I had an emergency subtotal colectomy and end ileostomy surgery back in April 2017 due to bowel perforation. My surgeon left my rectum and part of my sigmoid colon because it was not in too bad...
Hi, I had emergency ileostomy surgery 6 months ago and so I had a large surgerical incision wound down the centre of my tummy that took several months to heal. A couple of months ago I noticed a...
I've had my ilestomy for 4 months, in that time the output has varied from thick porridge-like consistency to basically water. For the last few weeks it has been a lot more liquid and I'm not sure...
I've had an ileostomy for 3 months and hadn't had any problems with it until recently. I went out for a meal and had mussels to start and then a blue cheese burger with chips and salad for mains. I...
Yeah it was really scary, but thank you I'm doing much better now :) Yeah that seems the most sensible, I don't want to have to have another open surgery just because that's what my local surgeon...
I had open surgery because it was an emergency. I went into hospital through a&e, had a ct scan which showed my bowel had perforated and so I had surgery an hour later. I never had a consultation....
Hey, I had a subtotal colectomy and ileostomy surgery 3 months ago after my bowel perforated from ulcerative colitis. I had to have open surgery because it was an emergency so I now have a large...
Hello, I recently had emergency subtotal colectomy and ileostomy surgery following the perforation of my bowel from a colonoscopy for an ulcerative colitis check up. I had only had colitis for a year...
Hey, I'm still fairly new to this all and the idea of surgery scares me to no end so it's great to hear that you have no regrets :) What was it like just after surgery? and how long did it take for...
update: I decided to go back on 5mg but later that day I saw a bit of blood and so yesterday I increased the dose to 10mg. The stools aren't completely loose now, sometimes it starts runny then the...
Hello, so I have been tapering off prednisolone for the last 2 months (was on 40 mg for 3 weeks in Jan while waiting to get humira, then once humira started working I began tapering prednisolone 5mg...
I'm 5'4 and my normal weight is about 117 pounds. During my recent flare my weight decreased to 92 pounds at its lowest, then once i started humira I got better quickly and gained about 6 pounds in a...
Just remembered, my skin seems to get dry and thinner when I take steroids. Does anyone else get this?...
Hello, this sounds very similar to my recent flare. I was hospitalised a week before christmas with abdominal pain, bloody water stools 10+ times a day, urgency and vomiting. They put me on IV...
Puffy face, water retention on tummy and back of the neck, increased appetite, increased anxiety and panic attacks, muscle weakness and at high doses(40-60mg) I also get insomnia, night sweats,...
Hey, I get bloating and wind problems during flares especially when I try to eat. Have you tried taking Rennie deflatine? I have found it can help ease the discomfort. But for me bloating and wind...
Hi guys, I apologise in advance this is more of an over the top ranty post than a question just needed to vent my frustration somewhere. I'm currently recovering from a severe flare that started in...
Hi, I've had a tough time for the last 10 months being diagnosed with UC, being hospitalised, going on loads of steroids and other meds, thinking it was working then having another bad flare and...
I had very similar symptoms about a month ago, didn't think much of it. Then 2 stools a day turned into 3/4, started getting more gas and then there was a little bit of blood. Now i'm in the middle...
I have only been having symptoms since march this year and was diagnosed with Colitis in May, since then I have been hospitalised, spent 3 months tapering off 60mg prednisone, thought I was in...
No i'm not on humira any more, my consultant only used it to bridge the gap for azathioprine to start working. She did mention possibly having to increase my azathioprine dose or go back on humira...
I think you could be right about the hair loss being from stopping steroids - its been about 8 weeks now since hair loss started it has reduced a lot! I can see new hairs growing which is great :)...
My colitis flared 11 days ago with pain diarrhoea blood and no appetite. My consultant recommended a short course of prednisolone 30mg for 1-2 weeks depending on response and then reducing by 5mg...
I didn't really think about the other possible factors causing my hair loss. It is interesting that you experience it after prednisone, how long does it normally take for you to stop losing hair?...
Hi guys, I am curious if anyone with UC or Crohns is vegan or vegetarian. I have only had UC for about 6 months and it is currrently under control. I have read lots of contradicting things about diet...
Pam I stopped humira because my consultant only wanted me to use it as a stepping stone treatment to keep things under control until the azathioprine kicked in. I don't think I developed antibodies....
I assume you mean taking 20mg in the morning and 20mg at night or something similar? I know some people split the dose like this to have a more sustained level of prednisone in the body all day....
Hello, I visit healingwell a lot but this is my very first post. I am 19 and was diagnosed with UC nearly 5 months ago in May after suffering with symptoms for 3 months prior. I was put on 30mg...