Start the rowasa for sure asap! Every night! If that isn't helping at all after a few days, or things seem to be worsening to the point you can't leave the house or are having accidents, then I would...
Thanks for responding Sara. How long were you on azithromycin the last time? I have a 10 day course, but am leaving on vacation on Saturday and I would feel better if I had a few more days of...
Thanks for asking. I definitely have had some improvement but think I still have a long ways to go. I have diarrhea around 5 times a day, appears to have less blood so far today. My stool sample from...
Sara! I have been hoping you would reappear!! I have been dealing with the same thing, infection with campylobacter but not cdiff. You are the only person I have seen who went through something like...
I did not get re-admitted. I opted to wait a couple days and see if I get any better, went in for labs, stool test, and office visit instead. So far doing a little better, but still a long ways...
If I were you I would go to the hospital. You would probably have to go through the ER and hopefully they will admit you. They should have gastroenterologists there. It sounds like you need in...
Plucky, nothing has been done to address the weight loss. I'm pretty sure I will be admitted back to the hospital tomorrow. I have an appt at 8 am with my GI doc and he already said he wants me to...
You should get checked for campylobacter and everything possible in your stool as well. I am going through the exact same thing right now, just spent a week in the hospital and still doing really...
Hi peter, I looked up those capsules. It looks like they are manufactured in New York. I find that pretty suspicious. Are you sure you don't have a vested interest in that product? Amy...
So Peter. What is your exact protocol in taking this activated charcoal? Capsules? How many times a day? Where do you even buy this crap? Your story doesn't even really add up because on all your...
Soynomore, my GI group was mostly overseeing my care in the hospital. I had 2 cdiff tests in the hospital, which they said should be 98% accurate because they used DNA polymerase test. But yes, maybe...
You know this is really annoying, I don't want to hear about activated charcoal anymore! I was reaching out for help from somebody who has dealt with an infectious process while also having...
Yeah, I had been there for 5 days and nothing much was happening anymore. They pretty much did every diagnostic test they could do I guess. They said I could stay if I prefer but it gets pretty old...
Soynomore, I am not on IV steroids anymore. They basically stopped the steroids cold turkey and switched to azithromycin for 5 days. But after 3 days I still have bloody stools around 10 times per...
Hey Sara, how have you been doing? I am really curious to know as I am dealing with a similar situation to yours. Severe flare symptoms and in the hospital, tested positive for just camplyobacter....
Yes climbsnowgirl, I am definitely relieved but also nervous about fully getting out of this. Worried about taking anyibiotics, not taking them long enough, getting cdiff on top of it, and/or...
Hey guys, update for you all. Learned today in the hospital that I have tested positive for camplyobacter infection. I am totally shocked. My symptoms seem pretty similar to a severe UC flare, but...
That is interesting 3timechamp. At minimum uceris was completely ineffective at controlling flare. Next time I have severe flare that comes on quick I will go straight to prednisone 😖. Hope I never...
The smell is definitely disturbing though. I usually know I'm headed for trouble when my gas starts smelling, I call them "blood farts"...
Hard to say if stool color is different, because have pretty much only been passing blood for last week. I did have some stool this morning that looked like sludge. I would say the color was normal...
Hi Keith. GI doc here mentioned they would test for other things than cdiff too, but never heard back about those things, they just said cdiff negative for sure. I definitely don't have bloating, I...
Yes, they did a few biopsies. I think they said biopsy report was "mildly active ulcerative colitis". I asked if it looked at all like crohns in there, and he said no it looks like ulcerative...
No, not crazy, I would up now for sure before things get out of control. Use nightly for at least a week until you are sure BMs look totally normal. When in doubt use enemas!!...
So I'm back in the hospital after a year and a half. This flare started with immediate blood in stool, where as it usually starts with abnormally formed stools with some mucus. I quickly went on the...
Thanks for your replies. It is not PC medicus, it's called LT-02 I think? But probably similar. Keith- I am not totally opposed to trying Biologics, I was basically just hoping to hold off as long as...
Hi everybody, so back in a flare for the last 10 days. I am taking the max dose of asacol hd and was using mesalamine enemas about once a week (now wish I had been using them more). I have been...
Thanks for your replies- DB with UC: I do take probiotics, 1 Florajen and 1 Culterelle daily ipoop: I have been fighting moving to higher tier of meds for about a year now, and I'm just so sick of...
So I have been in a flare since January when I was given indomethacin for preterm labor problems at the hospital (even though I told the staff that I absolutely couldn't have NSAIDS, and they told me...
I am a dentist and I have never heard of taking any sort of precautions with biologics or immunomodulators, especially for a cleaning! We have several patients here on remicade or humira and they...
Hi all, so I have been on Asacol HD for the last 3 years with pretty good results. I did have some minor flares throughout that I was able to get under control with mesalamine or hydrocortisone...
Hi all, well I've been back in a flare for about 3 weeks now. It is still mild, 1-3 bowel movements a day that are unformed looking with lots of mucus and occasional blood. Anyways, I've been using...
Thanks for all of your quick replies! The GI docs at the hospital upped my Asacol dose from 3200 mg to 4800 mg, the max dose as my maintenance meds. I already had all of the stool testing done for...
Hi all, first post here. Have had a really bad couple of weeks. Was originally diagnosed with ulcerative colitis 2 years ago when 5 weeks pregnant with my first daughter. I was able to get that flare...