I'm certainly no doctor or expert but both my OBGYN and GI were on board with me breastfeeding both my boys. I did 10 months with my first and 13 months with my second. Both were/are happy and...
CureUC123, yes, Remicade is what I'm looking into as well, thanks! Ks1905, I'm just too scared to try imuran again. The dr said I might have to go on a very low dose of 6mp with the biologic. The...
FlowersGal, please let me know how you are doing on Entyvio. I think that's what I am going to try....
Thanks iPoop, my Dr said the same thing, lol. But I'm continuing to have UC symptoms so I don't think it's a bug, unfortunately. Gizmo, thanks for your kind words. I'm so sorry to hear you are...
Woke up this morning and had to run to the bathroom. My "no symptoms" are gone, replaced with D and horrible cramping all morning/afternoon. Dr is fitting me in today. I still have not decided...
Thanks iPoop! Yeah, it was scary. The funny part was that Imuran kept me in a solid remission the entire time. I was very ill but had near perfect poops!...
Ipoop, Imuran lowered my WBC count to almost zero and I caught a nasty bug. I was in the hospital for 2 weeks. They never figured out what it was, I just started to get better. I'll look into 6mp but...
Thanks DBwithUC, I'm going to look into the tumeric. Dr said he wanted a repeat scope in 6 months to tell if new meds are working but I like your blood test ide!...
I posted earlier about my colonoscopy results. I have zero symptoms (one formed BM per day) but colonoscopy showed mild inflammation throughout my colon. Dr wants me to try either Humira or Entyvio....
Spoke with the GI and saw the pathology report. I have no symptoms but the scope showed active mild inflammation throughout the whole colon. No dysplasia. GI is recommending we move on to other meds....
Ha, good point. I was groggy from the anastasia when the Dr came in so this is based off of what my husband remembers....
So I had my annual colonoscopy today. I have been having zero symptoms, zero problems so I wasn't expecting to hear this. The Dr said I was in remission but that I had microscopic inflammation...
My dad was in Vietnam and he thinks my UC and my brothers AS has to do with his exposure to Agent Orange, like it messed with his chromosomes and he passed the default on to us. (We have no family...
Hi, I was told back in April that it was on backorder. Not sure if this is true but my pharmacy said they were getting rid of the 7 day packs. I get the 28 pack and was finally able to get it 2 weeks...
I used to see Dr. Cohen at the U of C (for 8 years). I really liked him. When I had the worst flare of my life his nurse would always call me back the same day, often in less than an hour or two. The...
I will probably stay on it nightly until I'm done nursing my little one. I had a surge of hormones when I stopped nursing my first baby. It is likely to happen again and I don't want it to lead to a...
Thank you for all the input/support! Saw a new GI and he wanted me to try Lialda and Canasa before Colocort or Cortifoam. It is day three on the new meds and things are almost back to normal. I'm...
Oh wow, he is receiving payments, guess which drug is on the top of the payment list...Uceris. I made an appointment with a new GI for next week....
Yes Quincy he did give me them in the past! He said there was no need for them now because the Uceris was working. When I told him I wanted to get off of the Uceris as soon as the SF Rowasa is back...
Yes! I'm on Uceris and it is making me very fatigued! To the point where I'm napping when my kids nap and going to bed shortly after they do. I'm normally go go go, so this is very out of character...
I'm going to find a new GI. While he was out of town his partners would not prescribe me any rectal meds. My choices were Predisone or Uceris. I ended up taking the Uceris. At my appt yesterday my GI...
As I mentioned in a previous post, I've been having a hard time getting my hands on some SF Rowasa. It was back ordered but is now in stock and on its way to my house! However, having skipped so many...
I tried generic Rowasa but I must have a sensitivity because it made me have worse D. I'm not allergic so that's why I say sensitivity. I tried it for a few days, just to be sure....
I had a colonoscopy in Feb and everything looked ok. Then in April I found out that SF Rowasa is on back order from the manufacturer. I had been taking it everyday so I started to cut back to every...
Yes, I was told the same thing by my pharmacy however, when I contacted the manufacturer, they said the 28 day pack was back ordered but the 7 day pack was available....
