I agree with Quincy, that sounds like gas to me. If it doesn't go away or it gets worse call your GI, but I wouldn't worry too much about it right now....
This popped up in my news feed this morning and thought I would share here. https://www.nature.com/articles/s41586-024-07501-1 A lot of what is in here are things I have read posted over the years,...
BG- good idea to ask about! I will ask the derm when I go back in August about a resurfacing laser treatment. CC- So far all research I have done points to Entyvio as well. I see my GI in July and...
Thanks OH! The issue I am having is a precursor to squamous cell carcinoma which Imuran is known to cause. I was surprised that my dermatologist was so alarmed by this, but he was. Thankfully I have...
I was talking to my dermatologist today after having to go in and have another actinic keratosis spot zapped off my face and he asked me if I would consider a different med for my UC. He is concerned...
Glad it is gone, hope you feel better quickly!...
What about a steroid suppository? Perhaps that mixed with the Salofalk enema would do the trick. Those days when my boys were younger and I was flaring were so hard. I ended up having to add Imuran...
I hope everything went well and you start feeling better ASAP!...
I also failed generic lialda but was doing fine on brand name. There is a difference in the coating on the generic and it didn't work with my body at all. I am now on Colazal and Imuran which has...
Definitely make sure your gyn checks you out. I took a low dose progesterone only pill after trying the cream and having no luck with it. It made a huge difference for me and after two years I was...
I'm sorry to hear the increase to 30 didn't improve things for you. Do you think that Zeposia is worth trying or do you not want to rock the boat at this point?...
That’s fantastic!...
Out of curiosity, do they give you Benadryl as a premed? Benadryl gives me horrible dreams....
Glad the scope went well. I agree with Quincy that it could have been the artificial sweeteners that caused issues. Hope the biopsies are all ok....
I hope the X-Rays give you a sense of what is happening with your arms/hands. My nails are always brittle when I am flaring. I find taking collagen helps with them but really healing the gut is what...
BG- I am so sorry for your losses and to hear about everything else going on. Stress has always caused me to flare up, no wonder you are feeling so crummy. I hope your partner's surgery went well and...
That's great news!...
Congratulations, this is fantastic news! I hope the meds continue to work and you keep getting better!...
Yup, Aza is Imuran! I get bloodwork every 3 months to make sure liver function is good....
I have been taking Aza since January of 2019. Before starting it I had a blood test, TPMT, to see if my body would metabolize thiopurines well or not as not everyone does. It is very slow to work, it...
I would get a second opinion if you can find other doctors in your area....
Thanks all. The orange goop is gone, haven't seen it since Thursday and everything feels back to normal now. OldHat, I was able to watch my first scope, but I started talking too much and they upped...
Thanks all! I am super happy and relieved. The first 6 years were rough trying to find something that worked for me. Quincy- I am a firm believer in the rectal meds. I even tried switching to just...
Wanted to stop by and thank everyone for 10 years of amazing support and advice. I just had my 10 year scope (6 months late) on Monday with a new GI My last doctor had to retire early due to health...
BG- so sorry to hear you still feel crummy even though your colon looks good. Hang in there and hopefully things will settle down into a real remission again soon....
College life certainly makes eating well a challenge, I see my students struggle with this on a regular basis. I have found that schools don't have the best options for dietary restrictions so this...
I know, right! I would love 1 pill a day, I take 9 colazal pills plus 2 Aza every day....
I just found out my cousin's son has Crohn's. My grandmother also had it in her small intestine and had severe diverticular disease as well. On the other side of my family my grandfather had...
I went GF in 2013 and kept that diet going except once in 2016 when I was on vacation and ate whatever. I ended up feeling so miserable from that I haven't eaten gluten since. So yes, I do think...
Just saw this in my newsfeed. As usual, quite an expensive medication! https://www.reuters.com/business/healthcare-pharmaceuticals/us-fda-approves-pfizers-inflammatory-bowel-disease-drug-2023-10-13/ ...
Always good to hear something good!...
I found out one of my colleagues who has MS is a participant in this study. She will keep me updated and I will share anything she learns....
This is fascinating, thanks for sharing!...
That's great news! I hope it keeps working for you, it was a game changer for me....
I hope the colazal works for you without any bad side effects....
I wouldn't do well with that taper either, but everyone is different. If you don't see improvement please reach out to your doctor and let them know before the flare up worsens. I also don't think...
I don't train competitively but I do work out pretty much every day. I also walk to work, so I am getting between 60-90 minutes of exercise daily. Only 35-45 minutes is actually working out...
The air quality near me has been ok for a while but we have had 2 separate weeks when it has been terrible. I have asthma as does my eldest child and we have both had issues with our asthma during...
All those consent forms are terrifying and it is normal to feel uneasy when they give them to you to read and sign. That being said, I think having the full scope is the way to go at this stage in...
Glad things are feeling a bit better. I would reach out to your doctor and let them know what symptoms you are experiencing off of pred. Keep some detailed records so you can let them know. If I was...
I would not personally want to stay in 20 mg of pred for an extended period of time but pred makes it impossible for me to sleep! When is your trip? I think you could slow your taper down, are you...
I am always afraid of using the “r” word, but I have been symptom free since late 2019 on colazal and Imuran. I generally have 1 BM a day, sometimes 2 and sometimes none, typically formed and normal...
So sorry you are going through this and hope things get resolved ASAP. What I will never understand is why they delay access to treatment. This increases the likelihood that we will need additional...
Oh that just stinks, so sorry you are struggling with this. Definitely reach out to your endo and don't feel bad if you need to take some "brain meds" as we call them in my house. There is no shame...
Glad the score was clear and hope your remission continues!...
Pred is hard on the body and the mind but it does really help. Try and stick with the taper, often a big chunk of the weight comes off as you start to taper since it is excess water weight. I would...
My grandmother who had Crohn's had an ostomy from diverticular disease. She lost a couple of feet of her small bowel to CD and more than half of her colon to DD. Definitely something to watch out for....
Glad you are almost off of pred. I am sure that is making your anxiety worse. I agree with serenity that perhaps some of your pain is caused by gas. Generally when I am flaring my gas pains are...
Today is much better than it has been where I am, but it still smells like campfire outside. My kids have been in school with closed windows and air filters going all week and both my oldest and I...
I am sorry, Joanna. Is there a reason they went with Rinvoq over entyvio or xeljanz? I would certainly ask the nurse on Wednesday....