Hi quincy, I hope you are well. I forgot to add my auto signature, it should be there this time! I am on azathioprine and asacol. I hadn't thought about pepto bismol- does that stop D?...
Hello everyone, I am travelling on holiday at the end of December to one of the many high risk areas for getting travellers' diarrhoea. What do you guys take with you on holiday in case this happens?...
I am not too sure. He said add prednisolone enemas for a week but I would rather save those for when things are worse and use suppositories twice a day. I can tell that I am not on the verge of...
Hi quincy, hope you are well. The nurse is convinced that if someone is on azathioprine they shouldn't use rectals because the aza tablet should cover the area anyway. I don't agree with him and he...
Hi iPoop, I am going to sort the FC test although my faith in them is less since a test just before Aza was only 35 but I was flaring with that sickly UC flare feeling, blood mucus, urgency etc. I am...
Bathrooms where the lock on the toilet door is broken………....
Hi all, Hoping for your thoughts…. I have been on azathioprine since the end of August. The rest of my body feels well now which never used to be the case and both urgency and pain are much less but...
Thanks for your experiences- 2 to 3 months isn't too bad. The sooner the better as it is like taking a sleeping pill without the foggy feeling the next morning. Garthy- I am permanently on 50mg which...
Hey everyone, I have been on Azathioprine now for about 5 weeks and I am so tired especially soon after taking the tablet -definitely taking it at night. How long does this tiredness last? Hoping it...
thanks both- I thought it might be a similar process to identifying when mesalazine isn't enough. Ah, it does make sense that big flares mean the disease has just increased as that it what happened...
Thanks NiceCup of Tea and ipoop. I suspected so about the rectal meds. Do people still use them to help maintain a remission when they are stable on stronger drugs? Thanks both for explaining...
Thanks for replying to this one. Your flares on just mesalazine sound like mine were. Do you think severe flares on azathioprine mean the meds are not enough as maintenance any more? Glad to hear...
Hi ipoop, thanks for explaining how it works so well. That does make sense. Yes they said I must stay on 50mg throughout because of low TPMT and that normally I would be given 100mg for my weight and...
Hi, if you are in the UK I would suggest asking for a 28 day course of clipper steroids....
Hi, I know this will vary but speaking generally, how much easier are flares once you have azathioprine or an equivalent medication in the background? Do they tend to be mild if the medication is...
Hi all, I would be very interested to hear how long it took before you felt Azathioprine had worked? I am now on a fixed 50mg because of low TPMT and have been taking it only for about 6 days so far....
Fingers crossed! I'd love to forget how bad it can get!...
Thanks ipoop. What's the threshold for too many flares on Azathioprine- is it more than two courses of steroids in a year? Good news on the skin issue, I thought I would be covered in factor 50...
Thanks UCdude :)...
Hi, can anyone help to do with azathioprine? Thanks guys....
Hello everyone, I am soon to add in azathioprine and I am wondering what happens when you flare on this drug. Are we treated with steroids again? If the flares happen too often in a year is the...
Thanks Quincy, that's interesting that it isn't a usual place to get an ulcer. They took 6 biopsies in that area but not sure whether it was of the actual ulcer and then 8 in the sigmoid and 4 in the...
Hi there. The ulcer was in the upper portion apparently. I daren't stop using enemas now as otherwise I am sure they would be in my sigmoid as well as that usually seems to be the worst area now. Hi...
Hi everyone, I had a dreaded colonoscopy yesterday as I have been flaring for about a year although feeling much better since a one month course of steroids in May. The GI said that there was one...
Hey troubled turds, I like the name! Thanks for replying. It is a reaction to the long flare as they are not sure whether because I had such a stressful year that the stress was playing a large part...
Thanks guys, that's really helpful. Thanks ipoop for taking the time to set out all the info. I'm using the 2g salofalk enema every night but it isn't getting the BMS any lower than 3 a day in the...
