After having a total colectomy, it happened to me, initially it was every few days. Then it progressed to almost every day at a certain time. There was cramping and the urge to go. I'm fairly certain...
After having too much dairy, onions, and certain vegetables that happens. I try to limit those things to lunch, that way the gas passes during the day....
I had a total colectomy due to severe UC that landed me in hospital numerous times and quickly deteriorated my health. Recovery took a little longer for me, but within days I started to feel better....
I was on budesonide years ago along with lialda. The combination helped within a few days....
After my colectomy I still had leakage. It started in the hospital post surgery, I was there for 2 weeks after. Then it was once in a while. After being sent home, it started to come more frequent....
Making the decision for surgery is a difficult one. It was my last resort after remicade failed. I was hospitalized numerous times in 4 months. I had blood transfusions, was extremely weak, barely...
As everyone said it will take time to heal and adjust to the changes. When I had my colon removed in April, I didn't empty the ostomy bag for over a week by myself. The nurses did. Partially due to...
Hello. I had my colon removed in April. Prior to it, I was in terrible shape. I was hospitalized 4 times in 4 months. I needed a walker to walk. I was extremely weak. After the surgery I was in the...
I was prescribed rectal mesalamine for diversion colitis. I didn't take it as the bleeding mostly only once a day. My treatment was proctectomy. We made the decision to forgo the j pouch and have a...
I've suffered from hair loss while on remicade, and for a few months after. While experiencing the hair loss about 2/3 of my hair fell out. Whatever hair I had was thin and brittle. I used to run my...
Dr. Theodopolous performed my colectomy. She was the 3rd surgeon i spoke with. There first 2 were volunteered by other doctors. Dr. Theodopolous saw my case and came to see to me and convinced me to...
I pray all goes well for you. Are you in NY?...
Hello Jules. I was hospitalized for 2 weeks post surgery for a few reasons. One being my heart rate at a constant rate of 100 when at rest, and up to 140 when walking, or eating. I felt dizzy when I...
During surgery I was given a pain reliever into my spine. I don't recall what it was. I didn't feel pain until the 4th day post surgery. And boy did it hurt. I was given dilaudid, by IV and oral. It...
I had a total colectomy in April, with my rectum left behind. I had occasionally bleeding from my rectum while in the hospital, I was there two weeks after the surgery. They said that's normal after...
Amy, Any amount of blood lost is concerning. Before stuff hit the fan with me, I was going about 4 times, diarrhea with blood and mucus. Blood work fine then. It was until I started going over 10...
Thank you ladies. I started working a few days ago. The first day I did not wear the blazer. I had my shirt tucked in and my pants just below my stoma. The bag did not show. From time to time I had...
Good day all, I will be returning to work soon. I'm curious as to how one should conceal the bag wearing business attire. My plan is to cut a whole in my shirts. This way the bag will be outside when...
I was bad before I had surgery. I failed lialda, 6mp, prednisone, solumedrol, and remicade. I lost almost 30lbs in 2 months. I'm still experiencing side effects from remicade, although I stopped it...
I've had two indeterminate results. The first before my first Remicade infusion, and the second before the second infusion. I turned out okay. I did get some nasty side effects from Remicade....
I had 3 remicade infusions, last one in April. I'm still loosing hair. I have at most 1/3 of the hair I used to....
I'm now 2 months post surgery. I feel much better. Though I seem to have diversion colitis. I'm seeing the surgeon this week. We'll see what her advice is. It's wonderful not having urgency and not...
I use ferrosequels 65mg tablet. Since I had my ileostomy, my hemoglobin levels have increased....
I'm glad you're doing well Kanva. Drinking lots of fluids will prevent the output from being liquidy. Which surgery did you have?...
Thank you Clo. I have the holister drops. I will try it. I tried the tablets once, when emptying the pouch, completely odorless. Thanks Benny. I also have to two clip belt. I have no idea how to use...
Good day all, I'm new to the ostomy forum. I had a total colectomy in early April. I started to notice after 2 days with a new pouch, odor comes from the pouch when it's closed. I'm using a holister...
