100mg AZA and 3.2g asacol (ie 4x 800mg capsules)...
Yes I am also taking mesalazine oral and enemas (i put 20mg of injectable pred in the asacol enema)...
I had a pretty bad flare last year and got out of it with a combination of prednisone and cortisone edemas. Once I was done with Pred I started with AZA and continued the cortisone edemas and have...
Hope you get better Brad8769. I've ordered qing dai but it takes a while to get to europe. Did it help in stop the bleeding for you? Or how did you make the bleeding stop? I have started flagyl...
Ok I see. Thanks everyone for your replies and no need to heat up - there are far more important stuff to think of these days, like our lovely bleeding gut! So as an update: yesterday was day 2 on...
ok I see - and how were you feeling back then? I guess completely tired but if you managed to go on for 8 months with it, was it manageable? Also, how are you today and how did you get the bleeding...
did he prescribe oral or rectal steroids? If you start with ractal ones, these have very little side effects in the short run compared to oral ones. What are your symptoms?...
I have been taking the enemas since January and also 4x500mg asacol pills, which I now stepped up to 6. I started Colifoam yesterday night and still I had bloody BMs this morning - how long did it...
Yes I guess it could always get worse :-D ! But I would think that someone who has 15BMs per day with blood would pretty much need to go straight to the hospital if it lasts more than a couple of...
How much blood are we actually loosing per day during a flare? I am currently going 5-6 times per day with bright red blood on the toilet paper, and at least 3 times per day the water in the toilet...
Got it thanks iPoop - you've probably been told already thousands of times but your posts are extremely helpful for many people who like me often read this forum but only post when they are flaring;...
sorry iPoop forgot to mention - I am taking Pentasa enemas nightly + 4x500mg Asacol pills and 2xVSL, and I am trying to do anything I can to avoid taking steroids / other more powerful drugs. I have...
thanks ambling this is helpful... I have thought about trying bland food, but between SCD, FODMAP, LOFLFEX diets I think the only bland food that remains is water ahah... I guess it all goes back to...
Hi all! so I've been flaring for the past 22 days (blood on paper and now also in water, 4-5x BMs per day with initially liquid then more formed stool), and for the past 5 days have been eating...
Hi lukenuke, How are you doing? Did Flagyl bring remission also this time? I have also taken Flagyl and t has always helped me a lot; the problem is that i have taken it already 3 times (10 days...
@docktahkay I agree with nourse, it would be great if you could share how you came up with the idea of this enema?! Is this something that someone suggested, you read somewhere, or you just thought...
thanks tigerwolf. I am reintroducing foods today! How long did it take before your BMs went from being liquid on the elemental diet to being formed after reintroducing solid food? Was it a few days...
Thanks iPoop - curious what was your path to achieve histological remission? Was it through meds, diets, or both?...
thanks for your answers this is very useful! part of the problem with this disease I think is that, at least for me, unless I have an absolutely perfect day in every sense, I would always think that...
I posted this in the CD too but want to get as many opinions as possible... what is your definition of remission? I guess the perfect remission would be 1BM per day, perfectly solid stool with no...
what is your definition of remission? I guess the perfect remission would be 1BM per day, perfectly solid stool with no urgency/pain at any time of the day. however going through scientific...
Thanks this is so helpful. I am taking Pepdite MCT +1 which is actually semi-elemental, but still tastes like hell!! Makes sense about the fibre intake - so you too had liquid stool while on it? And...
Hi all, quick question for those of you who tried the elemental diet. I am on day 8 right now; I believe this has definitely helped me in terms of pains / urgency, and it has stopped the bleeding....
You are right - dairy is one of the most commonly avoided foods in UC diets; some attribute it to the lactose (sugar), others to the casein (protein), but the fact remains that most UC diets suggest...
Thanks iPoop for your advice. In fact, I am not thinking of dropping of meds... I did this mistake during my last remission and I have been paying the consequences of it for the past 2 months! But if...
Hi quincy: 1) my last c-scope was 3.5 years ago; if I remember correctly it showed mild inflammation in the rectum and left colon 2) Asacol pills: before starting the diets, I was on 6x500mg per day...
I have been on no carb for c. 10 days and it helped, but still the blood did not go away (decreased a lot though). hence I started elemental and am on day 3 now - while it is absolutely the most...
thanks soynomore this is useful. In your experience, has diet been helpful in managing symptoms, and specifically blood? I started an ultra low carb diet a few weeks back and it really helped in...
Doggiedo, you mentioned that you are going to try and eat better now that your UC is better... what was your diet like before, while flaring?...
if it's not liquid it probably is food residue. If you are not seeing blood on the paper or in the water, I would assume that it is not blood, also giving the more solid nature of it that you are...
Hi Trixy's Got Butt Trouble, quick question... why would you increase your meds / switch to a more powerful one if you basically have no symptoms except for a bit of blood and mucus now and then...
IamCurious, thanks for sharing your experience it is really interesting. How long do you take Flagyl for when you flare? What is your "decision point", eg. when you have >10BMs per day with blood and...
Some antibiotics actually help (some) UC patients by killing pathogen bacteria which trigger the immune system reaction leading to a flare (but you are right, they also kill the "good" bacteria -...
UC is the consequence of our immune's system reaction to an overgrowth of pathogen bacterias in our colon - this seems to be a fairly general view in scientific literature. A great book on the topic...
makes sense - the remission that antibiotics brought was not permanent, but they definitely helped me out of a flare. I then wasted the "opportunity" by eating and drinking badly, but now I...
How long does it take between the start of a new diet to improvement of symptoms? I am on a low carb diet and this has helped: I have 2-3 BMs per day with no urgency, no pain at all, and I fell good....
How bad is your flare? do you have blood/urgency/pain? How many BMs per day? If I were you I would try antibiotics - they trigger remission in some people (and they did for me). Otherwise I suggest...
@notsosicklygirl: you mean that antibiotics was not very effective in your case? Also if I can ask, you are referring to "other issues" that antibiotics were creating - what were these?...
Hi All! I would like to hear your view on antibiotics. I have UC and have been flaring on and off since last Summer. I do not get too many BMs per day (my all time high is one day that I had 7, but...
fosco, what is your definition for noticing a relapse? How many BMs are we talking about? When in a flare do you have blood, and if so is it just on the paper or in the water too? Give some more...
I would also recommend you look into the GAPS diet - it is basically a modified version of the SCD diet, and it has been extremely helpful for me - completely reduced bloating and pain. If you read...
3timechamp I was in the same situation as you are - barely any other symptom except for softer stool and very moderate bleeding, with no urgency or abdominal pain and 3 BMs per day on average. What...
Thanks both this is very helpful. So as long as I am not in pain, not having more than 3-4 BMs per day, and not feeling bad generally, with the only symptom being blood and softer stool than usual,...
Hi All, this is my first post but I have been a frequent reader for a while, so first of all I would like to thank everyone in this community for contributing. I have been diagnosed with UC in 2008...