Getting my first shot of Moderna Friday and getting scared!.one of the side effects of HUMIRA for me is hypertension. My GI told me to make sure wherever I go who is administrating that they have 2...
Has anyone with ulcerative colitis on HUMIRA had their Covid shots yet? I am interested if you had any issues with reactions or experienced anything out of the normal of the side effects we have...
I have read some of these remarks about HUMIRA and high blood pressure and my story is the same! Only higher readings. Today 165 over 95! I have been on this med for a year and it has increased...
Thank you! This is VERY helpful to me! The C-DIFF was HORRIBLE, the antibiotic I took for 10 days, and have been off it for 2 days...
I have been in a TERRIBLE flare the last 2 months. I also contracted C-DIFF and it’s been one bad ride to the bowels of hell! Yes pun intended. I am tapering from PREDNISONE right now, and doc said...
Yes, I have tons of Uceris. Unfortunately my colon was not on board with it on this attack. I am not on Plan F yet as I am on an HMO but we are getting to that time of year when we can switch. All...
He suggested Humira which has TERRIBLE reviews! My appointment with new doc is actually Sept 3, My old GI has the nerve to retire when I am going thru all of this. It was a phone conversation with...
Ok, I am going on about 6 weeks with this loathsome disease. I am presently on prednisone. We had to bump up to 30mg a day, almost had to start over after a sigmoidoscopy revealed severe Ulcers on...
Thanks,...
Yes! I will ask him. Is that part of your maintenance ?...
Thanks Tristan. I feel like I have been banished to hell when it happens and I have even wished for death if It continued too long. I have been through cancer, broken wrists, ankles, bad stuff but...
I certainly feel your pain! I took my first 4 pills of Prednisone . 3 yesterday. Woke up at 3AM Had a nice bloody mucus bath call. Got up at 6;30 this morning and took the first Prednisone. I was...
I cannot open the link...
Yes, i never paid attention to the coming signes to what my body was trying to tell me, so got blindsided big time,. the worse happened. listen carefully to the colon. its our boss. it was so bad I...
I have never taken it. Usually Uceris,, maintenance Melamine, and Imodium worked. Going in to 3rd week of constant going to bathroom. Dr sent me a note through Follow My Health said if my STOP IT...
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Not as much relief as I wanted yet. I am going to whine here just a little. Weak, depressed, tired, and so deflated. In spite of Useris, Pentasa, Canasa rectal enema, Imodium and barely eating, still...
I have not eaten much today, applesauce and crackers. The UCERIS corticosteroids are kicking in. My GI said to take A teaspoon of Imodium twice daily as well. Blood has tapered down today a lot. I...
What is 6MP? Been out of the loop for awhile. I have pancolitis. Just making my probiotic yogurt now, and going back to basics with food and my UC book. Vacation ruined😩...
Those in remission, DON’T get complacent, and comfortable like I did. It will ALWAYS be there lurking, ready to pounce when you least expect it. Yes I have had my share of discomfort and issues, with...
I thought I would share this link to a survey taken on a great co,itis site https://www.ihaveuc.com/survey-skin-problems-related-to-ulcerative-colitis/...
The Apriso is so much easier to swallow than the tablets I got in Mexico, but I suppose I can get used to it if I can save over $1000. annual. My doctor said to take 4 and 4 twice daily. Im trying to...
Thanks so much. I will get on it. In the meantime I took the Pentasa I bought in Mexico at 500 mg each tablet. My doctor called Sat and told me that 8 of them would almost be equivelent to the 7...
I thought Salix was sold by Valiant to a Japanese Co late in 2016. Would you happen to have a phone number? Should I call Medicare for a denial? They gave me a verbal denial over the phone. I was...
I took Lialda. It worked great but was lead to understand that Lialda patent end date is in 2022.... Good ole google, Ill go check it out!...
I take a 50 billion probiotic also sooo is mg to g kind of like megabytes to gig? My Apriso is a tottaly different equation... I was taking 7 a day 0.375 The pharmacist at Walmart says that 8 Pentasa...
The Pentasa is a tablet and says 500 mg for each pill........
HERE WE ARE IN 2017 still stuck with the same old chronic disease of UC Much as I have tried everything under the sun to maintain my flares through diet, I still need the meds for maintenance or I go...
Thanks I will chek it out and certainly call....
I don't think I meet the criteria for patient assistance They don't consider the one persons income but the household incomes makes me ineligible.......
thanks, I will ask my doctor...is the Octasa a mesalamine?...
Here I am 7 years into this ulcerative colitis condition and going slowly broke! Being on Medicare means you can't use any helpful discount cards for your UC meds. You get into the donut hole at your...
Naturalcurl I have reached a happy medium for now. After lots of research and experimental measures here is where I am. I did try the Balsalazide. Dosage was 750 mg 8 pills a day. By day 3 i started...
OOPS! apologize, did NOT see the word flare ( or missed it because I guess I was just adressing the almond flour) Sorry! when Im in a flare, I can barely get anything to stay in me for long, but...
I use cashew flour and it makes that muffin recipe in the SCD book delicious! I grind my own cahews that I buy at Trader Joes. Im not an almond flour fan as it seems tasteless and coarse to me. I...
I agree! Totally lip puckering sour! At first I thought it was me, but all the batches came out the same way. I put my prepared yogurt ( which as been refrigerated overnight) in the blender, add one...
you reach the gap quickly because the gap is based on the retail price of the drug which in my case is about $1700 retail Lialda (might be a little lower now, as ea year to the expiration of the...
what I meant is that doctor cannot lower the tier. it would be so great if he could...
Thanks Missjoy Canasa alone does not work for me, and the doctor seems unable to lower the tier on Lialda or Apriso...still working on it though!...
Thanks Old Hat Sounds like you know about these meds inside and out. I presently get my Apriso at Walmart here is San Diego for the amount mentioned. The patent for Apriso will be up in 2018. My GI...
Old Hat i have pan colitis and it was pretty bad. after a very bad flare 2 years ago Uceris was my savior, yet these corticosteroids did have some challenging side effects. weight gain, headaches,...
Thanks Verucaslt2.0 i am looking forward to my doc's response. The docs office used to give me samples of Apriso to help me with the dosage. They discontinued giving samples aMedicare United would...
I have always been denied whenever i give these pharmacies coupons but I can call Costco and ask them about Good RX/ Medicare I already have a message into my Dr. through Follow My Health about the...
thanks DB Is Asacol a mesalamine like Apriso and Lialda? Have you tried all 3 for maintenance? never tried balsalazide...I will look it up now...lI also take an awsome probiotic...
im in a very expensive prescription dilemma with medicare. i currently take Lialda or Apriso to control my colitis. Both work for me, and for the better part keep me out a flare. im going broke...
Thanks! I am taking Apriso, alternating with LIALDA. I don't know what sulfasalizine is so I will look it up. I don't do well with sulphate meds though. I will look up the curcumin also. Waiting to...
I have ulcerative colitis my joints hurt as well as having the colitis, and psoriasis. I bought this multi ingredient joint support product called MENDAMINE Anyone heard of it or tried it? It...
I should probably learn more about juicing. It seems like a lot of work though! I think I will stay away from kale for awhile. Hummmm maybe someday make some kale oven chips. I wonder if my colon...
No, no, no, not for me again! I'm trying to get healthy, and kale salad WAS on my make at home list. Si I gave it a shot! I cleaned very well, dried it, cut it in itty bitty pieces. I added apple...