I've upped my pred back to 25mg, only day 2 but things are still getting worse. The pain is becoming unbearable for the first few hours of the day and I'm feeling very weak/sick/dizzy for the rest of...
Thanks for the all the replies guys, I'm really starting to think this is more than just a blip though. Things are getting worse each day, today is day 6 and I'm having my worst day since this whole...
That did cross my mind actually soynomore, when I mentioned it to my ibd nurse she said to give it a few more days first. I probably had the scope at the worst possible time with me just dropping...
Hi Soynomore, yes that's correct. Wouldn't of noticed any difference after that though because I was already in a fully blown flare....
Thanks guys, that gives me a little hope that im not right back at square 1 again. Could the biopsies cause this much bleeding though? Every time I go the whole paper is covered in bright red...
Hi everyone, I was diagnosed with UC about 4 months back during my first flare which consisted of 15/20 trips a day, pain,blood and d. I was put on 4.8mg Mesalazine and told to start a pred taper...
Hi icanttrustmygut, just seen this thread. I've just replied to your question in the "Asacol 1g foam enema" thread, good luck....
Icanttrustmygut- hi, don't get me started on the NHS IBD nurses, mine has been a nightmare from day 1! Yes I got my prescription from the hospital, after weeks of pestering the nurse for them she...
ipoop- Yeah that makes sense, I've definitely noticed that my first bm has been more urgent and very watery since starting the enemas. My prescription was for a 28 day supply of enemas, I presume I...
I was using Dalacin Topical clindamycin for 15 months before I got my UC diagnosis last month, I don't have a clue if it caused for certain but I certainly have my suspicions. It does say on the...
Hi Quincy, I'm currently going 3/5x per day from 1/3x per day, today was 5 times. I think it's actually the enemas making me go slightly more than I have been, 3 of those 5 times today was just a...
That's good to hear Quincy, had me a little worried at first. Didn't think something that went in pure white could possibly come out black. Was told to use the enemas twice a day, 1 dose morning and...
More of the dark purple/black mucus this morning which was alarming to see but I've just put "purple,mucus,enema" in the search bar and it seems that it is a normal reaction to the enemas for some...
Gc4249- Wow! That was a massive decision you made, I take it you have no regrets? I do suspect that the steroids are just masking my symptoms to be honest with you. I've been on the mesalazine for...
It says to leave the nozzle inserted for 15 seconds after pressing it, I've been leaving it for at least 30 seconds and the disposable nozzle is definitely fully on the canister. Think it's just how...
Cadillacwoman- I had that same feeling of relief when diagnosed with UC, I was actually smiling ear to ear. I'd been thinking I may have had some form of cancer so uc didn't seem so bad. Little did I...
Little update on the enemas, I've used them 4 times now and had no problem at all keeping them in, overnight hasn't been a problem and yesterday I used 1 at 07.30am and kept it in all day at work...
Thanks for that Jessa, I've just noticed that it says you can give 2 doses at once which would equal 2g, not sure how it would be to hold in though with it being twice as much foam. 1g seemed easy...
As some of you may know from other threads I've been struggling to get a prescription for some rectals for a few weeks now, mainly due to a stubborn Ibd nurse that was saying they won't help me....
Thanks for that ipoop, been pestering her for weeks without even thinking how horrendous it might be. Just collected them now. Are the 1's you guys use a liquid? Mine say Asacol 1g foam enema with 14...
My Ibd nurse as just rang and said that theirs a prescription waiting for me for some Mesalazine enemas, she said due to your persistence and the fact that they can't do any harm we'll let you try...
Spoke to the pharmacist yesterday and he assured me that the coated pills will work in exactly the same way with exactly the same absorption. He said the only difference is they are easier on the...
The pills are still 5mg with the instructions of tapering down from 40mg weekly. Haven't had chance to get into the pharmacy today but I will tomorrow and I'm going to try and swap them for the 1's I...
Hmmmm interesting, the packaging is identical though. Actavis prednisolone tablets vs Actavis Gastro Resistant Prednisolone tablets. No mention of Uceris anywhere. I'd ring my IBD nurse but she's as...
I went to the chemist earlier to collect some more Prednisone. My old tablets were white and just said Prednisone on the box the new ones say Gastro Resistant Prednisone and have a red coating on...