I was a patient of his for 8 years. I had to find a new GI when I switched insurance. I wish I could still see him! He was great. He has a very friendly personality and actually listened when I would...
I emailed them. The lab name should be in the bottle. A little Google searching and i found the website and looked for the "contact us" page. It took them a day or two to respond....
I had a heck of a time finding the SF kind. Can you call a different pharmacy and see if they can get it for you? It's pretty easy to get your prescription transferred. I actually contacted the lab...
Many thanks for the input! I'm going to look into a few things before I decide if I'm going to have the endoscopy. I first have to find out if insurance will even cover it....
I do a colonoscopy yearly because I've had the disease for a long time and all of my colon is affected. All of my previous GI's, not just the new one, have recommended a yearly colonoscopy after...
I had to start seeing a new GI because I moved and switched insurance. It is time for my yearly colonoscopy (I'm currently in remission so this is a checkup) and the doc wants to do an endoscopy as...
I've had UC for 17 years now. I had a colonoscopy when I was diagnosed and then another one 8 years later. I've had one yearly since 2008 so my GI can see what's going on and take biopsies, etc. I...
Congrats on the birth of your little one! It's so good to hear that you and baby are doing well! I'm 38 weeks pregnant with my second and so far my UC has been quiet. I flared badly after the birth...
I took it briefly and had zero side effects. I would take it again if needed....
Congrats on your pregnancy! I had a baby 2 years ago and am currently 36 weeks pregnant with baby #2. I have been on Apriso for both pregnancies. SF Rowasa enema is new for this pregnancy. Baby #1...
Could you try increasing the Lialda and adding a rectal med while you are waiting for Humira to be approved by your insurance? During my last flare my doc had me try colocort enema in the pm and...
Thanks. My Drs office suggested ordering from Canada but I'd have to see if insurance would cover it. I'll discuss it with the nurse because that might be a good option. Walmart didn't have the SF...
Thanks for responding. Walgreens and CVS told me their distributors don't carry the SF version. I wonder if there's a way to petition the distributor to carry it......
I first used Rowasa during my last flare. It made things worse so I tried the SF version and it helped (slowly and in combo with other meds). I've been taking it ever since and am currently in...
I was 18 when symptoms started, 19 when diagnosed (am 35 now)....
Had the same problem. I'm in IL and I tried Walgreens and CVS but neither could order it. Finally tried Jewel/Osco and they special ordered it. I called my insurance company and they actually called...
I took Imuran but had to stop due to a hospitalization (unrelated to UC). Imuran got me into remission but I ended up being ok after stopping and went back on Apriso. Hard to say if my hair loss was...
I was in remission from 1998-2010 with Apriso, had a minor flare in 2010 and switched meds to Apriso. Had a major flare 08/2013 - 08/2014 and am in remission now taking meds Apriso and Rowasa....
Hi. I was fine during my pregnancy but started flaring 7 months after giving birth. Likely due to changing hormones. Took me about a year to get back to remission. I'm currently 6 weeks pregnant with...
I was on Imuran for a few months. Kicked me into remission as soon as it reached therapeutic levels (about 3 months). I have a young child and I didn't get sick more often but when I did get a cold,...
Thanks everyone! It's nice to know I'm not alone but it sucks we have to deal with stuff like this on top of UC. My GI didn't seem too concerned. He said it could be from the meds or it could be...
Mine has thinned a lot but no one else has noticed except me and my husband, who recently commented on the amount of my hair on the floor, lol.. When I spoke with the nurse this week she wasn't too...
This was my first major flare since being diagnosed. It took me a year to get back to remission using prednisone, colocort enema, cortifoam enema, imuran and then rowasa enema, and apriso once I got...
Thanks for responding Katmom. I guess I'm a medical mystery :) I definitely noticed that the hair loss started when I started pred but I've been off of pred for six months now. The only new med I'm...
I just posted a question about hair loss today. Mine started when I started Pred in December, 2013 and continued when I stopped Pred and started Imuran but as of April of this year I have been off of...