I have have UC and developed ankylosing spondylitis, Raynaud's disease, Enteropathic arthropathy and lupus....
Can anyone tell me the specifics of their first dose of Stelera? Is it infusion, or injection? Was it done at Dr's office, etc...?...
UCyousee, VERY interesting article. TU....
I was doing great with Humira so I stopped cold turkey with no issues at all....
Twice I used accutane. Once in the 80's. Once in the 2000's. Both times I went into a HORRIBLE flare for years.It took years of heavy doody meds to get me better. I would advise anyone to run from...
Take it. He may want you off long tern ingested steroids. This is different. It is IV and should help your body VERY quickly get rid of inflammation causing your issues. I have been fighting this...
I have lived with this issue for decades. Dr.s originally called it idiopathic neutropenia. In other words no idea why. For about 7 years or so I was taking weekly injections of neupogen. It would...
Not sure about the weird feeling as in how? If they feel cold and or numb look up raynauds...
I guess OP fell off the boat....
Do yourself a favor. Start taking Allegra or similar allergy medicine a few days before the remicade infusion. Some people can have an allergic reaction to the Remicade infusion. They will most...
I use Optimum Nutrition Gold Standard Whey in vanilla. I have no problems with it. I mix it with orange juice and ice and it tastes like a creamsicle....
Modify your risk by having scope done by somebody that does them routinely. There are GI's that do them occasionally and there are others who do 100's a year....
Until you have been tested for antibodies keep at it.It took forever to work for me. Past the point DR. wanted to quit. Eventually I did get antibodies and am doing very well on humira....
I go every year because my Dr. likes new cars, and I like propofol. ;-) I am 59. Diagnosed at 24. Family history of cancer. Polyps removed each time. 3 different Dr.'s all requested yearly. Even at...
I have had U.C. for 35 years and get scoped EVERY year....
I have had colitis since 1980. I have had at least one scope every year because it was so bad.Sp close to 40 colonoscopies under my belt :devil: THE BEST, the easiest BY FAR is the dulcolax/miralax...
I already entered that study about 6 months ago. They probably get more out of it than you, but in the end maybe it will benefit some of us. The feedback they send is not much but you can take the...
Ankylosing spondylitis is associated with UC. I have had very bad lower back pain for years. Went to a rheumatologist and was diagnosed with it and osteoarthritis in both hips. I was put on low dose...
20mg is super high dose though....
I have had over 35 colonoscopies. At least once a year since 1980. There is NO COMPARISON to how easy and simple taking ducolax pills followed by gatorade miralax prep is. Miralax adds no taste. It...
In my case they went from single dose every 8 weeks to double dose every 6 weeks. It did the trick. I eventually ended up getting HIGH ANA count. (developed anti-bodies) At that point I was switched...
If their is a choice, go with humira first. Remicade Cost MUCH more. Is VERY time consuming and simply not convenient. First dose of Remicade will be at LEAST 4 hours just for the drip(infusion)....
Good question. I am down to 2.5 daily. Love to hear some more answers relative to how it related directly to the individual on such a low dose, and how things went after stopping. I am taking it for...
I love a good salad and vegetables but have found the opposite of your experience. Red meat never gives me an issue but fruit, vegetables or salad have me writhing in pain sometimes. I was under the...
Never had that issue on Remicade. No real side effects. Tired after because they would IV Benadryl just in case of allergic reaction....
Try this https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=366224 ...
I used https://promethease.com/ ...
Just a FWIW I find if I bunch some skin up between my thumb and finger on my front thigh and inject there, I feel almost nothing. If I don't bunch up enough and the needle goes to muscle is the only...
Keep in mind...if they are doing great on Humira, they may not be here. It works great for me....
New dr put me on 6MP. Within days high fever/chills. Very bad stomach pains I advised Dr. that I thought it was the 6MP. He said no it isn't stay on it. Got so bad I went to emergency room. They...
My test showed high neanderthal also. "An estimated 3.1% of your DNA is from Neanderthals" 100% European,Northern European 97.5% British & Irish 0.3% Scandinavian 1.7% Broadly Northern European 0.5%...
I did the 23andme test. I then used a 3rd party to break down the results. Low and behold it shows I too have allergy to 6MP. 6MP put me in the hospital for 5 days a few years ago. It could have...
Expect to be completely bored. First time will be more like a 4 hour drip. It is done VERY slowly to ensure you don't have too much in you if you have a reaction. It would benefit you to get used to...
CM I have been on the neupogen for a different issue. Autoimmune in nature. WBC's attack them selves leaving my count dangerously low. These injections cause the bone marrow to go into overdrive...
If I went to a dr. who relied on another dr.s scope I would be suspect. A good DR wants to see for himself. A good dr. will take into consideration as a starting point someone else's report....
FWIW, I was on twice weekly then as needed injections of neupogen for years. Still on an as needed basis determined by CBC. I think that would be considered Injection of G-CSF. It did absolutely...
I inject in thigh. I have absolutely no body fat in legs , so if I go directly in it hurts. If I gather and bunch up skin between fingers I absolutely no pain. Make sure it is room temperature and...
I have similar. It is call neutropenia. My dr.s from the Gastro, to Rheumatologist, to oncologist all agree it is from autoimmune disease rather than medicines. They also all agree that the meds make...
If WBC and neutrophils are low, you are MUCH better off using neupogen. Prednisone is the devils tic tacs. I have been using neupogen for about 10 years. We ck counts monthly. If it goes critical I...
I used similar amount of tramadol for 2 months. When I stopped I felt like CRAP. Almost as if I had the flu. Once I started back on it I felt fine. So there is most definitely a good possibility of...
I have to kids. I just use them....
Maybe it's less stressful at home....
I didn't know or have a say in the matter. I was at Memorial Sloanne Kettering Hospital. I had surgery for prostate cancer. It was given during surgery and daily IV. Less than a month later I was at...
I had mine completely tear of at elbow also. Mine was result of levaquin. Dr. did not advise me there was a black box warning about tendon and muscle damage and tears on this antibiotic. I am a body...
The only thing I am sure of...The colonoscopy prep sure "burns" itself out....
Yeah...that's great and all ....but the poor donor. Regrets...I've had a few... what I wanna know...Is his colitis better?...
UC is an autoimmune disease. I have it. I assume you do also. Auto immune troubles can manifest itself in other diseases also. One of them is autoimmune neutropenia...
Mahsa, Mahsa, Mahsa! ;-)...
Lmao! I did not. :smilewinkgrin:...
If you get a juicer make SURE it removes the fiber, or you may have some issues get worse....