Hi everyone, thanks for all the encouragement and advice. So I landed in Cusco after a few days in Lina and I fainted trying to get off the plain. So embarrassing! Luckily, the nice pilot took me...
I drank the tea to help with my adrenals from steroids. I think the tea might be gentler? Also make sure that there are not any other "additional" ingredients in your vitamins. I have gone on and on...
I LOVE both. I found the marshmallow root (in me) gave the largest results. For all the ladies - marshmallow root is one of the best things you can take if you get a UTI. I am not a doctor, but I...
Hi everyone, I realize this subject has been posted before but I could not find any posts newer than 4 years. In 2014, a research study linked traveling to high altitudes to UC flares. This study...
IamCurious - maltodextrin is another one. I forgot about that one. I actually was just searching today for the ingredients of VSL and I can't find it online? I am trying to figure out what exact...
1. a product called Adrenal Fatigue really helped me on the last taper. You can get it on Amazon. Try to figure out your crash time and take it then. For me, my adrenal glands started getting wonky...
Thanks for posting DBwithUC quincy - I didn't mean to sound overly dramatic with the "lethal" comment. I was just trying to help and prevent someone from making the same mistake I did with Align. I...
I struggled with fatigue for 2 years. I used to have to sleep 10 hours a day. I still worked out. I ate well. My blood work (once out of the flare) was like an 18 year old. But, nothing seemed to...
remicade, VSL, green tea extract. Hard to know which got me into remission but whenever I cut back on the VSL or green tea extract, I start to get D. I think the VSL controls my IBS and the green tea...
Hi everyone....it has been awhile since I posted. A quick warning to anyone who is sensitive to titanium dioxide. I have been on the hunt for a cheaper VSL replacement and I keep seeing this heinous...
No. But steroids is a sure way to get acne. What else are you on? I recently cut VSL out about a month ago after being on it for 2 years and now things are ugly. It is the only thing I changed. I am...
Personally, I always experienced the most fatigue when starting to go into remission. (or maybe I just noticed it more when I started to try to get vertical?) fatigue is one of those chicken/egg...
I always got heinous gas right before I made a major jump in healing. I remember thinking if I farted....I was on my way back. Have you tried cumin? It is supposed to help with gas. Never worked for...
Hi Everyone, I thought I would check in since I have not for months. I am doing really well now on remicade every 6-weeks, double doses. It was a long struggle to get here but I thought if anyone...
awwwwww you will be missed. Your responses were always very helpful to me. I am curious, how do they just switch diagnosis like that? I actually was originally told I had CD and then they switched it...
Thanks for the feedback. Does anyone know what tests you ask for to rule out diabetes? I don't think I have ever been tested for it. I am not exactly your typical diabetic candidate (5.4, 113 pounds,...
I have found a spoonful of cinnamon helps me with my sugar cravings. It helps regulate your insulin levels....
Hi Everyone, I have been doing pretty well lately UC related but I am kind of stumped as to why I can't seem to eat without falling into a sleep coma. I have to take a nap after every meal. It always...
This looks like it would be used more for endoscopy but it still seems better than the usual nastiness. http://www.wired.com/2016/05/soon-youll-swallow-origami-pills-get-magnetic-colonoscopies/...
I did once but I think it was when I got down to 10 or 15mg of pred not 20. I found uceris just as effective as the lower dose of pred but it was not an exceedingly bad flare. I would check in with...
How is your blood work? WBC? Have you tried a strong probiotic like VSL? I feel for you. Yeast infections anywhere in the body can make you feel like crap. Have you contacted your primary care? Mine...
I was diagnosed with UC after a year of constant antibiotic use from sinus infections. I now have had bronchitis for over a month now and I am staring at my antibiotic bottle wondering if it is time...
I wonder if this would be similar to how Grape Seed Extract works in your gut? Thanks for posting. I always appreciate your studies....
Once you have your sigmoidoscopy, your GI is going to slap a nice fancy title on your UC - mild, moderate, or severe and let you know where that is taking place in your colon. I usually associate...
yey remi! Also doing well on remicade but it took a bit longer to get there. Happy you had such a quick turnaround. Make sure to stay on schedule with your dosage. Sometimes I get cocky and try to...
