Hi! Sorry to hear about your diagnosis. Even if you don't have symptoms, your active disease likely damaging your colon. Also, active disease can increase your risk of colon cancer. I suppose this is...
Thank you all for your input. I will wait a couple months from now at least. I just don't think I'll get another scope until next July/August. There is certainly the pandemic to consider as well. I...
Hi! I have a question about trying to conceive and pregnancy: I have been flaring for a couple years (since the second trimester of my first pregnancy). I started Remicade last week and I'm already...
Anecdote - I was on a low dose antibiotic for almost an entire year when I was a child due to an undiagnosed kidney issue that was presenting as an infection. I also have relatives with UC/CD. Here I...
I'm hoping to TTC, too, but my doctor recommended 3 months of remission without use of steroids before trying. It's hard to wait when you want to try to grow your family, I understand. I hope you get...
Hi, I am afraid I might be in the same situation as you. Entyvio for almost a year, just bumped up to infusions every four weeks. My intuition is to try Remicade next because it's been around for so...
Glad you are doing better!!!...
It's good that you got the TPMT. I am not sure what the recommended frequency is for liver testing once you've started. I ultimately didn't start Imuran, but when I was supposed to, I think the...
Thank you all for sharing your experiences! I think I'll continue to work with it for another month or two before adding Imuran....
My doctor said we would start to think it a failure at around 6 months. I was just curious if this was the norm and it seems to be. They are suggesting that I consider adding imuran now though. I...
Hi all, just curious, if you use/have used Entyvio, how long did it take for it to work? Did you use Imuran or something similar alongside it? After what period of time would you consider it a...
Fascinating - looking forward to reading the paper....
That's great news, Old Mike!...
So Delicious brand makes some excellent dairy-free ice cream options as well, from almond, soy, coconut and cashew milks. The cashew milk ones are the best texture!...
I used to mix it up in applesauce until it grossed me out too much. So, I started spooning it into water (at a concentration of 1 Tbsp to 4 oz water) and let it sit until it became gelatinous, the...
Hi Ucjustsucks, thank you for sharing your candid concern. I have the exact same concern, and uc (and Crohn's and sarcoidosis) run in my family. Songlady's point was helpful! Even if it does get...
Hi there, I'm on 3g of sulfasalazine and it put me into remission when regular old mesalamine did not. I have light headaches but not frequently (maybe once a month, if even). The pills I take are...
Hello, The new diagnosis is scary and can be lonely. This forum is so helpful - so many people share their experiences, successes, challenges, etc. In the past year, I've been so grateful for the...
I've just stopped taking Entocort after taking it (or other corticosteroids including Uceris and Prednisone) since June 2016. I have been getting nauseous and generally grossed out by food and smells...
Hi there When I was on Apriso, I experienced some hair thinning. I'm on Sulfasalazine now (5-ASA is a metabolite of it) and I don't have any notable side effects. Headaches do seem to be a common...
This is fascinating. Glad to see that it is making an impact. Thank you for the update!...
Congratulations on feeling like you did pre-UC! That's fantastic...
Hi, welcome to the site. Your note about taking NSAIDs stood out to me - I significantly worsened this flare by taking ibuprofen back in May of this year, before I knew it was not an option. To...
Thank you all. I've been eating high fiber veggies (used to be disastrous) but now, I seem to be able to eat them without consequence. I'm so happy. I'm struggling to cut the sugar and gluten. Will...
Hello, Per recommendations, I started back on Canasa yesterday and am cutting gluten and added sugar for now. I had started adding some raw veggies back, too, and seem to be maintaining this level of...
I am neither on rectal meds nor have I tried nopal cactus. I am very open to both of these things! It's difficult to be patient. Dealing with this illness has been a major learning experience in...
Hello all, After a year and a half of symptoms and a UC diagnosis early this year, I am the closest I have ever been to remission. For the past month plus, I have drastically reduced pain, 1-2 bm a...
@Beckey, I'm wondering the same thing - what are some go-to healthy foods/recipes (mostly veggies) that are "safe" for everyone? I know we all respond to food differently but I am curious. For me,...
Hi Marciac12, sorry to hear about your diagnosis. However, this forum is full of knowledgeable and kind people and I hope you find it to be helpful. It has helped me immensely since I was diagnosed...
Hi everyone, So I ordered some psyllium seed online and they arrived today. They're whole seeds - I tried to grind them up in my spice grinder but larger pieces remained. I just drank a glass of...
I had my gallbladder removed in 2005ish and got diagnosed with UC this year (2016). I am curious about how digestion changes after losing a gallbladder and how that impacts UC. Specifically,...
@UCJosh Thank you for sharing! That shepherd's pie recipe sounds great. I'll give it a try for sure. @Uniform Charlie thank you for the excellent suggestions! I am curious about the SCD legal...
thank you for your response, imagardener2. I am beginning to understand what I can tolerate, too. What low-fiber veggies do you recommend? I eat so much squash and avocado and I'm ready to branch out...
Hi everyone, Looking around on this site, it seems like many of us have tried or currently stick to paleo, SCD, or Whole30 diets (or close variations). I have tried Whole30 and my new (wonderful) GI...
Hi all, I have not yet gotten into remission since I was diagnosed with UC (dx in April 2016, symptoms for a year prior). With sulfasalazine and a prednisone taper, I feel like I am closer to...