White rice, sweet potato and chicken breast is a pretty standard meal one could try. Tried that for a few weeks but symptoms did not change at all....
Hi Poppy Different medications can play havoc with your IBD. After trying a few different medications I have found that Amitriptyline helps me although I still am not 100% mentally or physically....
Hi guys I started Humira last Monday and had a pretty awful day today. Now I'm not expecting results just yet but would like to see how it's worked for others. In your personal experience: 1. How...
Hi there, I have just started Humira. The injections are not too painful and I had the pens (x4) for my loading dose. I have not had any side effects as of yet but please make sure to do your...
I can totally relate to the bleach and mesalazine combo! Damnnnnn it stained the sides of the loo for days. My pee is currently neon yellow... thats a benefit of azathioprine if ever there were a...
Thank you for the replies! ks1905 - Humira will be my first biological....
Ah thank you very much! Excited but also nervous!...
Hi guys I am due to start Humira in the coming weeks. Delivery has been confirmed for Monday 16th. My current status is said to be mild inflammation although symptoms still include blood, urgency,...
As above you have to try it as everyone is different! There is also a double strength version called VSL#3DS which could help....
A quick update post. After discussing with my GI I will be starting Adalimumab (Brand name Humira) within the next four weeks. I had a chest x-ray and the necessary blood checks before I can start. I...
Thanks Rogo66. I'm going to go for the Remade but I will keep this in mind if needed. Had an awful evening with pain and urgency. Haven't left the toilet really. Weird! Hope to get this sorted....
Does anyone have a positive experience with the SCD? How long was it until you saw results? Thanks!...
This very well could play a part Bad Gut - Thank you for your insight! My problem as of now is urgent stool then after 2 or 3 BMs it becomes just residual stool with mucus/blood then and a colourless...
Have you ever thought about having a second opinion? By another IBD professional? Your anxiety could very well be due to your current GI's approach of hospitalizing you immediately. Alternatively...
I am from the UK and was given this. I understand your situation as there is no national health service in wider Europe. Does your said probiotic help you?...
Tapering 5mg at a time can often cause problems. Many having returning symptoms at 20mg or round about. Try going 2.5mg so 20, 17.5, 15 and so on. If this fails go by 1mg per week. Be persistent and...
There's always the option of increasing the Imuran to say 75mg for example. Of course you would need to speak to a professional regarding this. Topical treatment may be beneficial for the immediate...
As far as probiotics I have only ever tried VSL #3 which caused a lot more mucus than usual. Would you say they've been beneficial to you?...
Uniform Charlie, Many thanks for taking the time to reply. It may be a good idea for me to stop ruling out diet and thinking it has nothing to do with it. I have tried small dietary changes but...
Hi Quincy, Like notsosicklygirl I do not eat. I wake up around 6am and bath (this calms my stomach cramps) then I'm out the door by 7am. Then it suddenly feels that I need to go and all that...
Hey Guys I suffer from a lot of anxiety due to this illness. Particularly in the morning before going to the toilet as I do rectal meds and usually I feel unable to go until at least after I have...
Sorry that you're feeling like this. It can feel like a nightmare at times. I'm not sure if you'd be happy to take a mild anti-depressant? Amitriptyline really helped me come out of what felt like a...
I'm glad you've found something that works for you. I will push for this as I am fed up of being trialled on different medications with no success. Thank you very much!...
Charlotte91 - Many thanks for the information you have provided. I will mention this when at my next appointment. How many infusions did you have before things started easing up? What were your...
Thank you for all of your replies! I can confirm the Azathioprine is at a therapeutic level. I have also tried different combinations but have never been able to find a consistency of symptoms when...
Hi Guys, I would just like to share my situation and get some advice/support. I have been flaring three years straight (Diagnosed Sept 2012), the only time I have felt in control is when I am on a...
For me, VSL #3 caused huge increase in mucus produced per toilet trip. Saying that, I was flaring hard at the time. Best of luck, hope it works for you!...
Thank you for the replies notsosicklygirl & Rn1987! My UC is currently flaring, with mucous and small amount of blood. I am going to ask for an upgrade to the 4g enemas tomorrow. This sounds like a...
Hi guys, http://www.healingwell.com/community/default.aspx?f=9&m=3307913&g=3307913#m3307913 Could you read my above post over on the healingwell anxiety board and offer an opinion! Thanks a bunch!!...
Hi there, I'm posting over from /ulcerativecolitis. My problem is I started on Citralopram 20mg around June and whilst it helped with the UC related agoraphobia and anxiety it was contributing to...
Hey All, Just an update post. I had my Flexible Sigmoidoscopy on the 3rd Nov and the findings were as followed: "Left sided, Mild Ulcerative Colitis affecting splenic flexure and descending colon....
Update - 1st Oct I saw my GI on Thursday, 25th Sept. It turns out it was transition appointment from pediatrics (childrens) to adult services at Kings College Hospital London - NHS. So after meeting...
I suffered terrible anxiety for 6 months, I simply could not leave the house. I managed to get CBT which helped a lot but it was still very tricky to get to the appointments. I know you've said...
I agree and think I will try a Gluten Free Diet, thank you for the suggestion kazbern! As for the psyllium, I will stick at one scoop a day and see how my body tolerates it. Thanks again! C...
Hi kazbern, thank you for the reply! I forgot to mention that a couple of days ago I used Whole Psyllium Husks (one scoop, which is included) and after one day of no changes went up to two scoops....
Update 19th Sept I've been on Prednisolone Foam Enemas nightly for over two weeks & have trace amount of blood during my BM occasionally. The only problem STILL is the water! Has anyone experienced...
Congratulations! Some never reach the full remission of no symptoms that you describe. Be sure to keep a close eye on your maintenance medications and check stools for any changes. All the best in...
Update 3rd Sept It's now 11:30AM here and I have been fairly active since 7:30 this morning. I've been out and done some chores around the house. Been off the loperamide 3 days and have not noticed...
Update: I have been off the Imodium/Loperamide for two days and have not noticed a change in symptoms. Still multiple visits to the toilet and after the water begins to slow down my stomach feels...
I currently have one bowel movement per day, although this could be classed as 5 or 6 because I have to keep revisiting the toilet. I reckon my transit time is faster than it should be, I have the...
I've only been taking mesalazine suppositories the past few days and symptoms have already improved visibly. If I remember correctly it was the last 10cm of the rectum. I started at 40mg Pred but...
Hi guys, I'm currently flaring, although since my last post I am now taking a mesalazine suppository nightly and have upped my oral mesalazine intake. This seems to have got rid of the blood (in...
Thank you garylouisville & iPoop for the informative replies! Prednisolone has helped as I started at 40mg but as I get towards 15mg I start to notice a dramatic increase in symptoms and so currently...
Thanks Kazbern, Posted over in the Ulcerative Forum. Which rectal Mesalamine would you recommend?...
Hi there, I recently posted over in the IBS forum: http://www.healingwell.com/community/default.aspx?f=26&m=3160383 My symptoms include blood, mucus and diarrhea which seem to be getting worse as I'm...
Thanks for the replies Rickrick & Bettsann. Could you elaborate on alternative medicines please? I believe I am suffering from tenemus (rectal inflammation caused by proctitis) but do not understand...
Hey there, I am new to the forum... Well I've just signed up after a long time of reading other sufferer's stories and thought that I should seek advice tailored to exactly how I'm feeling! Hope you...