Hello Rachel. I had uc from Jan 2016 to April 2017. In Nov 16 was my first hospitalization. From lialda I got membranous nephropathy. My left lung was completely filled with fluid. I was also in a...
I had the same symptoms. I lost about 30lbs, and couldn't stop bleeding or using the bathroom. It was painful and worse at night. I went the surgery route and had a total colectomy. I'm in no way...
Hey Plucky, I'm 3 weeks out total colectomy. I saw my surgeon yesterday. She said I'm able to lift our 25lb daughter. Once I got home, I picked her up. Best feeling post op. I'm eating food I...
Lanah, I would definitely get a second opinion. My GI had prescribed lialda as the first treatment. It controlled my symptoms really well until my colon decided to act up. Then I was prescribed...
Surgery is definitely not giving up. It's finding a means of healing yourself. And improving your quality of life. I'm 7 days post total colectomy. I've already gained 7 lbs. The recovery is...
All the doctors are pleased with my progress. Yesterday was a big day. The stools started to come formed. I walked for 25 minutes straight. I do need a walker though. Sleep is coming easier now as...
Hey all, praise be to God. The surgery was a total success. The recovery is a process. My surgeon was excellent. Dr Ditmitra Theodoropolous. I highly recommend her. She's performed thousands of...
Thank you. The colonoscopy I had on Tuesday showed severe active pancolotis. At the moment I'm not a candidate for the j pouch because my rectum is so diseased. She said later I may have a j w or s...
Hey all, I've have had my third infusion of remicade. I'm still going to the bathroom like crazy. And passing blood. My body won't absorb anything. I will have a laparoscopic total colectomy. With a...
I suspected mine was poor diet and stress I induced on my body prior to our first born. I wanted to take as much time off from work as allowed. I worked a lot. I ate a lot of fried, fatty, unhealthy,...
I have either 3 boiled eggs, or a 2 egg omelette. If it's the boiled eggs, I only eat one yolk. The eggs are cage free, all that good stuff. Lol. I'll have it with bimbo white bread toasted. I'll...
Sadly I am flaring. I just had a dose of Remicade as well. 😑...
Hello everyone. Within the past few days I noticed a weird feeling on my fingernails. Slowly they started changing. And I guess now it has reached the final stage. Fingernail clubbing! Has anyone...
I was treated with vancomycin for 10 days 2 weeks ago for c diff. Which I think I acquired after being on levaquin for 8 days. While on vancomycin my UC got worse, all bloody BM. I lost about 30lbs...
Gatorade caused some bloating and discomfort for me. I attributed it to the sucralose. I avoid foods with artificial sugars....
The wife and myself strongly believes excess sugar negatively affects my colitis, and/or my ibs-d. Last Wednesday, I ate a lot of different foods, some spicy, some fried, some foods I have not...
After my GI saw the swelling, she suspected it was because of NY extremely low albumin levels. She recommended that I see my internist, and a CT scan. The internist agreed it could be due to the low...
When the wife was pregnant, I worked a lot for about 2 months. Which led to: 1. Poor diet, I started to buy more fast food. I ate fried, fatty and spicy foods. There's were days when dinner would...
Tina, Truth be told, I don't recall if I had any sores in my mouth when I had a flare. I know I had a joint pain, but I believe that was due to the amount of weight I lost. Working 6 full days is...
Tina, I hope you come out of the flare soon. I would recommend if you can, try the low residue diet. From what I understand, it consists of food that doesn't normally have a bad effect on your entire...
Hello Tina, Did your GI put you on any diet after being diagnosed? How do you feel after taking the protein shake? Are you lactose intolerant? Are you currently in a flare? I was recently diagnosed...
I needed to add more nutrition into my diet, and my GI recommended a protein shake. I'm curemy drinking organic valley protein balance. It's a ready to drink shake, vanilla bean taste delicious. It...
I just had a CT scan yesterday. Actually was kind of a pleasant experience. The doctor ordered a pelvic and stomach CT. Also, I had both oral and IV contrast. I arrived at 9. I got the contrast to...
Prior to my official diagnosis (prior to my colonoscopy I googled and self diagnosed), I tried Bragg's apple cider vinegar. It did wonders for my IBS, and acid reflux in the past. However for the UC,...