I recently had phone conversation with my doctor about all my concerns and information that I posted here. It seems less urgent now that we had a phone conversation. He wants me to continue on...
[quote="CCinPA"]I don't understand why the doc told you to stop lialda except that he doesn't think it's doing much for you. Many people do well on max dose of mesalamine long term. It sounds as...
My last scope was a year ago was good no flare. He wants to start me on Stelara. I heard entyvio has less side effects not sure. I will call doc monday and ask why not 4 lialda with prednisone. I...
started in january eating multi grain whole wheat breads with tuna fish/ low sodium, grilled chicken salad, started noticing bloatness, discomfort, went on for 2 month bad smelly and painful gas, no...
i have been in remission for 5+ years till now...
Prednisone wires me out. Even worse when weening off. Night sweats and anxiety. I referred it as the boogie man showing up...
I use to stop lialda after a flare went into remission. Only to flare again. Now i just take 2 lialda a day as a maintenance....
Im in remission for 5 years. Take 2 lialda as maintenance. About 3 weeks ago started eating grilled chicken salad with purple leaves mixed.for lunch alternated with tuna or turkey on a multi grain...
I figured i would go to generic lialda. But I would like to transition over slowly. Thinking 1 lialda/ 1 generic for say 2 weeks. Before i switch over to generic. Couple years ago insurance wouldn’t...
Just went to renew lialda and to my extreme surprise. 360 lialda was $60 3 months ago Today $800. WTF. IM IN SHOCK i use lialda for maintenance 2 pills a day. Anyone else get sticker shock...
What would be a good direction to start the diet I already have a food diary and follow it I do I drink alcohol or the spicy food so pretty much boiled chicken or grilled chicken with nothing on it...
Thank you for the replies. I will continue to do research. I will try the diet approach. Although pretty strict diet already....
After having my colonoscopy this morning the doc said I am flaring on the sigmoid end up till the first bend which is my usual spot, symptoms have not been usual I have very little to no blood and...
Thats correct. Some days my skinny stool is covered in white. Some days rowasa stays in through the day till i have a bm and theres no sign of it. Some mornings it cleans me out with D. Sore throat....
I have been on generic lialda for about a week and a half and now have mucus and blood and abdominal discomfort I have always used lialda for the past 14 years so now I will be calling the doctor to...
(Been on 2 lialda since june). So at the end of the December I stopped taking my Claritin-D cold turkey within two days I had massive headaches and a tender belly which figured it was withdrawals....
Yes i get them...
Agree with nicecupoftea Is normal for me with having uc to see some blood, long as theres no pain , urgency go to the bathroom by far the worst. Which disrupts normal life...
Along with side effects from taking prednisone there are lots of withdrawals when weaning off and stopping prednisone use include severe headache anxiety joint and muscle aches stomach aches I have...
This past flare i had the most blood where i was almost admitted to the hospital. I would pass no stool. Just blood. I have been flarimg since last march...
I had the same problem getting off of prednisone I continue to taper off And did get better...
i am on 40 mg usually takes 3 to 4 weeks for me to see real healing i wait for 4 or 5 days with much less bleeding and urgency to go before taper i have been at 40 for week 2 2 lialda am 2 lialda pm...
so after my episode of heavy bleeding from taking urius i went back to my old meds i started 12 years ago 2 lialda 20 mg pred in am and 2 lialda 20mg pred at night i stopped hydro enimas after using...
uceris cauased more bloody bm's for me had to get off back on prednisone...
update sorry been busy with docs i found out i could just stop it,, going tomorrow to find out were i go from here...
uceris did not help made it worse straight out bleeding 5 to 7 times some of the most bleeding i ever had, and bad pains i have no mucus like i normally get with a flare just alot of blood and blood...
does anybody know if you have to be weened of uceris like predinsone i just pass blood lots of it no mucus 5 -7 times a day been on this med for 10 days started bleeding day 5 called doc fri sat...
I often stay home afraid to travel, thinking of having an accident somewhere is hell...
ive heard mmj works but i would not have a job...
sunflower seed for me...
I have also been flaring since march, started UCERIS last week no more mucus just blood like you said soaked, predinsone stopped working for me and side effect well... also on steriod enima...
hello ive been flaring since march, lialda predinsone rowassa enimas were working, every thing felt and looked normal, then in june had my colonoscopy after that, flares came back and i cannot get...
was taking lialda for 10 years during flares, then became ineffective, started asacol hd during flare 3 months ago, remission was fast, last week flare started, started asacol 2 tabs 3x day, day 2...
I never had side effects from lialda was on and off with it for 10 years, than became ineffective. now on asacol hd with side affects...
i wish 4 months abinormal...
almost 4 months flaring use to kick it in three weeks on 4 lialda rowasa enimas and 40 mg prednisone last flare was a year sgo kick 3 weeks on above meds this flare started march, did same meds with...
Hello i am new here, but not to uc. Diagnosed 2004 had two bad episodes since then. A couple of flares thet were knocked out in two to 3 weeks with not more thAn 40 mg of predinsone and wassa enimas...