Thought I'd post an update... So my MRI came back completely normal - small and large bowel looked fine. I thought for sure it would show some kind of stricturing as I've been having on-and-off...
Currently 2500 - 2800 kcal per day I will try and eat more but it already feels like a full-time job. Before this mysterious illness I estimate I was only eating around 2000 kcal per day....
Good and bad news from seeing my consultant yesterday... Firstly he said he didn't think my symptoms were a UC flare (?!) because apparently the calprotectin of the second stool sample I submitted...
Every 8 weeks. The thing is though, my symptoms don't seem to be any different before/after the infusions. To be honest, I can handle the mucus, constipation and diarrhea. The thing that is worrying...
Another update: So I've pretty much had the same symptoms for almost 6 months now! I had my Infliximab drug levels and antibodies checked which showed that I had low, but adequate drug levels (3.27?)...
Just a quick update. Not seen any blood since that first time, but had hard stools and mucus again today. I also got the results from a stool sample I submitted, which said my calprotectin was over...
I had some Salofalk enemas leftover from my last flare, so I used one last night. Could feel my guts rumbling/churning all night, but passed a softish BM this morning and couldn't see any...
Wouldn't a pathogenic cause produce other symptoms such as diarrhea? I've been passing very formed stools and not had any urgency. I've been reading about the antibody tests, and I'm not sure they...
Thanks for the replies. I actually submitted a stool sample last week when I thought it was just IBS, but apparently they take a couple of weeks to process. I don't think they are checking for...
Hi all, been a long time since I posted here. I've had UC for 7 years now, but only ever had one flare up which happened ~2 years ago. Unfortunately it was a pretty bad flare and didn't respond to...
It does feel like the kind of pain I got in my last flare, but it's been 2+ weeks now and I still don't have any other symptoms, and the pain has gotten much milder! I did go to my GP and he...
Thanks for the reply. How long does it take for your symptoms to progress? Not sure what I can do to stop the flare if it is one. I have enemas but I doubt they will reach as far as where the pain...
Maybe itching was the wrong word, "irritation" is more apt. Just like a mild burning pain that sometimes gets worse, and sometimes isn't there at all. I think it's definitely internal, there's...
Happy New Year, everyone. Although I mainly lurk, this forum provided lots of comfort and reassurance during my latest flare. I'm hoping to stay healthy and out of the hospital in 2015, and to forget...
Hi all, For the last week or so I've been having abdominal pains of varying severity. Over the last three days it's mainly been on my right side, a few inches right of my belly button. It's a mild to...
So apparently the guidelines in the UK are to use Infliximab to treat refractory colitis only if Cyclosporine isn't appropriate ( http://www.nice.org.uk/guidance/ta163 ), and since I'm already on...
I wasn't aware it was an issue, he suggested it pretty readily. He said in the past it was used as a last resort, but that it's actually far more effective to start it early when a flare is dependant...
Just an update for posterity, I know this forum turns up in lots of google searches. Switching to oral steroids made my CRP go right up and I started passing more blood, so my GI started me on...
Hello. Quick update from me. I ended up going to hospital on the 11th because I was feeling pretty worried. I've been on IV hydrocortisone since, and will switch to oral steroids today. I'm not sure...
Thanks for the replies, everyone. @kazbern, I'm not sure what triggered the flare. I did have to host a big family dinner around the time the symptoms started, and I was getting very stressed about...
Hi everyone, I've been reading this forum a lot since I started flaring in August, but I think it's finally time I made a post. As my signature says, I was diagnosed 5 years ago with quite serious...