I have one on Tuesday. Been feeling good since the beginning of the year. He just wanted to do one after I started healing from remicade to see the progress. Dreading tomorrow. The whole not eating...
If I recall correctly, you and I were in about the same situation late last year. What eventually got me better(in remission?) was around December my doc gave me a round of Flagyl because he thought...
I was going to mention prednisone but it looks like it doesn't work for you. I went on vacation over New Years for 5 nights. I was flaring beforehand so I hopped on 20mgs of pred a few days before so...
I wouldn't say I have got migraines but after my first few (4 or 5?) infusions, I would get bad headaches usually the next two or three days afterwards. Then they would go away. I don't think I got...
It's probably just the pred taper that is making symptoms come back. Most people have a certain amount of mgs that they are dependent on. For me, whenever I got below 15mgs, symptoms would come back....
Sounds like it is another problem. I'm just getting better within the past month after being sick to various degrees for the last year and a half. During that time I continued to lift but was never...
mine have mostly been solid and fully formed for the last month now looks like I'm doing pretty good compared to others. I'm assuming I'm very close to remission, maybe. A little over a month ago I...
Kulinary- maybe move up Remicade doses. I'm still just on 5mg/kg but I get infusions every 4 or 5 weeks now. Basically 4 weeks then next time in 5 weeks then next time in 4 weeks then next time in 5...
get ones with piperine or something else that makes it more bioavailable. Straight turmeric isn't going to do much for you unless you are taking a couple of grams of it a day. I use Life Extension...
not a big deal somewhat uncomfortable as you feel like you are going to go during it but that is just the air they are pumping in you to open up the colon....
I added remicade while on imuran. Basically imuran wasn't doing the trick on its own. I never had any noticeable side effects from imuran. My doctor talked about stopping imuran at some point but I...
Another one was at a friends wedding, pre diagnosis. I was an usher in the wedding. I had it together all day but after dinner, halfway thru the reception, I was heading to the bathroom and just...
Last one was in September. I had been doing somewhat ok for about 6 weeks, finally off prednisone and thought Imuran was working a bit. I woke up that morning and had loose stool and figured I was...
Sounds like you are on the right path Good luck to you and hopefully you dont have UC and just some bug that can be cleared up quickly....
Most doctors will dismiss diets. They are in the business of pushing their meds. Diets can work for some people. I have dabbled a bit with a few of them but nothing that I could really figure out if...
sorry to hear this yes, you have severe UC. Pancolitis means it affects your whole colon so it is the worst it can be. All colitis starts in the rectum and works its way upwards, 4 different types....
I also think there are a lot of doctors out there that don't quite know how to correctly handle UC either. We see posts on here frequently where it just doesn't seem like doctors were doing the right...
this seems so ridiculous to me they see inflammation and ulceration and tell you it's not that bad? It is bad, there isn't supposed to be inflammation and ulceration in your colon. That is exactly...
not sure why they would say it's a last ditch effort. I guess it is at the end of the line of medications they use to treat UC but if nothing else works than why not start it. It would help if you...
so start taking remicade? is it that difficult to ask your doctor for it? I'm seriously asking. If you are having symptoms, you aren't better and the other drugs aren't working, simple as that....
you could've just picked up a stomach bug that could be knocked out with a round of antibiotics too. Get some tests done, ask for a stool sample to test for pathogens, see if they can check your...
before I was diagnosed with UC, I didn't have any abdominal pains either. I think it might have taken them longer to diagnose me because I basically just had chronic diarrhea but not many of the...
you don't have UC? sounds like you could have the beginning of it or maybe numerous other things. I've read that clindamycin is one of the most suspected antibiotics that brings(maybe causes) UC out....
I thought my deductible was $1000. Had my first infusion of the year last week and they contacted me like 3 days before the infusion saying I had to pay $1500 before they could mail it out. Had to...
complications from UC? hmmm, I didn't really know UC and arthritis complications could cause death. maybe it was more the pneumonia?...
