I've bounced around insurance plans and initial doctor I had never prescribed the enemas either, he also did not seem to think it necessary for any diagnostics like colonoscopies or flex sigs. The...
Hey again GloGirl. I dunno, depends on where your inflammation is but a lot of us UC peeps have that stubborn bit at the end of the rectum, which is why the enemas are prescribed. You can inquire...
Don't really have anything to add, ipoop pretty much covered it, backpackers with UC unite! My UC seems to keep in check when I'm out backpacking, haven't had any issues. I did two trips this summer,...
Hi Glogirl, when I was on Humira, my GI ordered a trough test to ensure the biweekly dose was enough, it wasn't, so she had me do another starter pack and then go on it weekly. That did me for awhile...
That would be so awesome, not have to haul my butt across town. Ridiculous, I live near a huge new Kaiser facility and other close by clinics but I have to go way across town in gawd awful traffic to...
You can get Entyvio infused at home? They start an IV in you at your house? I had a friend that had a home nurse come put medicine in her when she had cancer but she had a PIC line, so no IV...
Hi Kentuckygal, so sorry you're struggling so much. I hope you're talking to someone about your depression and anxiety because ugh, I get it, this chronic disease stuff is wearing and taxing on your...
LOL! Bird seeds of Vengence, I love that!!!!!...
Cool, I didn't imagine seeing something about that. Interesting, not a needle but still an injection, sort of. Humira will be jealous , wonder if they are doing the same thing. I thought the Humira...
Oh gawd! The friggen stool sample, yeah hate dropping those off as well. Lol, usually the lab tech takes it like you handed them a bag of yellow cake uranium. Or seeing your GI doc in public. I was...
Oh, I don't really care but at least try, see that it is a very personal med and say something like " I don't have a bag big enough but let me find one for you". Lol, and when you hit the perfect...
My ônly saving grace is I only have to do it once a year, then my deductible is taken care of. But Jeez, it's what NSSG says, it being a part time job to get your copay assistance. The indignities we...
4 years in, 2nd biologic, I've never been in full remission. And the day I got diagnosed with UC, "normal" was in the rear view mirror. The constant barrage of biologic drug ads would have you...
I was on the suppositories for around 3 months, in addition to weekly Humira. I had a flex sig and my doc said I still had significant inflammation and frankly, besides burning like a mofo, they...
Thanks for asking. The Entyvio, or as I like to call it, the worlds most expensive anti diarrhea med is holding up OK. Over all, it's been a better drug than Humira for my UC. it got my inflammation...
Gosh UB, 6 weeks in the hospital, that must have been rough but I'm glad you made it through. You were in a really bad way, physically and mentally. This stuff can really take a toll, that is for...
Hey UB, it's been forever since I posted on this forum. I lost access to my account and couldn't log on to post. Not sure if you remember me but I remember last I posted you were in a really bad way....
LTO, I had that problem when I was getting them from the Rite Aid pharmacy. Are yours generic? Mine from Rite Aid were generic. I still use generic but now I get them from my Kaiser pharmacy and they...
Good luck with the move! Hope you get a good GI doc, I notice Kaiser is building like crazy over in the East Bay, saw their new facility when I drove by the Livermore/Pleasanton area last time I...
Unfortunately, us with the IBD are higher risk for eye disease. Ugh, I have uveitus and my eyes are constantly dry and irritated and sometimes painful. You may want to inquire about that or at least...
Thanks' I was going to look when I got around to it, just to see. I call Portland, Oregon home but I'm a native Californian, the Bay Area, the San Jose/Santa Clara area. Most of my family is still...
Since I posted here. Truthfully, I abruptly stopped posting here because I couldn't log in, said my password was incorrect and when I sent for a new one/retrieval, said it emailed me one but I got...
Of course the drug that only costs 15-20 bucks a month, Imuran didn't work for me, I got pancreatitis from it. 👎 My GI gave me the choice, Remicade or Humira. I took the Humira, glad I did. Is...
Hey UB, so sorry to hear you are having such a tough time of it still but glad you are in the hospital. You've coped with this in your own far too long. I hope they're keeping up with pain meds and...
I see doctors who work for drug companies the same way I see scientists who work for big energy companies, not entirely trustworthy or without bias. They're in the tank because of where their bread...
