a lower dose but will show symptoms at a higher dose. I really doubt that the hydrocortisone...
I get that very occasionally but when I do, it's painful. For me, it's like a badly cramped muscle that spasms intensely for 15-45 seconds. It almost always happens when I'm bending at the waist....
Ridgerunner, thanks for responding. How come they made your first one so flat?...
No surgery yet but possibly heading there so I've been reading this board often. I've noticed that stomas vary: some stick out a lot and some don't. Some are almost flat. Some seem to point down. Why...
What other medications are you taking? My guess is you're on some kind of mesalamine which you could be "allergic" to. Getting worse is a symptom of that. If you're not taking anything besides the...
Thank you everyone! This discussion is so helpful. 1) I'm considering surgery because they found low-grade dysplasia which may put me at risk for cancer. It's still being investigated but if there's...
I didn't flare after my son was born or after weaning him at one year. My UC was completely in remission the whole time except for a two week period right after I conceived. I've always had UC...
That's great news! Don't get worried if you go more over the next day or two. Periods often cause more/loose stool. And who knows how your body will react during your first period in probably over a...
I take six capsules a day of Doctor's Best 500 mg. Totes, I always start anything with a small dose just to be sure I'm not allergic or it causes problems. I suggest you start with one capsule and go...
Thanks, SLF. Dr. Rubin was my doctor about eight years ago and I liked him very much. But I moved north so he became more geographically inconvenient and my UC was mild, I didn't need a rockstar...
Not sure how you could feel worse. And I'm curious what other medical options your doctor thinks there are for treating UC? Sounds like you've tried them all. At the very least, surgery would stop...
I met with a surgeon at University of Chicago yesterday for a surgical consult. Low-grade dysplasia was found in a recent colonoscopy and I wanted to get an understanding of surgery even though no...
I take three grams per day. At first, my poop was yellow but that has gone away over time. It didn't bother me when the poop was yellow. It made me feel as if the curcumin was making it all the way...
Thanks, everybody. I met with Dr. Hurst yesterday. He seemed fine but I can't say I felt a good connection with him. But that my have been because he didn't think I needed surgery so he didn't spend...
I like the dulcolax + Golitely prep. Whatever prep you do, it goes a lot easier if you stick to a liquid diet the day before the procedure. I've found that once everything coming out is pale yellow...
Thanks for the reminder to donate. I just did it via PayPal and it took 20 seconds. Anyone else who's able to contribute - please donate, too. This site has given me the most useful UC advice I've...
Hi Totes! Glad to hear that you're stable. I do think you're expecting to recover too quickly. You should measure progress by the week, not by the day, and also remember that staying the same is...
I've had a hemangioma on my liver for 20 years. It always comes up when I get any type of abdominal scan. Something to watch over several years but most of the time they're nothing to worry about....
FYI - looks like the limit per customer is four bottles. I use at least 18 bottles a year and was hoping to stock up for the next six months....
The Doctor's Best curcumin, 500 mg, is $17.33 for a bottle of 120 capsules right now which is $6-$8 cheaper than I usually pay. Camelcamelcamel.com says it's the cheapest price ever. I don't think...
I take 3 grams per day. I saw improvement within 10 days. When flaring, I take 6 g per day. When I did that during my last flare, I saw improvement within 48 hours. No runny stool but sometimes what...
That's good news, Totes! It's amazing what a large enough dose of prednisone can do. It's also good that your flare is mild because it should be easier to get under control with the right amount of...
Did you eat anything dyed blue or green? Jell-O, fruit juice? That can cause it. I wouldn't panic yet but consider increasing any probiotics you take and the amount of resistant starch you eat. If...
I hope the medication increase helps you. You should also consider rectal medications because they can work miracles. While you're flaring, you do need to watch what you eat. Low fiber, resistant...
Hi Totes, i've been thinking about you. How are you doing? Any improvements?...
I've had UC for 15 years, including one hospitalization. I've had three different GIs, two of which were very well-known doctors at the biggest teaching hospitals in Chicago, and not once have I been...
Hormonal birth control always caused UC issues for me. I knew I was pregnant because I had a sudden flare just like I got when starting the pill and the Nuvaring. Don't let your doctors convince you...
Definitely do not recommend Slim Fast because of the fake ingredients. It made me pretty sick the last time I tried it. You'd be better off with a bland, low residue diet. And consider whether what...
Take 1/2 an Imodium if you must take any. Id be concerned about Imodium when recovering from a flare. It slows down your gut which is not good when your body wants to go often. I'm sure that taking a...
Don't panic. I really think the flaring is due to hormonal fluctuation. As you go to fewer feeds per day, your hormones are probably more unstable/up and down than when you were feeding full-time....
I'd ask for an rx for nightly hydrocortisone enemas regardless of whether you taper. For me, steroid enemas work like magic. Always treat from both ends....
Fasting does not cure flares. If it did, my flares would last about a week because when I'm flaring badly, I barely eat a thing. There have been times when I was flaring and I couldn't believe How...
It's not a waste of time since you couldn't know what your results would be. Mine were very abnormal which led me to try grape seed extract. It's helped me a lot....
If it's working, you'll just feel better. Less frequency, less urgency, less pain (if you have it). When I was having a bad flare, I felt results within a week of getting to the max dose. I don't...
Totes, what you got in the mail is exactly what I take. And I take six capsules per day to get the three grams that works for me. I take all six caps with dinner but you can spread the six over...
Which post-23andme analytical site have others used and recommend? Genetic genie? Pronethease ? Others? Thanks....
If I were you, I would do a 7 to 10 days steroid burst. That's when you either take a high dose for all 7 to 10 days and then stop cold turkey or you start very high and taper every day until you hit...
IAmCurious, i agree with you 1000%. i have suffered with major depression since I was 18 years old. 25+ years of therapy and antidepressants have helped me function normally, even during difficult...
I had a mini-flare about two weeks after I conceived. In fact, I knew I was pregnant because of that flare (always had issues going in and off hormonal b.c.). It went away after two weeks and I...
Pretty sure that folks of Ashkenazi Jewish descent (Jews whose ancestors are from Eastern Europe) have the most risk since it's always listed as one of the four or five risk factors for UC:...