http://www.ajnr.org/content/26/6/1548.full The remicade website itself also mentions the association between TNF inhibitors and CNS demyelinating disorders. There is no actual study. Every patient...
Good point DB! I could have worded this better. But ya, it is a little comforting (and tempting) knowing Entyvio has a different mechanism. I'm not sure we know exactly why remicade and humira have a...
I have and will continue to do my own searching into this, and will make my own decision, but I am just curious what others think. My GI doctor wants me to start a biologic as i've begun flaring...
Congratulations!! I think it is so important to share good news stories on here to give people hope, especially when it comes to babies! And so, I will also share mine! I am now 5 months post partum....
Hi everyone. I'm heading to England on vacation in July. I'm just wondering how easy it is to find toilets while out touring. (I'm from Canada). We are spending a week driving around Devon and...
Thanks Duffle! Ktj757 - i'm curious that you were told to stop the 6-mp. It's basically the same drug as azathioprine. Both are considered to be safe during pregnancy. Although i think there is a lot...
Absolutely do not stop taking your mesalazine while you're on the prednisone!! I am jealous of your slow taper. I've been on prednisone twice. The first round I started at 40mg for a month and the...
Hi, Just curious, did you stop taking the 6-mp during your last pregnancy? I am currently pregnant, and terrified of flaring as I just achieved remission (with azathioprine) after a long, difficult...
Hi! I'd start taking your aza right away! Although tough call with the vacation soon. As long as you can still make your weekly (or roughly) bloodwork, i'd start asap since it takes so long to work....
I'm extremely gassy all the time and I find that the best way for me to comfortably keep my 4 gram enemas in every night is to lie on my left side with knees pulled up. Honestly this will make you...
So sorry the prednisone isn't working better for you! I've only had to use it twice for bad flares, and both times it worked miraculously within only a few hours of my first dose. One thing I found...
I was 31 when diagnosed, but first flare started when I was 28....
This problem has plagued me for as long as I can remember, long before I had UC. It's a huge deal for me because I travel for work regularly. As soon as i'm with people other than just my husband,...
For the constipation, I would try a good quality prune juice, warmed up. Last time I had constipation, I couldn't pass stool at all, even a little bit for 5 days despite trying every over the counter...
Most of the moon face issue is caused by water retention, not fat. It does help to limit salt intake, however that can be really hard to do to a point where it has an effect. There is so much sodium...
Yup! This confused me for a while too. I take Pentasa as well. I definately noticed the colors more using a bleach based toilet cleaner. However, I've never had it stain permanently, even if I don't...
These posts made me smile. Regular people just do not understand IBD. The worst is when people think it's like IBS... Or, in my experience, most people seem to understand the seriousness of Crohn's,...
Just though i'd answer the IBD nurse question in terms of how it works Canada. I have an IBD nurse, or rather, my GI doctor has a (or several) IBD nurses. These nurses are specialists in IBD, and...
I only hold my farts in for the first 30 mins to an hour after putting the enema in (to avoid accidental leakage). After that if I have to fart I let it go "gently" with no problem. Just make sure...
If you look at a diagram of your colon, you can see that it goes up your left side from your rectum, so when you lie on your left side, the meds can move further up your rectum and into the colon. If...
Here are a few extra tips that have helped me get used to the Enemas. I just started using the Salofalk enemas 8 months ago (every single night since). The first 2 or 3 times I tried were quite...