Breads Pastas Whey protein shakes Ensure drinks Lean meats/eggs Milk Cheeses basically any high calorie foods that aren't junk food I also have a smoothie every day with apple, avocado, blueberries,...
there doesn't seem to be an answer just don't try to be on it long or repeatedly. I was on it for the first 6 months of 2015. Every time I got below 15mgs, all symptoms would get way worse. Finally...
My story, it will get long. My noticeable symptoms, meaning I was seriously starting to think something had to be wrong, started in July of 2014 and just in the last couple of weeks am I starting to...
he wants a colonoscopy to check for pathogens? I would figure a simple stool sample would do the trick which is a lot easier than a colonoscopy. I'm not even sure if a colonoscopy can check for...
I came down with Chronic diarrhea about 4 or 5 months after I quit smoking marijuana. I had been a daily smoker for close to 20 years. I started seeing doctors after about a month of that diarrhea....
Maybe you could have picked up some sort of pathogen. When I started remicade(October 6) it was instantly effective. A month later(November 4th) I started flaring pretty badly again. Had my third...
back in November I did pick up some sort of pathogen or other sickness...possibly even food poisining? For a few weeks I thought maybe it was just my UC flaring up again after feeling pretty good...
Ah, so you can just do the enemas in the morning before the actual procedure? I definitely would prefer to not have to be sedated but I know I'm definitely a wimp! I guess I could start without and...
I've had a few. The night before I think they tell me not to eat or drink anything after midnight. The following morning I do the two enemas. Usually spaced out by like two hours. I've never been...
I had a really achey body last night which carried over to today. Kind of have a headache and had chills throughout the night too. Dont really remember those side effects before so thats...
I just started prednisone again yesterday so we will see. This is my third time on it in 2015. First time lasted 6 months and I didnt get too many side effects while on it but once I went off I got...
not sure if you will be able to return it if you already opened it. I have like a half a container of the sugar free orange and a full container of the smooth non flavored and I am going to start...
The sugar free orange has aspartame in it so I switched over to the smooth no flavored....
Haha, I've actually thought of taking a picture of the toilet after each of my BMs in a day. Then show them the whole catalog of about 15 different pictures from that day and maybe that would shock...
You should definitely call your GI and let him know that you had or are having a flare. It kind of seems weird to me that you haven't seen him in awhile and arent scheduled to see him before the...
And if you arent flaring then fruits/nuts can be tolerated more and probably wont cause a flare up. Your doc also might have suggested the colonoscopy because you have been basically symptom free...
A lot of people use VSL#3. You have to order it online and it is quite expensive but it is the best of the probiotics it seems. If you have been doing pretty well on Apriso alone then you can...
If you do add metamucil too, read the directions and start slow. Do not take it two hours before or after your medicine because it can interfere with it. Basically, your medicine/pills can become...
is the Apriso working for you? It sounds as if it is if you've only had diarrhea for a couple hours once since you've started taking it. Diet can definitely mess with your symptoms but is a little...
There is soluble fiber and insoluble fiber. Metamucil is soluble fiber. Insoluble fiber is things like fruit skins, nuts and some vegetable. Our body can't fully break down insoluble fiber which is...
Over thanksgiving I was supposed to go to a football game/all day drinking excursion with my brothers. As the time was nearing I was telling them I probably wouldn't be able to go. The day before the...
I take Claritan before my infusions. Benedryl would knock me out after I got home from my infusion and Id be worthless the rest of the day. Claritan doesnt do that. In regards to the threa topic, I...
sounds like the prednisone is working which it usually does but that isn't a long term medication. I would never say you are in remission while you are on prednisone either....
I'd suggest getting tested for any pathogens you could have picked up too and maybe seeing if a course of antibiotics should be tried. I'm pretty early on in my remicade experience but I responded...
I'd say not to worry about little day to day fluctuations like that. If you are feeling like you are getting better in the overall picture then you are. Some days you might have blood then not see it...