My GI has me do a Cbc and the white cell checks, every 4 weeks, but I also take 6mp with my entyvio...
I took uceris from January until May and didn't have problems, and both GI docs I saw at the time approved it!...
Hey there! Sorry to hear this, I'm on entyvio as well but haven't had these side effects. Have you seen your primary care or gi regarding these? Could be an infection or something else unrelated....
I've been on uceris for a long time now, and I originally bad problems with insomnia. For me, I would be tired all day and it seemed to kick in at night, maybe because of the coating? Well now I take...
So I know entyvio is slow working, but for those on entyvio, when did you start to have improvement? I'm halfway between my 3rd and 4th infusions and still not feeling it, and I even added 6mp, even...
I'm on month 5 (or 6 I don't remember) have uceris and haven't had any problems like you described. And when I was only on uceris and working on switching mess, I didn't have any symptoms. Once I...
@eucalyptus thank you! I'm meeting with a new gi and will bring these up! @red_34 I did get a steroid injection about a week and a half ago, and I honestly feel worse. And I've started pt, but they...
Thanks guys! Red_34 I have a torn labrum and a tear in my rotator cuff....
Hmm thank you for the info. I couldn't find anything online. So my idea wasn't a good one, but while treating my shoulder it doesn't hurt to kick start me into remission. I was technically in...
So I can't find anything about this topic online, so I wanted to check with you guys. I currently have a tear in part of my shoulder, so I have an currently taking flexerol (muscle relaxer) and...
I had a great experience with simponi. I had very few side effects, it only takes 5 minutes of your time every 5 weeks, and I was given a few articles by my doctor when I was deciding what to take...
Juststud- unfortunately the way mine have grown in they are at high risk of an infection which would be bad for everything all around. But thank you everyone for the responses I am going to talk to...
So I need to get my wisdom teeth out :( I had a consultation with an oral surgeon and we went over everything, and he wants me to meet with my gi to ask if I can take Ibuprofen (I've been told not...
When I tell people I have uc I usually get the "my brother/uncle/whoever had colitis, he's cured though" 1. Not the same thing 2. I am so tired of hearing everyone say someone they know has it....
The miralax and Gatorade is the prep I always use, I love it! For me it's easiest to use a straw and seperate it in to 4 different glasses. My dr has me drink it within 2 hours so I drink one over 30...
Ucmas- when my remicade stopped working i was in college In a dorm room and I could not leave my room or go to classes. I took steroids for probably 3 weeks with no change, so I went in for IV...
I was so anti surgery, but a couple weeks ago I broke down at the doctors and said I would do anything. I'm still seeing a pediatric Doctor right now, but I am getting a second opinion from an adult...
I don't know if I can wait that long. I didn't sleep at all last night because I was up every 15 minutes with d, and the cramps were making me throw up too. I'm currently on uceris to help, would...
Hey guys. I haven't posted on here in a long time, but I was hoping for some insight. I'm starting entyvio tomorrow and was wondering what to expect? Simponi stopped working on me after close to 2...
1. You should pack your meds, but it's not worth it to try to take the enemas. They will just throw them away, especially since you are going to a foreign country. 2. When you do go, pack some safe...
I don't have a routine, but I don't watch tv, use my phone, or do any other stimulating activities right before I try to fall asleep. I am on prednisone currently, but this has been a problem for a...
I wouldn't say I'm getting a ton, but I walk a lot in a day (college student), and I do the basic kind of ab/ core strengthening exercises 3-4 days a week, aerobic class multiple times a week......
So obviously when in a flare I'm exhausted and I do sleep all day, BUT since I've been diagnosed (2 years ago to the day) I've developed insomnia... So when I'm not in a flare I'm up, all the time. I...
Well I got into contact with the Dr's office, but they said it's nothing to worry about. I'm feeling a little better, but I'm still in so much pain. So much that I've taken Tylenol every 6 hours from...
Remicade was great for me while it worked! And since I only had it once every 8 weeks I'd just leave school on Friday, do it that night, and then spend the weekend at home. I didn't have any diet...
I started Simponi last week, and other than that just vitamins and probiotics. My flare symptoms are gone. I'm having horrible body and muscle aches everywhere. The worst is my upper back where I...
I've been on 20 mg of prednisone twice a day (40 mg total) for two weeks now, and I am having the WORST side effects ever. I'd rather be back in a flare than feel like this. My doctor is out of the...
I've stayed 3 times for 7 days each, and last week I was in for 4 days....
I was on IV steroids when I started and I'm still on them so I'm not sure if it's the steroids or the Simponi working. I will say most of the stomach pain was gone within a few days....
Good Luck, I hope it really helps you! I started last week. I've heard a lot of people say the injections were painless, but I thought they were really painful, so I would suggest holding an ice cube...
I had my first two shots one week ago, and I've been on 40 mgs of prednisone for 2 weeks. My BMs are definitely better, but the side effects of the prednisone are too unbearable to enjoy being about...
This is the weirdest thing I've ever heard of. I use benzoyl peroxide 2-3 times a day on my face. I've only been using it since I was diagnosed, since I never had skin problems, until steroids, but...
Maybe it was just being the first time that I was freaking out and it hurt really bad. I had the first 2 injections on Thursday and was on IV steroids from Wednesday night to Friday night. I feel a...
So I started Simponi on Thursday, and it has an auto injector pen. Does anyone else find these extremely painful? I was in tears, while one person practically held me down and my mom was doing the...
So after being in a flare for almost a month before someone did something about it, I started on 40mg of prednisone last Wednesday. I started to feel better around Saturday or Sunday with my number...
How long have you guys been on this? As soon as my insurance clears it, I will be starting it. But I'm worried because for me, Remicade only worked for a year and a half....
I was on Remicade and it was amazing. For me it started working after about 2 months, and I didn't need steroids. I never had any problems with it while I was on, besides having the worst veins known...
Well remission was great while it lasted. I started Remicade in September 2012, and in January I got my antibodies checked, and they were high. And then two weeks later, bam, starting a flare. A...
Hi there! Sorry about your daughter, but she should be better in no time! I was on 6mp for 2-3 months, I found that the side effects were terrible and within 3 bottles of pills I had a flare. It...
I wash my hands probably 50 times a day, I have super dry hands because of it. I've tried vsl3ds but it didn't work, right now I'm on prescription florastor, but even that hasn't helped... Just...
Hi guys! This is my first post so bear with me. So I started getting symptoms of UC on February 15 (I thought my v-day dinner gave me food poisoning, that's why I know the date) and was tested...
1) I am always in pain, it's not always severe though. My doctor did prescribe levsin to me to help control the pain when it's really bad, but usually my pain is around a 5 on a 1-10 scale. 2) I knew...
See if the school can modify his schedule, I know my mornings are really rough so I have late arrival and no classes in the morning even though I still wake up at 6:30. Also 504s are your friend, get...
Go away to college Actually enjoy my senior year of high school...
You know you have UC when you keep a roll of toilet paper everywhere, car, purse, backpack, closet, and anywhere else you can think of. When your packing to go to the hospital and check to make sure...
Also, I was out on VSL#3DS 4 times a day for three months, it didn't help me at all, caused excessive vomiting. Recently was released from the hospital (Sunday) and told to take florastor 3 times...
Hi, I'm a 17 year old senior, I was diagnosed in March when I was 16 and in my junior year. I've missed almost all of school in the last six months, but I know what your son is going through. I just...