Hi everyone, its been a while since I last posted on the forum. I hope you are all doing well. I just had my ileo closure on the 13th and was discharged today. Its been a very rough ride and I'm...
hi CharlotteR I had my surgery for a temp ileostomy over a year ago in July 2017. For a couple months now I've had bleeding from the rectum. It seems like every nurse/doctor I tell always says it's...
After my surgery I was always too scared to shower without my bag on until I read up on some posts in this forum! I'd say about two weeks after, I finally tried it out and it was shaky at the...
Hi everyone, I've had my temp ileo for about 7 months now. During this time, I've developed a very bad rash that is having a hard time healing. I've tried cutting pieces of my flange to air it out....
I had surgery for an end ileostomy around July. Needless to say, I'm certainly glad that I made that decision. I was just like you. None of the medications worked for me and I was finding myself in...
Hi everyone, I have a couple of rashes that will not go away. One is on the lower side away from the stoma and the other is on the right side, also away. They are pink in colour and tend to weep. The...
Hi everyone I have a few questions and I'd appreciate it if anyone can provide any answers. First of all I'm 17 years old and have an end ileostomy. I've already got quite comfortable with it. I also...
iPoop, life has been really great. I've already started introducing some foods into my diet, but taking it easy. I still get tired easily sometimes, but for the most part I'm feeling good. Thank you...
Sounds like you've been through a lot. I have a similar story where none of the medicines have worked for me. I was on prednisone for so long that I forgot the last time I WASN'T on them. I actually...
Hi everyone I joined this forum about 2~ months ago and I recently had an end ileostomy done. I guess I don't really have a super big reason to be around here anymore, but I'll definitely check in...
Hello everyone, I recently had an end ileostomy on July 13. I was discharged from the hospital yesterday. What I would like to know is if anyone has any tips and advice for general stoma care and...
Hey everyone I'm currently in the hospital recovering from an end ileostomy. I had it done on the 13th of Jul . What I would like to know is if anyone has any tips and advice for general stoma care...
I'm also 17 and I know what you're going through. When I was first diagnosed my parents were super strict about everything. I'm Korean and where I'm from, they have a lot of alternate...
After my first flare up, I remember my GI recommending Remicade. Before I started Remicade, I was on prednisone. Whenever I flare up I usually have to go back on high doses of steroids to stop...
Hi guys I just had a bowel movement and noticed that there was a little bit of blood. The stool was formed but there was about a teaspoon of blood smeared on one part of it. There was also a bit of...
Thank you everyone for all the feedback and support, I appreciate it. The infusion went smoothly. I'm going again in 2 weeks for my second dose and if I improve enough after a couple doses maybe I...
Hi everyone tomorrow I'm going for my first infusion of Entyvio or Vedoluzimab. I'm just wondering what should I expect from it? Side effects? Effectiveness? Any feedback is appreciated.. thanks!...
Okay just took my steroids.. I also forgot to mention that I forgot to take my valganciclovir as well. I take 2 tablets (900 mg) by mouth every 24 hours. Should I take that too?...
But if I take it now won't it mess up my schedule? Would I still take another 30 mg tomorrow morning?...
Thanks again everyone. I'm gonna make sure I stay positive throughout this whole thing. My mother and I are on good terms now and have put it behind us. I only have 1 and 1/2 months to go before my...
Hi everyone I take 30 mg of prednisone every morning and I just realized I forgot to take it this morning. My power was gonna go out due to maintenance so I had my mind completely on that the whole...
Thanks everyone for the kind words.. NiceCupOfTea I try not to be too hard on my mom because I understand where she is coming from. She works long hours and 6 days a week. I think she has broken down...
Hey everyone I'm currently on 30 mg of prednisone. In the past I've had many flare ups and prednisone that came after.. I have experienced all the nasty side effects but lately it is really getting...
good luck :)...
Thanks ByeByeUC! notsosicklygirl, I'm glad you're doing well and thanks for the feedback. :)...
Thank you everyone for all of the informative feedback.. This community is truly a blessing, especially at my age I don't really know a lot of people I can relate to so I greatly appreciate...
Have you been symptom free for that long as well? Around what times of the day do you go to the bathroom? Is it random? After you eat? etc Thanks for the feedback!...
ks1905 yes I had a talk with the surgeon and she said she has the same operation many times and is very experienced. Katmom that's quite the story, I'm glad your daughter is doing good now. I'm...
Thanks for the feedback. I think ultimately I've decided on it because none of the other medicine has worked for me in the past. I'm just tired of flare ups and all the pain and suffering that comes...
Interesting.. are you off all medicine completely? How are you feeling physically? Emotionally?...
Hi ks1905, I'm not exactly sure of the details but I met with a surgeon who specializes in this field (IBD) and doing the removals and what not. I'm planning on having a collectomy with the stoma and...
Hey imagardener2 thanks for the advice, I edited my post. Thanks Michelejc!...
Hi fellow UC friends. I'm new to this forum and thought I would introduce myself. My name is Jimmy and I'm 16 years old. I was diagnosed with UC around April 2014. It has been an ongoing struggle for...