How many people have reacted to 5ASA over time? Side effects mimic our symptoms... I used to use suppositories but now when I use them I NEVER make it to the bathroom in time when I wake up in the...
Great, thanks for the replies!...
Hi all, been awhile since I've been on the forum but all has not been well. I had a full scope in Feb and disease was unchanged from initial diagnosis of proctitis. Fast forward to July, after taking...
I paid yesterday! Combo of corn casserole on Christmas eve and then wine last night probably didn't help.. amongst other things. But the corn turned on me with a vengeance lol. Good thing it was...
I had a full scope in February and it was only in the rectum at that time, hadn't progressed since diagnosis 2.5 years prior. Just had a flex sig a few days ago, and it's progressed quite quickly...
Just wondering if anyone on here from Ontario knows the cost of remicade or humira. My doc is finally taking my symptoms seriously and said while it's rare for proctitis to need biologics it could be...
Do you know which gyno you've been referred to? Could you call and explain the referral has been sent and your doc is away but this new, urgent situation has come up and you can't wait?...
Wow. Did you have to keep getting referral after referral til you found one? Or get a whole bunch at once? My issue is I'm suffering NOW and I feel like the current doc is not helping me get where I...
A lot of the reviews are so mixed... I had a few names mentioned to me by a GI nurse who's a patient of mine... And some reviews are glowing and some are terrible. I worry about seeing a new doc...
Hi all I've asked my MD for a referral to a new specialist since I'm very unhappy with mine ignoring my need for treatment sooner. I live in Milton Ontario, wondering if anyone can recommend docs in...
Poppie ask if they have any topical anaesthetics they can apply for the cleaning. I'm a hygienist and we have a gel called oraqix that provides short term anaesthesia without needles....
I've done a little preliminary research and I know a few on the boards have had success with LDN for ulcerative colitis. Wondering if it's also effective for ulcerative proctitis? I'm seeing my doc...
I don't trust gas because it 99% means blood is coming out. So I don't have gas as in farts, but when I sit on the toilet sometimes it sounds like an explosion us happening. I used to have it fairly...
I will be honest, I have UP and just did cipro (without pred) to treat a kidney infection and it basically destroyed me. I've been in a flare for a year but it increased the symptoms so badly I...
It was effective until it wasn't. When I first switched I got out of my flare within a week. Then while doing a whole 30 I got a mini flare which was easily treated with steroid enemas in a matter of...
Oh that's good to know. I never know what meds are in Canada vs the states so hopefully that's an option....
congrats!...
Thanks for all the input! I go back for a follow up next week so I'll be sure to mention it. It's odd because this med is not new, I've been on it a few years. My current flare is about a year long...
Don't know if it's too late to help, but I've been having issues retaining enemas lately so i always have to be in the bathroom. I only administer about half the enema and see if I can hold it. Often...
In the last few months, I feel like I've developed intolerance to topical mesalamines, having difficulty retaining enemas, having a lot more "accidents" which stopped once I went off the topicals...
Are the side effects of the c diff treatment that awful? I'm worried I have it. Bringing in a stool sample tomorrow. I'm not sure which is worse, getting c diff from the cipro or having the cipro...
Is there a way to upload pics from a phone into the post? I took a pic of my hand placement last night... Turns out I use my middle and ring finger her actually. Funny how you can't recall something...
Things slowly seem to be improving. I've switched to align, I ran out of florastor anyways. Going to buy some VSL#3 but I keep forgetting to call Costco to order. Saw my MD yesterday to do a urine...
I use them.. I'll try to to explain with words but I don't find it too difficult. I actually prefer it to Pentasa except at the end I seem to get some air which isn't comfortable. I take my index and...
He keeps saying he doesn't want to "over treat" it. Well guess what, maybe I do. Argh....
The cipro was prescribed by an ER doc for a kidney infection, so the GI is out of the loop for now on this one. Glad to know it's likely the cipro though and hopefully not the proctitis getting...
My sister swears by sudocream which she used when her kids were babies. My parents have been faithful penaten cream users for years. I remember during my first flare visiting my then bf (now hubby)...
I've been taking 2 florastor daily during the course. I'm wondering if it's regular d or c. diff (which I've never had). Just sent a message to my family doctor for an appointment so hopefully she...
I just finished my week of cipro for my kidney infection and I feel worse than ever UP wise. Initially there was a reduction in blood the first few days, but then my BMs started increasing like...
I want to start taking VSL#3 and have been checking out pricing at various pharmacies. I looked online (in Canada) they're having a sale until Sept 29 - buy 3 cartons and get one free. Question - how...
Would someone who was going to have a negative effect from abx know right away? I guess regardless I need to finish this course bc apparently the inflammation was pretty bad. I'm not sure if it's the...
Hi all, Long story short, after an ER visit and a cat scan this week I was diagnosed with a kidney infection, I believe from a UTI that went undetected (mild symptoms and I've never had one so I...
Bring your enemas in carry on. Keep the package (I fold it up or cut the part off that says what it is/ has the script sticker) and explain it's meds. You just can't be shy in case anyone around...
I have a mirena. Apparently there are meds that can help relax your cervix for easier insertion. Unfortunately my doc didn't tell me about them. If you have a far drive home maybe have someone with...
I'm always tired, but I'm anemic and don't take iron. Doh. I just bought some liquid iron today and going to take another stab at it....
I've been on betnesol enemas for approx 4-5 months now, off and on (but mostly on, at my insistence... I had my destination wedding a few weeks ago and the steroids were the only thing keeping my UP...
Definitely going to give them a call. Of course I think Monday's are his hospital day so he won't be there. I've already got a temp lined up for work so I don't have to go in tomorrow, I'm really...
Thanks. I checked the possible side effects of the Pentasa enemas I started a few weeks ago and stomach pain and pancreatitis are one of them. Weird because I've used other 5ASA enemas for a much...
He asked the usual questions, have you been drinking heavily etc.. But said pretty much they often don't know the cause the and rest of my blood work was perfect. I did introduce pentasa enemas...
Platinum pixie nailed it. Pancreatitis. Clear fluids and painkillers for 24h and if it doesn't improve than back to hospital for IV....
Nearly 3 hours at ER and still waiting for the doctor. Decided it was better to be safe than sorry especially after hearing of your experiences....
Just woke up to pee again and still discomfort. It's not as severe but definitely still there...
Thanks Sherry. I had a huge BM this morning so I was surprised I didn't get relief after that. Fingers crossed!!...
i took a few T2s and they've helped. I never take painkillers so it literally doesn't even cross my mind. Hopefully tomorrow it will be gone.....
I woke up to pee in the night and my stomach hurt. 17 hours later it's still awful. I haven't experienced this with my UP before. It's above the belly button but below the front of the ribcage and...
thanks for the advice everyone, I tried the Pentasa again and it didn't cause the same reaction. I still get nervous about standing up right after I've administered it, but so far so good! also much...
I think it's only been 3 times ever I couldn't retain an enema- not a regular occurrence. The problem with doing it in bed is I'm not always alone in there depending on my fiance's shift rotation. So...
I do it in the bathroom on a towel... roll over to my stomach and play on my phone for 15-20 mins before getting up, washing hands properly and getting into bed. I try and warm the solution before...
The salofalk is 4g ina 60g solution and the pentasa is 4g in 100mL. But, the betnesol I've been using is also suspended in 100mLs so I'm not 100% sure it's the volume that's the issue. (Mind you, I...
It's the Pentasa enema. I had an expired (Feb 2015) salofalk enema still so I tested it out last night- no issues at all. I'll give the Pentasa one more shot to see if it was just coincidence - kinda...