Wow, thanks for all the replys guys. Lots of food for thought. After a lot of thought I've decided I'm going to up the Pred back to 40 tomorrow and see if the blood eases up again, not ideal making...
Nicecupoftea- That's exactly what I thought but I can't even be bothered to chase it up sadly, I've spoken to her 3 times now regarding this and she's been nothing but dismissive about the enemas....
All advice and opinions are much appreciated by me ipoop, this forum has been a great help over the last few weeks. I can talk to my family/friends etc but I don't really like going into detail with...
Haemorrhoids did cross my mind but I thought the flexi-sig would of showed that up, unless they'd come since then of course. Its most definitely more than a few drops though, I put tissue in the...
Ok that bit makes sense, it just seems strange how all the other symptoms seem to be getting better but the blood getting worse. It's so disheartening feeling better and then seeing that blood every...
Quincy- when I spoke to the initial gi straight after diagnosis he did say we'll set up a colonoscopy for about 6 months time when the inflammation has calmed down. Is it possible that this could...
Thanks Quincy, I'll just cut it out completely for a couple of weeks, probably be easier to judge if it's made a diffrence that way....
I think their talking rubbish to be honest nicecupoftea, I've only had a flexi-sig so they can't know if it goes any further than that. Am I correct in thinking that rectals would still treat as far...
I've just got off the phone to the Ibd nurse, she said that she's now spoken with the gastro and she agrees with her that my inflammation is too far round for enemas to have any effect on it. She...
Hi guys, I've mentioned this in another thread but though I'd give it 1 of its own to hopefully get a few more responses/advice. Today will be 3 weeks to the day since I was diagnosed with UC and was...
So was I Quincy, not exactly in your words but I did kind of say that. In the end she said she'll speak to the gastro and call me back today but she hasn't phoned. Stopped the fish oil for a while so...
Interesting, I took it way before getting diagnosed with uc, mainly for a shoulder injury that I have and the other supposed health benefits. Seems to do the trick for that. I thought with it being a...
Quincy- just seen this sorry. Before pred it was 15/20x per day, within 1 day it was down to 3/4x and now 3 weeks later it's 1/2x but still not formed. The frequency/urgency is much better but I just...
Quincy- Im currently taking 4.8mg octasa and 30mg of prednisone tapering down 5mg per week started at 40mg. The only supplements I'm taking is 4/5 fish oil capsules per day. The blood seemed to be...
Subduedjoy- that soup sounds delicious, I've been trying to avoid cheese and veggies lately though so maybe not for me at the minute. I'll be sure to try it when I'm fully healed though. Quincy- I...
Ok guys thanks for all the answers, think I will wait a few days longer then and see if this bleeding stops before introducing a fibre supp. I'll be sure to take it slow at first and see if it agrees...
Hi guys, I've been on Pred for a little over 2 weeks now and although frequency is down to 1/2 x per day from 15/20 X per day the stool is still a long way from being formed. I've been thinking for a...
Notsosicklygirl- sounds like a nightmare does that. I'm really worried about the symptoms coming back as the pred tapers, really don't want to constantly be on drugs. I definitely think you went the...
Well, the elimination diet has well and truly gone out the window to be honest with you all and I haven't really noticed any difference apart from being happier. The Pred is probably just masking any...
Ok that's interesting, I'd never heard of fmt until this last week. Crazy that doctors would rather fill you with harmful drugs than try something like that out first. Has anybody any experience of...
Is their a link between Ulcerative Colitis and C Diff? Since diagnosis a few weeks ago I've been constantly reading various forums and articles about the illness. I've noticed that a lot of people...
I was only diagnosed with uc last month at 30 years old, my view on surgery is pretty much the opposite of yours. Ive already found myself thinking that it might actually be safer to just have the...
Notsosicklygirl- hi, after taking the advice given on here I started my taper on Monday, today is my fourth day at 35mg and so far so good. Uc symptoms seem to be getting a little better each day and...
Sparkleplenty- a true elimination diet is definitely something I want to do but as somebody above mentioned maybe now isn't the time for me. With me being on the prednisone it's very unlikely that...
The extra amount of food didn't even cross mind, I think I've just become obsessed with getting back to 1 solid bm in the morning so any kind of change to that I'm seeing as a backward step. Probably...