Hello, My UC increased in severity in 2013 causing my first major and most horrendous flare for about 4 months. It was treated by doubling mesalazine tablets but no steroids as that hospital would...
Hello everyone, Having just come out a 12 month flare with the help of steroids, I now have to have a dreaded colonoscopy. I am apprehensive as 3 weeks after my last colonoscopy I flared but I was...
Hi all, Is anyone on azathioprine or similar whilst having low TPMT? This may be the next step for me in a few months time and I expect they will be doing more blood work than normal to get the right...
Hello, Interested to hear from people on this. A friend of mine has UC and says she feels well when in remission but this is not my experience as I continue to deal with urgency albeit on 1 BM a day,...
Hello, Wondering what people think of this. It seems to be a common trend that some foods really aggravate us during a flare but do not cause apparent problems when we are in remission. However, are...
Hi everyone, I noticed a post from earlier saying that once on azathioprine flares are less frequent and less severe. I know this will vary, but I would be grateful for your experiences on how much...
Hello, I haven't tried green bananas, are they meant to be a good prebiotic?...
Hello, I have been reading that we need prebiotics to make probiotics work but food with prebiotics appear to be onions and other similar foods that are hard to digest. Can anyone recommend a...
Hi all, Any thoughts on a calprotectin reading of 408? Just got the result today, 5 weeks after the test and it was done when I was still taking one tablet of uceris a day. My frequency is less than...
Thank you everyone, so glad that enemas exist! I still feel embarrassed collecting them but it's worth it!...
Hi all, thank you. Quincy, my IBS whilst in remission is daily. It will build after lunch with bloating and often even more bloating after dinner. It is like I am half constipated all the time and...
Thanks guys, these replies are great and yes so hard to read without feeling hungry! Looks like eggs are a popular choice. I find them easy to eat as well. i had forgotten about rice krispies but now...
Hi, Interested to hear what other UC sufferers are eating in the morning…. I have recently cut out oats in line with the SCD diet and swapped to fruit but feel very aware that fructose isn't ideal...
Hi all, Just wondering what your thoughts are on this? My IBS is worse when flaring or post flare when my medication is not working as well. I swapped from pentasa to a slightly higher dose of asacol...
Thanks for your advice everyone. Soynomore, I am curious why you suggest a 30 day course of prednisone? I thought it had to be about 12 weeks….just so I can comment to my consultant…30 days sounds a...
Hi everyone, I have extensive colitis and I have been flaring since last June. I have at all times continued with asacol tablets maximum dose and first tried prednisone steroid foam for about 6 weeks...
Thanks both, I am going to do enemas day and night to help as I definitely need more help than my normal maintenance meds. Good to know that some patients just use steroids to get part way to...
Hi Karnaiz, I get those symptoms in a flare. It is meant to be the inflammation making the stool hold back because it doesn't want to pass over the inflamed area. Keep persisting with the enemas. I...
Hi iPoop, I agree, I am worried I will get worse and scared that the steroids are just going to stop now. The consultant told me to be positive but it is not as if my flare is controlled at the...
Hello, I have been on a decreasing course of budesonide/uceris for about 4 months and the hospital want me to stop in the next week. I am still going to the bathroom 6 times a day, have some bleeding...
Hi all, thank you for your replies. Quincy, I am using suppositories day and night as well as the asacol maximum dose and 3g of uceris. When I have tried enemas I feel in better health the next day...
Thanks iPoop. Its 6 BMs a day but 3 with watery D unfortunately. Yes it was a reading of 600 before Christmas and 600 around August last year too, so I am worried they will start saying I must be...
Hi everyone, I am really confused because I have been in a flare since last summer and I am on month 4 of budesonide/uceris, now on 3mg a day but not feeling well. I have a mixture of watery...
Hello, I have been ill with a flare on and off since last August. It became under control in September with a combination of asacol maximum dose (my normal maintenance drug) and prednisolone enemas....