She's been on antibiotics for C-Diff for 4 days now, I understand that it is a 10 day treatment and that it actually may not work the first time, but anyone can tell me how long it may take to see...
Thank you all for your comments. We go the stool test back and my daughter has C-Diff, funny that made me very happy, but I'll take C-Diff over UC flare. @MarjieKay - the GI do the levels test for...
My 11 year daughter seems to be starting to flare again. this would be her 3rd flare in 3 1/2 years :cry: She was put on Remicade during her initial diag, it failed after year and a half. She's been...
Wendy, I can certainly understand your frustration and helplessness, been there and still here for about 3 years now. My daughter, who is now 10 1/2 , was diagnosed 3 years ago. A week after...
My older daughter had trigger finger (thumb really) at the age of about 5. Had surgery at that time, no issues. At that age she had to be admitted to a hospital, but the DOC said for adults it is an...
for my daughter, I use a regular plastic shopping bag and tape it toward the end of the toilet seat(recommended by her pediatrician), works very well. That plastic hat never worked out....
Hi all, Thank you very much for all the information and support you are giving. I am begging to be frustrated her GI. if Entyvio is slow to work and my daughter just received two infusions, why is GI...
Hi all, My 10 year old daughter on Remicade for the past 2 years. This February she started flaring and she just started Entyvio. she was on 20ml Pred and things were looking up. after 2 entyvio...
Thank you. I understand that this disease may get worst over the years. I'm hoping that we can get a few more years for her to get older so she can understand this disease better and help us to help...
She does see a pediatric GI at the major NYC/LI hospital. Do you think that the surgeon can see me only, without her? my daughter is an awful patient and she learned to really "dislike" everyone in...
notsosicklygirl, I've been following your story, really glad that the surgery worked out for you. I Just wish my daughter would be a bit older to really understand this disease. she had both scopes...
On pred she usually recovers very quickly. Once no symptoms, we start tapering, the first taper failed so we try again. C-diff was done back in February when she started flaring, it was negative. We...
My daughter was diagnosed with UC 2 1/2 years ago. The first flare was though on the entire family. It took about 6 months to get her stable and we enjoyed one and half years of "normal" life, even...
My daughter was diagnosed 2 1/2 years ago at the age of 7. She was put on remicade a month later, i believe it was mid march with infusions every 6 weeks. She was also prescribed methotrexate for...
My daughter (9 1/2/ now) has been on remicade close to a year. No problems what so ever. the hardest part for us is IV, nurses have a hard time getting the vein, but they are getting better.. :-)...
My 9 year old daughter has been on Methotrexate pills (7 of them) for over a year now. She was prescribed them because of secondary problem related to UC, arthritis in her joints. So far no side...
Fingers crossed, there is nothing worst then having a sick child. Hope it is nothing serious....
Being a father of a 9 year old diagnosed a year and a half ago, I strongly believe that we should support and encourage our kids in everything they want to do. This disease is stupid (for the lack of...
My daughter has been on Remicade since about march 2014, at first at 8 week interval, then her GI changed it to 6 week since there was not much improvement at first. At that time she was still on...
Thank you all for well wishing. So far my daughter has been doing well, about 2 BMs a day, formed and no blood. Seems that she is going back to pre Dec flare/C. Diff symptoms. I am glad that this...
Hi all, I did jump in a few days ago with a post, but I though an introduction is in order and I have a question. My 8 1/2 daughter was diagnosed with UC Jan 2014 (she was 7 1/2/) after about a month...
Hi all, new to the site, been lurking for about 3 weeks and finally decided to post a comment. Please see the sig for info about our nightmare... @BV, really sorry about your son, we have a similar...