Hello Any advice on beer (or alcohol in general)? Are beers okay and if so, is there a certain type of beer I should lean more towards versus others?...
Hey guys. A few questions; How do y'all keep your bag from inflating? Its pretty annoying that after everytime I drain it the bag bulges out from air/gas build up even though there is only like 10%...
I have only had one consultation so far. I was getting ready to move forward with this surgeon(the original referral from my GI) when he brought up this whole Cleveland/Mayo thing. He had basically...
Interesting point. I am in Atlanta so its about 11 hours there. I presume this probably isn't the type of surgery that I could have and do follow ups closer to home eh? (or at least would be very...
So here is an interesting twist to this whole thing. I went in to see the surgeon for a pre-op physical and he wants me to hold off. He strongly advises that I go to the Cleveland Clinic in Cleveland...
Stress seems to be my biggest trigger. I find that food (save for obvious things like overly greasy, saucsy, spicy etc.) in general doesn't trigger me, but food compounded with stress will often get...
Are you still on pred or not? I can't tell. Because steroid dependency does make a massive difference here - is it the Entyvio or the pred which is controlling your symptoms at this point? Don't...
Sorry for the delayed response. Well, overall my UC isn't as bad as some people I've seen with it. I haven't had blood present in any BMs or the sort since my first true flare up back in...
Well, on tuesday I am going in to schedule surgery. I have been on Entyvio since January and apparently, despite showing some signs of improvement, my GI feels I have plateaued and has advised...
Hey y'all. Long time no talk. Just wanted to let everyone know that despite UC and everything that comes with it, I managed to push through and on Friday, officially graduated with my first degree...
I am needing some advice on sleep. It is getting ridiculous. It seems every 45 minutes to an hour I have to get up to use the bathroom and usually the pain is so bad I have to take my medication and...
In my experience, no food has ever made my flare/inflammation better-but plenty has made it worse. Excess dairy and sugar kills me. As others have said, I would advise keeping a food journal. Sadly...
I joined this forum when I was still in the hospital for my flare up. Because of the nature of what I am discussing and personal sensitivity, I wanted to use a screen name that has no connection to...
I'd say its more on what I drink rather than drinking itself. I avoid beers or anything with a high amount of sugar...
Thanks for the replies. In regards to medications, I've been on Apriso 1.375 mg (daily), Prednisone 80 mg (originally, tapered lower throughout, most of the time was between 60-80 mg), Dicyclomine 20...
Welp, it happened. Not only three months out and I am back in the hospital again :( I've been taking Humira bi-weekly and we've been trying to taper off Prednisone. From September to late October I...
dp7, I know the struggle. I was diagnosed and hospitalized in September and its been rough. It really took a toll on my grades. For about a month I was useless and ended up being behind. I have my...
Boxing. Even if it isn't sparring and just against a punching bag, I enjoy boxing. Gives me incentive to keep up with strength and cardio training and I find it is very de-stressing. I found that UC...
I can relate. I hate how ever since I got UC my plans usually carry a cavaet that I may have to cancel or modify plans. While spending an afternoon with friends for most people is as simple as going,...
The only beers I struggle with personally are ones with a lot of sugar (such as Mike's Hard Lemonade, Redds Apple Ale etc). I drink liquor and beer just like I used to before UC-but beers like...
I feel your pain. I was on 80mg of Pred for a while there-finally started tapering down. I had really bad moonface and pred acne (still have the acne :/). Mine is finally starting to go down-it took...
First off I have two important questions for you. A) What is your country of origin? B) Will you be taking Humira every week for the rest of your life, or will you taper off to an injection every two...
I take prednisone, apriso, and decyclamine, as well as various supplements and vitamins....
Oh cool! You should email me so we don't get this thread super off topic! Were you recently diagnosed with UC? I have had UC since I was a junior in high school and it has greatly affected my...
I take a men's multivitamin, iron, a probiotic, and fish oil. My only concern with taking a specific vitamin in a specific dose (such as 1200 mg of x, with the exception of iron), is overdoing it. I...