Would I trust drug companies to police themselves to ensure their drugs are safe to take? Not only NO but F&$k NO. You are way too trusting of drug companies. I don't trust them as far as I can spit...
I have 3 cats, so I'm definitely crazy cat lady for sure. They all need to get jobs, they laze around doing nothing all day. 😄...
You'll get better, you will. Hopefully, your Humira will kick in soon and things will improve. Keep after your doctors, don't let them off the hook. I'm wondering if you have some resource, an...
The biosimilar Amjevita, for Humira is approved but what a joke, as it will be litigated and held up in court thanks Abbvie doing their best to circumvent competition. It may be awhile and even then,...
L'Shana Tova to you too U B. My family is a real mixed bag of religions, Cathloic, Jewish and Armenien Orthodox. I was raised Catholic, even went to an all girls Catholic high school but I was a...
Ha, ha, ha, not a difficult patient, so you think! Seriously though, it makes it easier for the doctor to have a patient educated and knowledgeable about their condition....
Lol, @Imagardener2, you are reminding me of an episode of Seinfeld, where every doctor Elaine tries to go to, they have her listed as a "difficult patient". Well, you know, a doctor always has to...
Yeah, I didn't really notice any real difference until after the 2nd round of loading doses. Until then, I was getting through my work day living from Imodium dose to Imodium dose. Hope it kicks in...
This is a good topic, I'm switching over to United Healthcare in Jan and god knows what doctors I will wind up with. I have a supposed Plus Choice plan but it's really whoever I can find taking new...
Hey U B Tough, sorry to hear you're still having such a rough time but I'm glad you are going to get some help. I know, "hanging in" is very difficult at this point but you can do it, things will get...
Easy answer, it's because we have a for profit healthcare system. I think our healthcare spending is something like 17% of the GDP, twice what most other countries spend. Some of this thread, sounds...
Lol @ Skeeter's Bait Shop. The logistics alone of setting up selling healthcare across state lines would be a nightmare. Open enrollment for 2017 starts Nov 1st and ends Jan 31st. If you sign up...
Open enrollment starts on Nov 1st, so that's when you will know how much plans cost. Yes, they may go up but I doubt it will impact the election much. An HRC win would put us closer to a public...
I'm originally from the Bay Area of Ca. Lol, the basic ranch style tract hone I grew up in just sold for a million dollars. Lol, I thought my parents got a lot for it when they sold it back in the...
Hey U B Tough, glad to hear you are staying with your mom, you shouldn't be alone right now. I'm sorry your GI was so indifferent, jeez, at least he could give you referrals. Perhaps you may hav...
@suzy-q , glad your hubs is doing well on Xeljanz. I follow a few IBD specialist, GI docs on Twitter, they were Tweeting amongst each other not long ago that they are impressed with Xeljanz remission...
Yes, my body also knows when it's Humira time as well. I know, not being able to eat the way you want sucks sometimes. There is nothing I love more than to go to a good movie on a rainy day, which...
@ipoop, just out of curiosity, did your parents smoke, did you grow up with smokers around you? Interesting, if you were not exposed to any sort of tobacco at all. My parents smoked but they gave it...
UB Tough, I only know you a little from this forum but I think IRL, we would definitely be friends, As a friend, I have no medical advice and I'm no mental healthcare expert but you are clearly...
The FiveThirtyEight.com had gut week awhile back, did a series of articles about the gut. The biggest reason people visit a GI? Constipation. And surprisingly, what people consider constipation as...
People who have cancer, they never get their meds questioned or get second guessed on how better to treat their disease. IBD? Yeah, then it's "oh if you just eat this way" or "take these vitamins"...
You did the smart thing by having someone show you how to do it. My GI Clinic, said I could go to nurse treatment clinic or call a Humira rep. The day I picked it up, the line was a mile long to just...
We could totally be friends. We can hold hands and dance around a bonfire made from copies of Wheat Belly and Paleo Mama. 😆😂 I'm very cynical about special diet for IBD, if it works great but for...
Thanks, I'm doing well on biweekly, so I'll save going weekly for when I need it. My doc didn't say he wouldn't, just said it wasn't common, which I disagreed....
I do 4 in the morning, 5 at night and it made no difference in how it works. My doctor said I could, after I said taking them 3x's a day drove me batty. Yes, it's quite a jump in cost, Lialda vs....