I haven't posted in awhile ( not that I was ever prolific )..... Going on week 24 of a severe flare up that put me in the hospital for 5 days several weeks ago. Started Remicade in hospital, and had...
Thanks for the detailed reply iPoop. Hopefully the Remi + Imuran will bring me to the promised land....
Thank you all for the replies. I sincerely appreciate it. @iPoop........ I've noticed from your signature that you are only on Remicade ( and in remission - happy for you! ). Have you run any other...
So it looks like I'm headed down the biologic road which quite frankly terrifies me, but I don't seem to have many options left. This last pred taper has produced absolutely brutal side effects which...
You're not alone brother. I believe it was ipoop on here that said there are three certainties in life.... Death, Taxes, and Pred side effects. I do not tend to get aggressive or irritable while on...
A couple of things: -- you can't convert fat into muscle. That would be like turning aluminum into gold. They are completely different cells / tissues with completely different metabolic functions....
@ GC4249........ Yes. Thank you for the concern. To answer your question no the side effects do not start immediately. It takes around 10 days to 2 weeks for the high dose Pred to start to...
@ solitudent..... Do you tolerate nuts / seeds well? If so that may provide a great solution. They are very calorie dense, nutrient dense ( mineral content / decent amount of protein / healthy fats...
@ GC4249...... Yes I experience nasty side effects from Prednisone. I am on a Pred taper right now and living with them on a daily basis. For me ( and it seems to be highly individual ) by far the...
Pred delivers you from the depths of hell and for most ( including me ) make you feel like a human being again very quickly........... and then you pay hell for it as the side effects kick in. It put...
No it will not completely prevent you from gaining muscle but you're fighting an uphill battle. 10mg per day is a reasonably low dose, but obviously from a muscle-gaining perspective you'd be better...
Prednisone will definitely negatively effect your efforts in the gym. Long story short is that it is not good for those of us train at the gym. The corticosteroids tend to have a muscle-wasting, fat...
I suspect that at some point ( maybe within 10 years ), they will discover a root cause ( or family of causes ) linked to issues higher in the gut in the small intestine that are the trigger of many...
I'm currently experiencing this as well. My pattern = 1st BM of day within 5 minutes of being vertical out of bed with a high degree of urgency. Starts with a lot of mucus, then formed stool, and...
@zengrrl I'm currently taking interfase plus from klaire and digest gold from enzymedica. They've seemed to help with carbohydrate digestion and gas / bloat. My blood lipid profile was "beautiful"...
Thanks Zengrrl.... Edited profile to include a sig going fwd.... There has been a lot of mucus lately. I wonder if the lipids are part of the mucus? There's a disconnect for me when I think of all...
So I've noticed that during this current flare ( and even before in remission right before this flare started ) a very thin layer of lipids left on top of the water after a BM. My understanding is...
I get intense night sweats during flares and while on pred. The worse inflammation for me is always overnight and in the mornings and then it subsides during the day. I'm pretty sure it's a hormonal...
@ taben.... posted earlier in this thread but just had a relevant experience I thought I'd share as I think it will help. I went to the gym and after training I decided to spend 20 minutes in the...
Believe me I know your pain / frustration right now. I just dropped down to 25mg today ( started at 40 several weeks ago ), and my oh my are the side effects starting to kick in. I have severe...
I had a horrible experience with Uceris. I got all of the systemic side effects ( worse than pred if that's even possible ) with zero benefit. It just made everything worse bleeding wise, and gave me...
So I had blood work done on Friday, and got the CRP results back today..... and almost fell out of my chair. The most recent result came back at 1.3 mg/l. Several weeks ago I was at 17.2, and back a...
Thanks again CM - Very interesting on the rice.... The only grain I'm really eating right now it sprouted, organic basmati and short grain brown rice. I did eliminate them for awhile several weeks...
I've had something very similar happen but it was months after I was on pred. Any torso rotation or deep breath any it was take-you-down-to-your-knees intensity pain in my upper left rib cage ( would...
Thanks CM - That's pretty much what I'm expecting ( should say hoping for ) for me as far as positive progression of symptoms realizing that every person, their condition, and path to remission is...
I'm not as experienced as others here ( and I'm no fan of pred even though it's delivered me yet again from the depths of hell ), but it sounds like the taper was too fast. How often were you...
John - I have not tried any of the immunomodulators yet, but I will be sure to bring it up with the GI before any decision on remicade is made. Thanks again.......
Thanks Songlady - this quote made lol because it's so true.... "If I can shower, get dressed and come downstairs to start breakfast preparations, great! If it's after breakfast, Remission City!...
Fascinating stuff right there..... Only a matter of time until somebody figures this out.... Or so we all hope....
Hey Songlady - Thanks for the reply. I started the taper two weeks ago today. Things were not good at the start with 15+ movements per day and flex sig the day prior to taper start showing severe...
So I've been in a flare since mid-February, and am now on a pred taper ( just dropped to 30mg / day - 5mg drop every 7 days started at 40mg ). Symptoms have improved quite a bit ( down to 2 or 3...
Fascinating stuff. Makes a lot of sense to me. Thanks for posting....
Godspeed to these researchers and their ( our ) cause.... I ( like so many others ) am convinced that there is an underlying pathogenic cause to IBD. Nobody will ever be able to convince me that at...
Just going to give this thread a bump with an update on my Uceris experience...... Unfortunately, and quite sadly, I had to discontinue Uceris after 6 days. For whatever reason ( I suspect low...
Thanks all for the replies...... Sounds pretty positive to me even it if takes a bit longer. Worth it if the dreaded pred side effects can be largely avoided....
I can only speak for myself but every flare up I've had has come after weeks of very intense 5 to 6 day a week training including HIIT, Power Complexes, etc.... This type of training ( without...
Hi everybody. So I'm currently in a moderate flare and started Uceris on Wednesday after meeting with my gastro last week. I'm sure there are many here who have tried it, and I was wondering if you...
You're not alone..... Since this is a relatively new condition for me I find myself struggling emotionally during the bad times ( flares ) for a variety of reasons. I think it's impossible for...
Thanks all for the thoughtful replies. They are appreciated.... -- Dr. did Rx mesalamine / asacol which made things worse. Heavy bleeding -- I am aware of the chronic, recurring nature of the disease...
Hello everybody, I've been lurking / reading on this site since late 2014 ( not coincidentally when I was diagnosed with UC / Pancolitis ). First off I want to thank everybody who contributes to...