Katerina FWIW Entyvio has been a life changer for me. It was not my first biologic. I was on Simponi first, then tried 6mp but had a bad reaction to it. I have asthma and two small kids and I’ve had...
MK11 do you not take premeds? They give me Acetaminophen and Benadryl every time before my dose. I should probably know why but I guess I assumed the Benedaryl was to prevent an allergic reaction but...
I’ve been on Entyvio for a couple of years now. I recently had a physical and my doctor ordered routine blood tests and decided to check my vaccine immunity levels. Apparently I have no immunity at...
Unfortunately I picked up C-Diff in the hospital and I've been having awful diarrhea. This is my first experience with losing weight suddenly because of it. I definitely feel weak and I can see the...
They did a couple rounds of flagyl in the hospital but stopped because of the diarrhea since they decided it was overkill given my recent "colonization". They decided vanco was enough so I'm on that...
I caught C-diff during my hospitalization last week. I was told it was "early colonization" and a few doctors said they wouldn't even have treated me for it but I was already in the hospital so the...
I left the hospital yesterday. I was feeling great yesterday and the couple hours ride home was the easiest it's ever been with the least amount of stops needed. Then out of nowhere I ended up having...
I really hate all the doctors saying I'm an unusual case. That just seems to mean they can't figure out how to treat me so they're going to recommend surgery. As I expected their CMV tests were...
I did and MRI. It just shows the inflammation. I'm very annoyed that they started Entyvio first. Even my GI doctor said Remicade is best for acute situations. I'm very upset that I could have messed...
I've had 3 colonoscopies and 2 upper endoscopies. My last was both upper and lower in the fall and I was told the UC was mild. I've probably had at least 4 C-diff tests in the last few weeks. Plus...
My new GI doctor had me try 6mp which led to a really bad throat infection I needed antibiotics for. The antibiotics really messed me up and led to diarrhea and bleeding. I spent the week after...
Sorry to be asking so many questions but I have no idea what to do. The week before last my abdominal pain got a lot worse and was accompanied by very little stool, mostly blood or bloody mucus. Then...
I did have narcotics in the hospital and I know they can be constipatng so I tried to use them sparingly. The weird thing is I had this symptom before I went in and I wasn't using any pain meds....
Finally out of the hospital after a week, yea! But really bummed that I think it was a waste of time. The doctors admitted they had no idea what to do for me and I still don't know if my problems are...
I came in on Sunday to the ER because my abdominal pain was a lot worse, my output is only blood or bloody mucus and I keep spiking high fevers. Unfortunately nothing has changed. I'm so used to the...
I'm in the hospital and started IV Solu-medrol yesterday. They have been testing my glucose throughout the day because of the potential for high blood sugars while on steroids. My concern is that...
I've been in the hospital since Sunday for pain, bloody stool and fevers. The GI dr I was assigned said over and over again that I should get off the prednisone. I've been on it for a month and it...
I doubled the probiotic during and after the antibiotics but it's not helping....
I'm really frustrated. I emailed my GI's office and called when I didn't receive any follow up. The receptionist was super nice and concerned about the level of pain I was in but hours later I only...
At the end of Sept. I started 6mp and quickly had a raging sore throat which only went away after taking antibiotics. GI wanted m to try 6mp again so I did after I finished the antibiotics and my...
Today I will finally finish my 7 day course of 2x/day antibiotics. I'm feeling so much worse, I live in the bathroom now, and my abdominal pain is so much worse. Assuming this is from the...
The live virus was given in the nasal mist but it turned out to be ineffective so I believe the recommendation is not to give it anymore. The regular flu shot is the inactive virus so presumably it...
I've been on Simponi for about a year and it hasn't done anything. GI decided to add in 6mp before taking me off of Simponi. Within days of taking 6mp I had bumps in my throat. By about 10 days I had...
I started 6mp about 10 days ago. Immediately I had weird muscle stiffness with tingling but for the most part that is gone. Right after starting it I've had sores on my tongue which I've never had...
For the last two nights I've taken my initial dose of 6MP. I did the initial TMPT test before starting and will do another blood test after 2 weeks. All of a sudden I'm having pain in my calf and my...
Apparently I only have inflammation in my sigmoid colon and my GI thinks it's out of proportion to my symptoms, abdominal pain, discomfort and cramping. She thinks maybe I'm just more sensitive to...
My GI called to give me the choice of changing to 6 MP or Entevio. Any thoughts? I can't say I'd be happy about getting infused, how long is each session? How often do you go? She didn't recommend...
Thanks so much!! If the UC were under control I wouldn't have inflammation, right? I don't think the Simponi has ever helped and I really want to try something else....
Nothing was stated about rectum...
I have no idea what these test results from my latest colonoscopy actually mean. I would greatly appreciate a translation I can understand. Thank you!! Histologic sections of the sigmoid colon biopsy...
I woke up from anesthesia yesterday in a lot of pain, muscle pain all over. The anesthesiologist said it was probably a side effect of the succinylcholine for the endescopy. I had to have general...
I just did the first dose about 2 hrs ago and still haven't needed to go to the bathroom. This is my first time with Prepopik. With my other preps there were much faster results. Anyone have slower...
Cramping is worse, all day not just after using them, and more diarrhea....
My doctor prescribed mesalamine enemas and I feel like they have made my symptoms worse, more cramping and more diarrhea. Should symptoms get worse before getting better? Or does this mean they don't...
Unfortunately the hydrocort enema didn't help. Blood and mucus were fixed when I started the medications but urgency and frequency haven't been fully fixed. I'd say it's averaging around 3-6x a day...
Thank you! Any advice on medication to talk about with the doctor at my follow up?...
My new GI ordered an MRI with contrast and I just got the results but I have no idea what it means. I tried looking up the terms but didn't get anywhere. Can someone translate it into English for me?...
I woke up this morning in a lot of pain on my left side. My GI just fit me in and it really hurt when he pressed on my lower left quadrant but it was tender all over my abdomen to touch. He's sending...
Can anyone tell me more about it? I have a relative that did one and it got stuck and required hospitalization a few years ago so the idea of doing this makes me nervous. Plus everytime I've done the...
The tumor was complete speculation on his part I think when he was trying to figure out what else could be going on and what other tests he could order....
I have constant abdominal pain that can go from about a 4-8 in pain. BMs are between 4-6/day, never with blood, previously with mucus but that's gone now....
Finally met with my GI about the results of my colonoscopy and endescopy and he said that I have no inflammation. It's way better than when I had a colonoscopy in March and was first diagnosed with...
Thanks! My GI is anti-probiotics, is he wrong? Should I try one?...
I'm so sorry you are going through this!! It sucks and it gets me down too. I think the only thing you can do is to focus on what you can control and try not to let yourself worr about what is out of...
At least your usual normal? Not normal for a person w/o UC? Mine was Mon. but I'm still feeling awful. Abdomen hurts more than usual and going to the bathroom more than the too many times I was going...
I have thanks! Unfortunately I can't get in there until Feb. and it's hours away....
Thank you! I really I hope I don't have to do another one for years but it's good to know there are better options!...
Thanks Dikid! iPoop I don't have GERD which seems strange given what I found when googling. I do have my follow up next month...but I don't have a lot of confidence in my GI, most likely he won't...
Thanks so much everyone! That was so stressful! Luckily even though I tossed the first half of the prep immediately it still somehow stayed in my system. I made sure to drink the second part a lot...
I had a colonoscopy and endescopy. Saw the GI for a few minutes afterwards but he really didn't say anything but he gave me a print out of the results. Everything looked normal from the colonoscopy...