I just wish i was able to find out if it was uc I have or crohns they still seem to think uc is the most likely but if the treatments not working I hope they try other things...
Hey meds I'm on is 6 octasa per day (mr mesalamines) maximum dose and rectal pentasa nightly been on this since my original diagnosis of proctitis in 2015 obviously not working as has spread - I've...
Oh also at the end of the notes it said normal ti...
Hey had my colonoscopy yesterday which went from last year I had moderate proctitis -to now my comments were mild-moderate indeterminate patchy proctosigmoiditis from rectum up to 30cm the caecal...
Thanks for getting back to me everyone I'm just so scared I can't help it - I have a major fear of vomitting and suffer health anxiety so I'm terrified of what's going on up there -also in a big wuss...
Ok thanks guys also the sedation in the uk is not being fully put to sleep it's a conscious sedation has anybody had this ? Or are you full put to sleep - thanks again x...
Hey guys first colonoscopy due saturday any tips taking moviprep and think going to have sedation - beside myself worrying about it anything anyone can suggest to make the whole thing slightly easier...
Hey have colonoscopy next week first one ( had flex Aug last time ) just worrieodthat will bring on flare ( still get occasional blood Nichols but nothing compared to last year - was diagnosed with...
Get chugs spoke with my nurse she advised me to postpone the appointment for the time being as all my blood tests and samples showed fine and my visible symptoms have gone she said sometimes the prep...
Sorry I may not have explained correctly due to rushing my bm are relatively normal the upto 20 times a day was the urge to go but when I did it was small amounts of mucus sometimes with blood...
Thanks for the replys - maybe I'm thinking too much into it-I am a worrier - I just feel if i told my nurse this she may think I'm just saying that my symptoms have gone so I don't have to get...
The reason I had a letter is the last time I saw my ibd nurse was End of September and at that time I was still getting the mucus everyday so she said she will speak to the gastroenterologist and...
Hi everyone around November 2015 I had a flexible sigmoidoscopy as I had symptoms of mucus and blood from the rectum since I quit smoking in Jan that year I was diagnosed with distal proctisitis and...
It's showed distal proctitis but further up was fine - biopsy results came back inconclusive they don't know whether crohns or uc - they said more likely uc though - yeah maybe il try that the gi...
Hi Ok was diagnosed with proctitis via flexo sigmoidoscopy Nov Have had symptoms everyday since March last year ( mainly needing to go to the loo around ten times a day just to release yellow mucus...
Hi no i haven't ? I could ask - I rang my gastro today but they were away but I did speak to an ibd nurse who now wants to take over and is booking me in in a couple of weeks- she's also said she is...
Sorry currently on octasa mr 800mg 6 tablets a day and pentasa suppositories...
Ok thanks I'm just overthinking things I suppose I just need to try and control my symptoms it's been a year And a bit since I first told the doctors and haven't had a day without the mucus and blood...
No I asked him about that and he said there's no point as the oral meds should work :mad: I need to get hold of my gastro when they are back...
Thanks I went to see them and they doubled the dose of my oral meds In confused although now as I have indeterminate colitis they are not 100 percent sure whether it's crohns or uc - the registrar...
I have been diagnosed with indeterminate colitis - they say it looks like crohns but is limited to the rectum so could be colitis on flexo sigmoid it said proctitis - mucosa - patchy moderate...
Ok called the gastro receptionist on annual leave until next Friday cannot get hold of anyone through an alternative number - question anyone know will my doctor prescribe me anything or is it just...
Thanks for your replies @kv18 It's nice ( or not ) to know someone's in my situation it's like a wake up everyday thinking it's this going to be the day it goes away sometimes I get until about 3 o...
To be honest I saw the registrar as the specialist was busy and any questions I asked he didn't really know the answers he said its a disease that we dont know much about so it's a case of trying...
I saw a gastro and they said they don't need to do a c scope as i did question that - they dont think its neccesary right now ? They said from the biopsy it looks more likely to be uc rather than...
Sorry I should of been more specicific I had a flexo sigmoidoscopy and they said the inflammation was just limited to the rectum further up was completely clear they took biopsys and they came back...
Hi , pretty new to forum and Have been diagnosed with proctitis ibdand suffer with horrendous health anxiety ( this has been lifelong not due to this ) First got symptoms last Feb after quitting...
I think it was most people were saying it was with the bms but mine is just on its own and maybe I wasn't looking at the correct threads - thanks for your advice...
Oh thanks I was just worried as that doesn't really get mentioned that much and when I mentioned to the registrar he said "could be something to do with it " sorry octasa is oral which I take 3 times...
Hi , pretty new to forum and found this post I too have been diagnosed with proctitis and suffer with horrendous health anxiety ( this has been lifelong not due to this ) First got symptoms last Feb...