Hello I'm from the UK on the NHS and had to move onto biologic therapy. I was given the option of either adalimumab (Humira) or infliximab. I was told that if I chose Humira I would have to inject...
Thank you for the info, it's been very helpful....
Thank you everyone for responding. iPoop and notsosicklygirl I guess I underestimated the severity, because I'm comparing it to an off-the-scale flare. This flare is absolutely putting my life on...
The left side has improved, there is virtually no pain there, the enemas have soothed it. However, my right side is still tender/sore. I'm in the UK (nhs) I don't have access to a 4g enema....
Yes I am strictly gluten free have been for about 2 years, and while flaring i'm also on low residue. I don't have much of an apatite anyway....
Octasa = 6 x 800mg Asacol supps 500mg 1/day Pentasa enema 1g 1/day...
Hey guys I've enjoyed a remission of about 20 months, but for the last 3 months I have been flaring :( It didn't start off too badly, just colon pain but not many bms, but for the last month I'm up...
Thank you, that puts my mind at ease. My first thought was panic, and I know that won't help my UC. I have used rectal meds in the past, my GP was very reluctant to prescribe them even though they...
No it doesn't cost me any more. My only qualm was that I'm doing great on Asacol and I don't want to rock the boat, it's taken a long time to get to where I'm at now....
Hey guys, been away from here for a while because I'm doing well 🙌 My GP has suddenly decided to switch my Asacol to Octasa without informing me (found out when I went to collect my prescription)....
I started having symptoms at the end of April 2015, they were out of hand by May. I was having 20-25 bloody bm's/day and vomiting almost daily. I hid the illness due to fear, went to the hospital in...
For the nasal congestion I use Happinose, it's a topical congestion relief balm it's made for kids but works great! I've not personally had any problems with it and find it works really fast....
I was awake when I had mine done so they told me at the time, how many biopsies they were taking. They gave me preliminary results right after and I had to wait 2 weeks for my follow up appointment...
The most popular one is Crohn's and Colitis UK which you probably already know of, they do fund research ( https://www.crohnsandcolitis.org.uk/research/projects ) CCUK also recommend...
Glad to hear you're doing well. I had a similar issue, i'd get cold like symptoms every week.. I could literally predict the day I would get them! I realised for me they started when I finished...
I have a B12 deficiency, it was detected through a routine blood test. My symptoms were shaking/tingling hands, I didn't put it down to b12 at the time as I thought it was part of my major flare. My...
I used to be prescribed ensure/fortisip when I was underweight. Now I have substituted it for peanut butter, which is calorie concentrated. I have no idea if it a good or bad food, but it works well...
Why isn't moviprep the norm? I used it. I personally found them quite painless and beforehand I was terrified. I was awake and sedated and on the second time I was aware and remembered everything! I...
I was also told not to take any of my medication on the morning of the colonoscopy, they said to take them straight after....
I felt very down for a few months after I was diagnosed, I was stuck in the anger stage. My GP noticed this, and directed me to get help from a therapy service. I had all the contact numbers and...
My GP is very difficult, it took 3 trips to even get the enemas, even though he had a letter from the consultant. He really didn't want to prescribe them but I wasn't going to leave without them, he...
Could you do a faecal calprotectin test, that may convince a GI to investigate further....
Hi LeanneRachel I'm sorry you're feeling this way. I second what other's are saying about the GI. The not bleeding meaning your UC is inactive is quite absurd, does he not order you to do...
I managed to find out through my local pharmacy it's Pentasa suppositories and 1g Pentasa liquid enemas which are supplied here. There are no foam enemas available, but I could possibly get a...
My IBD nurse isn't too bad most the time, the biggest problem is getting through to them, it's usually on voicemail!! I have a prescription now for suppositories, even though I wanted enemas. The IBD...
Thank you! I'm going to go to the pharmacy tomorrow to see if they are able to order these in. Are they liquid or foam? Do you still use suppositories, I'm able to get them but thought the enemas...
I've been reading through your threads, I'm also from the UK and have had trouble being prescribed enemas, like with you it was the IBD nurses who told me it wasn't necessary as I have pancolitis. It...
Thank you for your responses. I'm not sure why some are blocked here, it may be down to regions. Just wanted to know what other UK'ers are prescribed. Also which are better foam or liquid? I have...
Hello, I'm new here! Any of you guys from the UK, can you let me know which mesalamine enemas you are prescribed? I went to my GP because my consultant had written to them asking them to prescribe me...
Hello I'm also new to this forum, I've been lurking for many months. Best wishes to you Sera :)...