Thank you for the responses everyone. Doc wants me to go back up to 5mgs for a week and then try again. She mentioned Entyvio as the next option. Don't people usually try immunosuppressants like 6mp...
Hi everyone, I've been flaring since July and went on Prednisone for the first time at the end of Sept. I started at 40mgs and have been tapering by 5mgs a week. My symptoms disappeared about a week...
iPoop, you are always there with a quick and to the point answer for me. Thank you!...
Hi all, I've been flaring since the beginning of July. I started 40 mgs of Pred about 2 weeks ago after a recent colonoscopy showed severe inflammation in the rectum (the rest of my colon looked...
This may be a dumb question, but just wondering if the reduction in inflammation from the prednisone gives the rectal meds a better chance to heal the colon? I've been flaring for almost 3 months and...
Thank you both. After a mini anxiety attack and almost going to the ER, I chilled out, talked to my doc, ate some food and am feeling a bit better. I think the prep just destroyed me this time. Bad...
Yesterday I went for my colonoscopy (I had one a year ago when I got diagnosed). I had some issues with my heart rate going crazy before the scope even started. They were monitoring me and eventually...
The doc just got back to me and said the most likely cause was probably dehydration from the prep. I'm flaring and have been waiting for this appointment so I don't think I'll reschedule....
Hi everyone, I have my colonoscopy scheduled for tomorrow and am a bit worried about being being knocked out. After my last scope a year ago, I woke up to a bunch of concerned nurses looking down at...
ks1905, I've been taking the Lialda since Oct 2016 with no issues. It seems strange that out of nowhere I would develop an allergy but who knows. The fact that I have no rash in the places my bathing...
The fun just never ends! Been flaring for almost two months. Started Uceris about 10 days ago with no side effects or issues. I'm now on vacation, was out in the sun for a couple hours yesterday and...
Thanks for the replies - kind of what I figured. Michelejc, despite this damn flare, I plan on eating (and drinking) a lot while I'm there! Then heading upstate for pool time. I will not let this...
Hi everyone, I'm flaring and leaving soon for a 10 day vacation back to the East Coast including a few days in NYC. I've never traveled while flaring and am a bit nervous, but my urgency is pretty...
Thank you all so much for your responses. I feel much better after reading them! I don't know what i'd do without this forum. Amazingly, urgency has improved a ton over the weekend. Still bleeding...
Hi again. More questions for all you wise UCers. I've been flaring since the first week of July. I started on hydrocort enemas a little over 3 weeks ago and they've done nothing (this week I started...
I actually saw a picture of the generic on Instagram and they look exactly the same. I totally feel you on the pill size. I HATE swallowing large pills and have to choke 4 of those suckers down every...
Quincy, just wondering the reason you are suggesting switching probiotics? I thought Culturelle was an OK one. Any suggestions for something better?...
My iron/ferratin is low. They checked it a couple weeks ago when doing all my other blood tests. Not anemic yet, but just about there. I'm guessing the bleeding from this flare is not helping that...
Thanks for the responses guys. Quincy, I'm not using the foam- just the regular enema. I could definitely look into that but just spent the money on more enemas so might use those up first. And yes,...
Hi again everyone, Just want to thank you all for answering my many many questions lately! This forum is a life saver! I thought I had a handle on this disease. I was wrong. I've flared once when...
Thanks for the responses! I guess I'm just a little confused. I always read on these forums that rectal meds, especially steroid ones, should stop the bleeding for most people pretty quickly. And...
Hi all, I'm in my second flare - blood, some urgency but not too bad, lots of gas. I've upped my Lialda to 4 a day and I've been using Hydrocort enemas for 8 days. I've seen a bit of improvement in...
I've been symptom free for 7 months. I forgot I even had this bullshit and now within 1.5 weeks, I'm back where I started and it's so frustrating! It's also terrible timing because my work just...
Thank you all for your responses. I will definitely look into the patient assistance program. In the meantime, it looks like I'm sliding back into a flare and I have no rectal meds right now. The...
Hi all, I haven't been here in a while as I've been in remission and doing pretty well for a couple months. BUT my company switched our insurance providers and apparently they cover barely any UC...
Hi guys, So I started Lialda just over a week ago and have been doing Hydrocort enemas nightly for three weeks (doc thinks I had a reaction to Rowasa enema). My symptoms have been pretty much...
Hi Andrina, I'm a little confused about what you're saying. Pentasa granules ARE available in the US as sachets? Or do you mean it's available in capsule form and can be broken open to get the...
I was horrified about having to do this when I was diagnosed a month ago, but they really aren't bad at all! - more annoying than anything else. I did the first one on the bathroom floor because I...
Hi all, I can't seem to find a good answer to this: Can you break open the Pentasa capsules and swallow the granules inside or not?? The Pentasa website says that you CAN do this, but I know these...
I don't know about the drinks, but just be sure not to eat the bars! Apparently they make people "poop uncontrollably" - like we need any more of that......
Hi everyone, Just want to thank you all for answering all of my questions in the last few weeks (and there have been many!). This space is so helpful, especially to a newbie like myself! So this is...
Thanks for the replies everyone! From what I can find on the internet, Salofalk and Pentasa granules are not available in the US. Can anyone confirm this?? I did notice that on the official site for...
Hi guys, So this recent diagnosis has been tough obviously. Is started with having to do the Rowasa enemas which freaked me out but surprisingly turned to not be a big deal. Now I've been prescribed...
Thanks for the advice everyone! Well I'm still experiencing the bleeding again (not really getting worse but it's been 3-4 days of it being back). I've had no problem with the mesalamine enemas and...
I was officially denied on Friday by my insurance for the Uceris - they sent a list of other meds and I would need to have tried 6 of them before they would approve. Ridiculous! I'm taking the...
Hi everyone, I'm newly diagnosed with proctosigmoiditis. I was experiencing a lot of blood, going to the bathroom up to 8 times a day and loose BMs before the colonoscopy that diagnosed me. After the...
Hi all, Very new to this disease - was just diagnosed last week after a colonoscopy with proctosigmoiditis. They also noticed some inflammation on the other end of the colon - it said something about...
UPDATE: FINALLY spoke to my GI doc's Nurse Practitioner! They are going to appeal the request for my insurance to cover the Uceris - she says it's a steroid but way less terrible side effects than...
Thanks everyone for your responses. Now a few of you mentioned enemas. I'm very new to all this and the idea of giving myself one enema, let alone an enema every night for who knows how long, sounds...
Hi everyone, I was diagnosed with mild-moderate ulcerative proctitis. I've had cramping, gas a little bit of diarrhea and lots of blood with every bowel movement for the last month. My doc prescribed...