Morning. It’s been years since I posted last but I find myself in a pinch so I thought I would reach out. Im a duo citizen residing in the US. Currently I’m visiting Canada. When I left the US I was...
Yes. It's always the wishful thinking that can muddy the waters😕.........
A side note re. the cost of colonoscopies. This year I decided to try self paying for a colonoscopy in Canada rather than having my GI doc do it in the US. The main reason I chose this is because...
Thx hateuc. New Mexico is a poor state. Unfortunately, this may mean that insurance companies are better able to get away with offering poorer plans - less resistance from a population that is less...
Sorry let me clarify. Insurance will cover scopes for UC - usually applying the plans deductible and/or coinsurance etc. The conundrum I was referring to is this: many plans offer FREE preventative...
Oh, and yes, as soon as you have a UC diagnoses (or a suspected one) most insurance companies will no longer cover any colonoscopies. You would think that UCers would have an even greater need for...
Hello there. Sorry you are experiencing UC symptoms. Yes, you are correct. If the it is inflammation and it clears before a colonoscopy, it can make it harder to definitively diagnose UC via a...
hateuc. Which State are you in? I think maybe some are better than others. I am in New Mexico and ours seems to be terrible. It is really quite worrisome....
Hateuc. Huh - I haven't heard of Uceris. When googled I see it is oral-topical? Topical has been tried via cortenema. Didnt work. So it is probably systemic or nothing :) Soynomore. Like you, I go...
Thanks. I was curious to see what others were experiencing. A few weeks ago I flared for the first time being on my new plan and subsequently found out that my insurance broker had not checked the...
Those of you with insurance purchased through the market place for your state - have you had big difficulties getting the drugs that you need?...
Yeep. Last public poop was behind a historical landmark school house in Nebraska while road tripping home from Canada.....when you gotta go :)...
Kulinarykidz thanks. Perhaps I will wait a few more days to see if I get more improvement - frequency is decreasing but blood is still abundant. As for remission and meds. I was med free for about 8...
Hello again kids. Have not been on this forum for a few years. Actually, I enjoyed an almost two year remission a while back and just didn't feel like being UC focused. Anyhow, back in the shits :)...
What associations have you noticed between your period and UC symptoms....if any?...
The reason you may find it helps is that it is a digestive enzyme....
I am 41, diagnosed with pancolitis for about 15 years, currently on asacol for maintenance and various enemas/steroids for flares. I flare about 3 or4 times per year. I tried ft. It did not work for...
Verrrry last thought. The other thing to do is avoid other products that contain phthalates. The two biggies that come to mind are cosmetics (go bare or go natural - they often contain a lot of DBP)...
One more thought: I did supplement with fish oil throughout both pregnancy and breastfeeding. Both my boys continue to take fish oil supplements everyday now.....we call it their "potions". There are...
Hello all. I have been following the conversations re. the entric coating of asacol (DBP and its metabolite) and pregnancy. Actually, I became aware of the possible (though not well researched)...
I'd say mild inflammation low down. I am trying to get my self out of what I know to be a flare and am having the same type of bleeding....
insofla Thanks for the link to the score card info. I will definitely use it use it. Best to shop local really....and grow your own as much as possible....
Wow, equivalent to only 5mg of oral. I would have thought more...especially when we are talking 200mg of hydrocortisone. It feels like more to me based on the side effects. Anyhow, thanks for the...
They don't seem to help too much unfortunately...
Just wondering how many of you have done this for a short time (one week or so) in order to "hit symptoms hard" to begin with. Then down to once at night until tapering. Have you had side effects? I...
Lodi I am a Canadian living in the US. I was diagnosed in Toronto and lived a number of years there with UC before moving to rural New Mexico. It is a bit harder for me to compare because of the...
Just wanted to thank everyone on this forum. Every time I post a question I get thoughtful and caring responses, even if I have not been on for months. I have been diagnosed for about 14 years now...
thoreau It is interesting that you have a fever but no symptoms. I too run a low grade fever at times, but only when I am in a pretty nasty flare....blood and the full monty. I will say that I am...
Puffed rice How often do you find yourself doing this regime? I am most concerned with the frequency. I am starting to do this short course for the third time in about 3 months and I am wondering if...
Oh, the other piece was that I have been nursing and pregnant for the past, gosh, four years (I have an almost 4 year old and a 2 year old). I was very reluctant to use alot of mesalamine during that...
Fruitgirl Mesalamine enemas used to put me in remission right away. Right now, I use them for maintenance 2-3 times per week. But I dont really trust them to help with a flare. Perhaps I should try,...
Hey there I have been taking a new approach to my UC. Basically, as soon as I feel the smallest flare-like symptom, I am on it. Usually it is gas and tummy rumbles. Mesalamine enemas do not seem to...
I have be using it instead of the psyllium I used to take. I like the effects of carob power better than psyllium. It seems to regulate my system (make things come out smoothly) with out the laxitive...
Interesting. I also had many ear infections and rounds of antibiotics as a child. After I had my tonsils removed I was ok. Then, in adulthood, my UC emerged after a round of broad spectrum...
Hi there Are you pregnant? I found out about the pthalate coating on asacol after I had my second baby but while I was still nursing him....a bit late to do anything about it. It did scare me at that...
I hate to say it but I would worry about remicade. My fears are around the longer term side effects like possible increased risk of cancers etc. So many of the drugs that we use long term have no...
Just wanted to give you some hope. I have tapered pred pretty quickly a number of times with no problems. After those tapers I have maintained remission for various lengths of time from 6 months to a...
I had not had one since about 2001. I was living in Canada then and of course cost was not an issue. Since being in the states I had not had one, mostly due to cost. But upon turning 40 decided I...
Thanks all. I also take 3 asacol (400mg), 2 times per day. Today I just decided to take a midday mesalamine enema (4g) and will do that for a while to see if that added dose helps. I guess I havent...
Hey there. Started flaring 17 days ago. I got on cort enemas quickly and started with one per night 15 days ago after speaking with my doc. Didnt see much improvement, perhaps a bit less urgency. So...
Probi When you say you flare regularly what does that mean? Just curious, because in the last 3 years I have seen my number of flares increase too....
13 years for me. joma...
Humm perhaps you are especially sensitive. I am currently on cort enemas and have had no side effects. The weight gain from any steroid is not a mystery. It is as a result of increased desire to eat...
I was diagnosed 13 years ago. Since then I have flared every fall and a few times in the spring. So, mostly once per year with a few years flaring twice....
GI doctors are generally not trained to provide you with guidance regarding alternative approaches to UC and so most will not. If you want to experiment with approaches such as diet and supplements...
I blend veggies everyday into a drink that my kids call "the yuckie drink". I will admit it does not taste great but I feel healthy drinking it. I put spinach (and sometimes kale or dandelion)...
I am at 2400mg of asacol daily and currently tapering off a nightly 4g enema very slowly. I am taking the taper down to one every thrid night and then I will stay at that as maintenance. Right now I...
When I had mine three weeks ago I had a normal breakfast on prep day. No problems with that....and I eat a pretty good sized breakfast. I started drinking the prep mixture at 4pm. I did not take my...
I have also bfed both my sons while on asacol, mesalamine enemas and pred for flares (still bfing my youngest at 22 months....he is down to nap and sleep times). My oldest bfed through one 3 week...
Kombucha is another way to get gut bugs.....tastes great too....