Bruce: Thank you for your excellent write-up of your experience -- very thoughtful and interesting to read. For me, the smell of what comes out indicates something way off in the bacteria of the gut....
Michelejc - Do you know how long ago this was? I'm wondering if you have a different plan that we do. On the bottom right of my card it says "UnitedHealthcare Choice Plus"...
Michelejc - Can you give me any details of how you got this? I sent in a letter 2 days ago and this morning received a rejection - won't cover....
iPoop: Did you take DS (double strength) 4 packets per day?...
Has anyone been able to get their insurance company to pay for VSL#3 DS (double strength)? I have United Healthcare and they said "no". I am getting really good results from it, taking it at the...
brucen36: I got a stool test about 3 years ago, and they noted klebsiella. I never heard of such a thing, and now you mentioned it. I have a functional medicine doctor, and he honed in on that. I...
notsosicklygirl: I'll try one in the morning and one at night. I think I can do the mesalamine enema daily indefinitely - is that right?...
notsosickly: I tried Humira - 15 injections and no response. I don't think any of the GI options will do anything. iPoop: I forgot to mention that I am taking 1 or 2 Lialda per day. I have taken 4...
I have had UC for 3 1/2 years. At its worst, I went 15x per day, including 4x at night. A few weeks ago I was at 8 to 12x per day. One day I took a VSL#3 packet and did a mesalamine enema. Next day,...
Slow-release phosphatidylcholine. Here is the study: http://gut.bmj.com/content/54/7/966.full The results are quite impressive. Way better than Humira, Remicade, etc. But I cannot figure out (yet) if...
I actually think this is important: Before UC, I had gas *all* the time. Just ask my wife. And every night, without exception, when I turned on my left side, a bubble would go to the end and produce...
Goodness folks! Why aren't you telling him that fmt has 100 pct cure rate and can be administered via colonoscopy....
UC_Hater: Thank you for taking the time to update. I would give everything I own to be able to write those words. I did FT at home a couple of years ago and saw some dramatic results. I did not know...
I would LOVE to hear from as many as possible. OLD MIKE! IMAGARDNER! IPOOP! CANADA MARK!! THE EXPERTS!! I've had UC for 3 years. First scope: "Indeterminate" colitis. Second scope: Pancolitis At its...
Assume they know what they're talking about. Take 'em. The FMT should overwhelm them....
Pea protein from Whole Foods. No sugar or anything else. No dairy if that bothers you....
Mike_in_Georgia: Do you suffer any permanent damage from taking prednisone so long? Have you been tested for bone density loss etc.? I have been on it for one year, average 10mg per day. I recently...
My story is very similar to yours. (However when I'm driving my system completely settles down!) My experience with prednisone is the same. I ramp up and it gets better. I taper down and it gets...
I received my loading doses of Humira today and have injected them. There was almost zero pain and no side effects so far. I injected into my legs. I know that you have to give it 2 months to know if...
I'm on prednisone 25mg per day. Of course I want to get off it, but when I reduce the dosage everything gets worse. (Mesalamine has not had any effect.) The next step up the ladder is biologics -...
imagardner2: I have seen 5 GIs and did not like or trust any of them. They don't explain anything, they just say "take this or that". Not like they actually care if I get better or not. I am seeing...
I have UC, and I'm on prednisone 20mg/day, berberine, Florastor, and tumeric. These are not helping much. I have taken a lot of mesalamine and seen no effects. I am currently having to go 12 to 15x...
I can't keep rectal meds in. Any liquid enema (mesalamine or fecal transplant) gives me an extreme urge to go, right away. It is *so* difficult to hold it in. I can hold it in, but it's really...
Gary: Thank you for the message. I agree with what you wrote. What did you do? I can't tell from your signature line what did the trick. I've seen 4 GI doctors. They don't explain anything. They say...
It would be helpful for me (and many others) if as many people as possible said what they did to get into remission. People talk about flares and remission, but I've had UC for 2 years and never had...
Before UC, I had a lot of gas. Every day and every night. I would roll over on my left side and one came out. Every. single. night. For the past 2 years, since I've had UC, there has been almost no...
iPoop: Yes thank you for the info. I have read all of the threads. I was wanting to know if people like you have done it and why or why not?...
Question for all the long-time people I see here on HW who have posted thousands of messages, tried everything, etc. Have you done fecal transplant, and why or why not? (I have done some and saw a...
I have read the side effects and long-term consequences of all the drugs, including 6MP, and I want to avoid putting that in my body if I can. I understand prednisone is bad too and I want to get...
Is the progression of mainstream drugs: 1. 5ASAs 2. prednisone, Uceris 3. 6MP, etc. 4. Humira / Remicade ? My GI doctor wants me to start Humira and I don't want to take it. He didn't recommend 6MP...
PB4: If you're willing to smoke it, why not try the oil? I don't want to get high and don't want smoke going in my lungs. And some people say the oil is much more concentrated and effective. I have...
Hi all: I was wanting to know if anyone with UC has experience taking cannabis oil and what effect it had. Shona Banda (google her name) feels that it cured her of Crohn's so maybe it can help with...
Thank you for your replies. I am a 49 y.o. male. Hanging on to my last few weeks before I turn 50 :-) My UC may have been triggered from taking a Z pack - zythromycin. I was really sick, and the...
First time post. I've read hundreds of your messages over the past 2 years since being diagnosed with UC. I thought it was manageable with diarrhea 3 - 5x per day, but now it is out of control. 12 -...