There aren't any symptoms I "ignore" but rather some that I evaluate to determine if I think its directly condition related or caused by other factors. For instance, the other day I had D pretty bad,...
Booyah Kashah! Sleep. Ughhh. The worst feeling in the world is that freaking 45 minute intercept. Sleep for 45 minutes, wake up to the bathroom, 45 minutes...bathroom...it seems just as as you fall...
First time I went back to class after my hospitalization was a disaster. I was soo tired and had to run to the bathroom multiple times it was just, ugh. It does feel great getting that fresh air,...
I have been tapering off an 80 mg a day, lowering it by 10 each week. Going and coming off I had and have wicked mood swings, irritable, appetite is ridiculous (crazy fake hungry) and very fatigued....
Congratz! I am glad you're doing better. And Dikid, any positivity can be shared here. I love me some salmon. Bed of white rice, some flax seed, salmon, Texas Pete Hot Sauce, boy howdy. :turn:...
That is awesome! I'm glad you were able to have a great night. Ha, I remember for my birthday I did that. Between the stress of UC and stress from school I needed a "fuck it" type of day. Sushi,...
I started Humira about a month or so ago. So far I am doing the one shot every two weeks. Not sure if it is working yet (though I haven't noticed any negative effects). $300 a shot. Crazy. Best of...
Howdy; I had a fun idea for a thread. Looking around, I see that all of us are in different stages and different places when it comes to our UC and related ailments. Some of us are just coming out of...
Are you employed/in school? If so, what do you do (type of work I mean)? I know it may seem counter intuitive, but I would try to get physical if you can. Even if its walking, yoga, nothing too over...
When I first started Prednisone (80 mg), my fatigue was terrible. I would just totally crash to the point to where I was in bed either asleep or being useless more than I was awake. After a while it...
Holy Hell, I agree with the others, he needs to get a second opinion from another GI if he can. I wish I could offer better advice, but I am still trying to get over my first flare up. I guess all I...
How long did it take for your to get to that point?...
Awkwardly enough, I don't really know what life was like "pre-UC", only "pre-flare up that sent me to the hospital". I guess I'm just trying to gauge where I am health wise. I am not where near what...
How do you describe, define, or really, tell when you are in remission? I kind of want with the baseline of a lack of a flare, or at least very minor flaring. Would you say thats an accurate...
Did it subside after a while? Any advice on how to minimize it?...
Started taking Pro-Biotics. Hopefully it should start to help soon. Thankfully there hasn't been any sharts or gas out of control but yeah, its super awkward thinking I have a massive BM coming just...
I go it alone. No one in my family has anything like this. Supposedly one of my great grandparents had some kind of colon issue, but they don't know specifics. So far it looks like I standout in my...
Man, you figure at this point your colon is just like a highway-smoothed over and with no resistance for the camera xD I have only had one and I absolutely hated the prep before hand. After 30 times...
Uh. I am not really sure how to describe it really. I hate being vague but I guess the best way to describe would be if you smelled it you wouldn't think of farting or passing gas, but more so...
Howdy, Going to give a heads up, this question is kind of weird. Even typing it is awkward but here it goes. So, good news to all. I have finally tapered my prednisone down to a reasonable level....
I haven't had experienced loss but have noticed my hair is thinning a bit. Not sure if its related or not. I'm kind of lucky though because even if I do lose my hair, I can just shave it and do a...
I have been on apriso for a few months now. I've noticed my hair has "thinned" a little bit, but then again I tend to keep my hair short so its hard to tell. I haven't noticed any hair falling out,...
I'm in the US. If 40-60 is the peak, why would my doctor assign me 80mg? Just odd if thats true. The trouble I am having right now is trying to distinguish what symptoms are from the UC and what are...
Regarding Apriso; I don't know. My doctor told me to take that amount. 4 tablets, 1.5 mg. That is just what he told me to do. Regards to Humira, I have only taken it twice. I did the first superdose...