My systems started within three weeks of discontinuing HuMira for Ulcerative Colitis. The Rheumatologist prescribed it again but the pre authorization was denied. Anyone else on Humira?I'm so lost...
My new rheumatologist thought lupus or ra. my ana was positive homogenous answer 1:1280. crp 6.5 , beta 2 74, anti cardiilipon iga 15, igm 49 both high, antiscleroderma 70 8.0 high and all lupus...
The GI doctor says that he also thinks I don't have UC. He suspects I had diverticular colitis. The biopsies are totally normal. We are dropping the canasa and the humira and reducing the 6 mp to...
Says no microscopic abnormalities. That all I know until next week....
I thought that UC had permanent damage to the colon? No abnormalities seems like it is now normal not remission. I'll figure out more but I'd love to dump thsee meds....
It is good yes. I hope I can cut more. I'd really love to not have UC. It was all so strange. I had a colon resection because of diverticulosis with no sign of UC in biopsies to having chronic...
My first flare I needed tramadol. It was horrible. Since then I've not been bad....
Just had my first followup colonoscopy since I was diagnosed in April 2015. No microscopic abnormalities. Definitely in remission but do I have UC?? In 2015 active chronic colitis? Could it have been...
If this cleared up on a low residue diet it could be diverticulitis.. I hope it not UC and the scope gives you answers....
I have been getting more miserable all week. Back pain, gut cramps, heavy legs, top of foot cramps,fatique headache, and hand pain etc. Last week I twisted the Humira shot and got a bad black and...
Flowergirl, I also developed UC after colon resection. I had bowel issues since my 20s but diverticulitis. The biopsies showed no UC in the resectioned piece. Three months later I had a terrible...
annamarie772 its the left over suppository probably. I have the same thing often when using canasa. sort of gray white coating....
Sorry I can't see your profile. You can add info to a post however. Do you have a diagnosis of uc? What are the foam and pills? If you are taking steroids, I won't change the dosage without the...
Humira has been great for me. I do take weekly injections. Bi weekly was not enough. Everyone is different and it does take time to see if the Humira is working. I think I started the weekly after...
Thanks for the reply....
Sorry but a really dumb question. I took the enema and held it overnight. There was no liquid in the morning. It absorbs?...
I guess I should call the office. I have not. Since I've been on weekly humira it seems like I have a few bad days just before and after my shot. The blood really upset me. I have bad sinus infection...
I have been having little issues for awhile. I take humira weekly. Started humira on 8-1 biweekly and 10-1 weekly. Started the weekly because it just wasn't lasting bi weekly. Even weekly I started...
Have you had your thyroid levels checked? There are other conditions that could be the cause. See you general doctor maybe?...
poppie, it is definitely alittle of everything. Formed, and some mucus on and off. No blood. Diarrhea is also common but not always. Not consistent at all really. I don't seem to be able to gain...
GI thinks the rectum is thicken enough that it is not opening properly. He seems to think it will get better as I continue to heal. Funny I dont have alot of feeling in the rectum either. Just trying...
I think a low fiber diet for a week might be worth a try as well. Easier on the gut. Hope you feel better soon....
I was on 6mp and the humira bi weekly, now weekly. The results have been good. No side effects so far. UB Tough how is the oxygen therapy going.....
I don't really have constipation like I've had before. The stools are not large or dry. Its not like I should poop but can't. There isn't really pressure. There is no movement. It is a very different...
Since going on weekly Humira and Canasa nightly I feel much better. I actually feel like the wound in my gut is healed. I haven't seen blood in awhile. Some mucus. Colonoscopy for this spring to re...
45 too old? I've had fibroids, polyps and cysts for sometime. I've had the fibroids and polyps removed and I'm alot older than that. The fibroids can be removed usually with a minor surgery D & C or...
You need to see your regular GI. However, I went from no UC at all to severe UC. I had a resection for diverticulitis and I saw the slides then and three months later. Three months later I had severe...
After alot of trail and error, we added humira to my meds. Still have 6mp and canasa as well but I really feel great. Humira is now once a week and it was amazing the difference. I felt like I was...
I had a colon resection for diverticulitis in December. Biopsies showed no evidence of IBD. I actually saw the slide from the biopies. By April 1st I had a colonoscopy due to bleeding, diarrhea,...
In Michigan Blue Cross always offered insurance to preexisting. Better than ACA with huge deductibles. Now I have a medicare plus plan that not one Doctor in Tucson Az accepts. It means ER for any...
I started weekly Humira this week I could not reach remission on bi weekly. It was like it didn't last long enough. By week two I was back to urgencies, diarrhea and pain. I'll see how this works....
Sorry you are here but it is a resource for information. I'd suggest just looking at many of the other postings and then ask if you have questions. At first I found it helpful to google UC and read...
It took about six weeks for me. Still have recurrence when it's close to my shot date but so much better....
I have Canasa but I've felt find. Guess I'll try going back on it and see if it helps. Thank you...
I have a cousin who's wife had surgery, j pouch. She is thrilled. It does cure UC. I understand that life can actually be fairly normal afterwards. Give this your best. Try the meds available, be...
I have been in remission for about six weeks. Now I'm trying to figure out what's next. I seem to have constant constipation until I take 1/2 dose of laxative about every other day. I didn't once for...
I've taken ambien long term with no bad effects. Its effective for me with no after effects or morning sleepiness. Id look up and research long term effects of any drug you take. I didnt find pain...
I am now perfectly normal. My stool is formed and I only go two or three times in morning in order to complete. I don't hurt and the urgency is very limited and controllable. First time since I was...
First really normal BM today! Funny the things we celebrate now. Humira is doing it's job and I'm very happy about it. It took eight weeks but that's not bad. I see you live in Oregon. I hope to see...
I've decided there is nothing I won't try. But I'm not young anymore either. I'll be on medicare next month. I've been hit with UC and now maybe MS after 60. I just want to live to be 100 so I guess...
I'm scheduled for another MRI. The neurologist thinks I may have MS. That would explain alot. My daughter has it so I'm not too anxious but really wondering if anyone else here has MS?. How do you...
Doc says just humira and 6mp for the first year. I'll taper off the endacort completely. The Lialda was apparently causing some diarrhea. It's been much better since stopping it. I still not "normal"...
Sounds like it could be diverticulitis as well. Try soft diet until the the colonoscopy. Is this your first one? If you run a fever get to a doctor for antibiotics. Hope its a curable and not UC!...
Apparently the mucus and diarrhea may have been caused by Lialda. The GI stopped the Lialda and tapered the budesonide to 3mg. I'm hoping that is the solution. So far so good. Feeling better with...
Its only been six weeks. I just took my shot Sunday. I see the GI Thursday. Just disappointing:( I still feel really good. Thanks...
During my first and worse flare my blood work was all fine except the WBC was very high. I don't put alot of stock in labs sometimes. You know how you fell....
Weird, the last couple of days I've had urgency, some mucus going 6 plus times a day. I'm not in pain except I'm going back on Canasa suppositories since I'm a little sore in the rectum. I see the GI...
I blood test can not diagnosis UC. Not sure what she is testing ANA maybe? Your symptoms sound painful. It could be either IBS or IBD. Have you modified your diet as well? Good resources on line and...
I'm really sorry to hear this is going on. Is anyone covering for your family doc? Give humira a chance to help the UC. When I was in a bad flare it also effected my vagina. No fistula but i think...