So my struggle these days (along with many others) is the fact that I'm unable to fall asleep anymore without tbe aid of a sleeping pill. I probably have gone since January without sleeping by myself...
Right on board with you Tyler! Am 19 year old female and just went through every single medication to the point where I don't even want to bother on trials, just want my god damn life back and to be...
Hi all, just a quick question here. Ive been on pred for about 2 years now and am currently on 11mg. I have gained about 20 pounds from the pred evil and I'm looking to lose weight and/or gain...
Hi all, just a quick update: I was on remicade 2 months ago double the dose 4 times and was on it since december. The results from the test showed high levels of drug in my body but unfortunately...
Just wondering if anyone had part 1 of their surgery done in Toronto at Mount Sinai hospital? I am scheduled to do it there with an expert team dedicated towards IBD, with Erin Kennedy leading it....
Month is not too long - lots of people on this site (including me) have been on it longer, but yes - pred is known for its uncontrollable eating that leads to weight gain, moon face, moodiness, acne,...
Total non-responder, unfortunately. Took the test and she found high levels of remi in my body, we thought it was working initially because I felt so good on 40mg of pred and remi but I guess that...
Hi all, so my current situation is me contemplating surgery or try the next drug (entyvio). I had 3 double doses of remicade and it did not work (have been on it since december). I was trying to...
I am gearing up (or trying to) emotionally and physically for surgery as I am running out of options for UC and I am only 19. I've heard good stories and bad stories.... I don't really know what to...
Hello all, I have been on remicade since december and I just had a double dose on the 28th of march, almost 3 weeks ago and even a day after the dose I did not feel my usual self that I feel after...
Hi all again, I have finally tapered down to 10mg of pred while on remicade, however I've had to up my dose of remicade to every 4 weeks at a double dose. I just had my first double dose (5th dose in...
Hi all, I have been reducing PRED 5mg until 20 and then 2.5 until now (which is 12.5). However the past few days have been okay but the first day of taper was absolutely the worst. I now suffer...
I have tried enemas before but was never consistent since I had trouble getting them in. I will try again. Was also thinking on a probiotic but my doctor said not to because then the remi has...
I just had my 5th remicade infusion today (increased the dose from 285 to 300) and had to have it 1 week earlier because the symptoms came back. I don't know whether remicade is working anymore...
Hi - thanks all for the replies. I didn't know vit c can cause diarrhea, but I am taking 1000 mg or icu or whatever it is. I agree on the stool test as I did just come back from Niagara Falls ( went...
Hi all, I have just finished my 3rd loading dose for remicade on Jan 15 and have been doing fine since then; however, I have also been tapering down off of my pred as well and ever since tapering to...
Psyllium husk will do the trick, if you live in Canada or U.S you can purchase it at GNC or local supermarket, even online. It is a stool bulker, unfortunately; it does not solve the problem at bay-...
Glad you are feeling better. Pred is evil, but it will forgive us for all the bad food we eat, just be more mindful as you begin tapering as it will begin to become less forgiving with the foods you...
Interesting read as I have both celiac and IBD, both were also diagnosed around the same time. Of course celiac was diagnosed before the IBD because of the similar symptoms, but it is interesting. I...
Hi all, I recently started remicade (just had my first dosage 2 weeks ago), and will be having my second dosage tomorrow. I met with my GI this past tuesday and she has said it is time for me to...
The only problem is that since you've started remicade and if it works for you, there are chances of it creating antibodies to it as well. I'm on remicade and do not take anything with it, but from...
Hi, I just got my first remicade infusion last friday (it hasn't been a week yet either) So far, I have not had any urgency issues either, no diarrhea, and I go about every 2-3 days. I think this is...
Hi there, just another remicade patient who has started remicade for the first time yesterday. It has almost been 24 hours since my infusion and I have had no side effects except my stomach hurt once...
Hello all, I'm originally from the ulcerative colitis forum, however my questions are about ostomies and j-pouches so I figured that I might as well post here. So, my questions are, asking I'm going...
Hi all, I'm new to the forums but not new to this disease that certainly does suck. In need of some advice as my topic kind of says on whether I should try remicade or do surgery. First of all, I...
Thanks so much to the people that responded. I am so confused and sad about this condition my daughter has ......thanks for the suggestions and help is greatly appreciated. I checked her asacol dose...
Hi Not sure if anyone still posts in this forum or not ? Hopefully someone will advise me if I post here about my daughter and her UC. My daughter was dx in Jan 2013 with both celiac and then UC. I...