I could open up my own herbal shop with all the half-used bottles of failed alternate treatments. I swear by green tea extract. It is the only thing that when I cut out....things get dicey. fish oil...
My GI was once playing the useless trivia game with me and he said according to some recent medical findings white rice was the number one food most easily tolerated by people with IBD....
When I had colonoscopies after being in the hospital, there was this woman whom I referred to as the "poop nazi." She would come by my room and check my bedpan to see if I passed the colonoscopy prep...
DiKid - we have to get you over this rectal meds fear :) I have a problem with electrolyte balances and staying hydrated too. My Primary insists that I drink gatorade which I personally think has way...
Sometimes I think the anemia is just as bad as the UC. And I wouldn't be surprised if your red blood cell count is all screwed up too. Carbs fuel our brains. Mess with serotonin levels and you are...
Hi Everyone, I have been thinking of switching doctors recently because I can't get my GI to return my calls unless I make multiple calls. It is frustrating. I have been trying to get him to discuss...
That sounds like mucus too me. But 1-2 bowel movements a day is awesome! (I am going to assume you were more before.) I am still at 4-6 after 9 months on remicade and I would definitely say it worked...
I have been watching this closely for the last two years. I asked my pediatrician recently about it and she knew nothing about the vaccine which tells me their still a few years out. My UC came on so...
Bacongirl - that is what I find irritating. Every GI seems to have the same attitude - your UC is better. Problem solved. Forget the other stuff. errrrr irritating....
Yes I remember a few of you got sepsis. But weren't you sick before getting sepsis? The weird thing is that I don't get viruses or anything despite being around kids that seem to be alway sick. I...
Hi Everyone, I have been getting double doses of remicade every 4 weeks for the last few months and have finally got this beast under control. But I feel awful. My WBC keeps going down every single...
I just had a flex sig a few weeks ago and I had no idea it could aggravate your colon? It didn't appear to make mine worse. I am actually going to go against the consensus on this one. I thought I...
That sounds like a job for your hydrocortisone enemas. My flares usually start off light like you mentioned and sometimes I am able to beat down the beast with hydrocortisone enemas. I guess it all...
I know this is probably a dumb question but - did they test his stools? Like OldMike already mentioned, it seems like ruling out things like pin worms would be imperative. Kids in daycare get them...
Immodium makes me worse. This does happen to a lot of people so I would be careful. My GI is adamantly against taking it (I didn't listen to him one time and ended up in one of the worse flares of my...
Well that is really interesting. The only alcohol I can drink is gin and tonics and vodka and tonics. Anything else spells trouble. I always though it was the lower sugar in gin and vodka but I am...
now a days they turn away people for the smallest issues. One of my friends who has O (don't they need universal donors?) got turned away recently because she had acupuncture within 48 hours. kind of...
So sorry to hear you are back on pred. I hope you manage to stay out of the hospital. I remember I was on remicade in the hospital during a really bad flare. Those surgeons had their knives...
I have IC so my urologist always tells me - no cranberry! errrrrr But because I was desperate and kind of didn't care anymore... I did take some cranberry pills this morning. I always get e-coli...
Ya, same here. I don't respond to it anymore either. Can you take the pred enemas? I never responded to IV or oral pred but the enemas do knock a flare down a few pegs. Not miraculous. But it helps....
I listened to the NPR segment on this too. It was very interesting. There is also a documentary on netflix about Neanderthals. A while ago, I read an interesting book about Neanderthals dying out...
that is strange that it came on so suddenly? I would be careful with uceris with a full blown flare like yours. I just question whether it is powerful enough to knock it down. I am never one to...
it seems a lot of people have stories where things were all warm and fuzzy while on the antibiotics but after stopping...not so fun. That is what I am afraid of. The ironic thing is that macrobid...
me too! I am convinced that in my many people the gut bacteria holds the key. (which is why I spend an inordinate amount of money on probiotics) continuing to tilt at windmills.......
juststud - you just made me think that maybe in some people antibiotics lower their immune system? If your immune system is on overdrive then maybe that is why antibiotics can temporarily reduce...