I contacted my insurance company, and they emailed me a list of infusion centers in a town about 50 miles away that were in-network. There is also one place that does in-home, but I'm not sure if...
For those of you receiving Remicade infusions: where do you get your infusions? My husband will be released from the hospital tomorrow, and he needs to have infusions every four weeks. We are trying...
Funny, that's exactly what my first thought was too!...
All of the tests came back good-no heart disease, etc. But his GI mentioned something about being concerned about possible congestive heart failure, so I'm not quite sure how to process that...I'm...
My husband has been in a severe flare up for approximately a year now, with the past 7-8 months spent in bed. After quite a bit of lab work, and trying desperately to convince the preferred GI to...
The only other med besides Humira he is taking for UC is Apriso, which is the drug he was taking when he came out of remission. Not sure what to make of the liver issue, as he went to see his GP to...
Thank you for your prayers-they are very much appreciated. His GI has actually been talking about upping his Humira to every week, instead of every other week, since my husband says he has noticed it...
My husband has been in the midst of a flare for about the past year now, the last 6+ months he has basically been bedridden. His legs and arms are now to the point that they are so swollen that he...
I am relieved to say that for the past several days, I can see a WORLD of difference in his behavior. I have not seen any odd behavior...no talking to himself...no fits of rage or irrational...
He actually has seen another doctor that we really liked once, but due to distance, the doctor recommended he go back to his original doc. However, I've told him that he needs to go back to the other...
I appreciate SO much all of the input I am getting on this subject, because without it, I'd be lost, and still trying to blindly navigate through this. Often times, when he is "having an episode",...
Thank you...I didn't think so. I would think it would make matters worse rather than better, which I've tried to tell him...I would *think* you need to try and function the best you can......
Believe me, I have done everything in my power to help him and listen, I truly have..but then he started turning on me, and would tell me how terrible (evil was his exact word) of a person I was,...
When we were at the doctor last week, my husband told him that if he didn't give him something to take to calm him down, he was going to lose his family...I think the doc thought he was joking, but...
I desperately need time away from him...BADLY...but I'm not sure that he can manage himself and our dogs by himself. Like I've said, he spends 99% of the day in bed (although I have yet to understand...
I know he is frustrated with the UC...he accidently dropped a bowl of chili on the carpet yesterday, and went from yelling about how sick of being sick he was, to crying because he is so sick of it....
Prior to UC, he was unpredictable/difficult at times, I'm not going to lie. But since UC, it has become MUCH worse...he is far more angry and unreasonable than I've ever known him to be, and if I try...
Sometimes I feel like just my presence in the house isn't good for his recovery, and wonder if I should leave, for both of our sake. He sometimes will say things that make absolutely no sense...
My husband is now on 10mg of Prednisone, as well as Humira. I posted something similar about a week ago, so please forgive my repetitiveness, but I'm getting desperate...He is always angry..he...
Not to my knowledge, he hasn't, but now that you have brought it up, I'll be asking him about it!...
It gives me a bit of relief to know that this is typical behavior while a person is on Prednisone. I talked to him about it yesterday, and he says that he feels like he is going crazy sometimes...he...
My husband is currently on a taper with Prednisone..he started at 30 mg and is now at 15 mg, having tapered 5 mg a week. The big issue now is the mood swings! He is UNBEARABLE to live with, and he is...
Okay-good to know! Thank you!...
Can anyone tell me how often blood work is typically done while on Humira?...
Stubborn is definitely an accurate description, which means, unfortunately, I do not have the veto power that most wives probably have. I have tried everything I know to help him...researched...
I just spoke with my husband, and asked him how many times he had been in the bathroom throughout the night, and he said about 100. I then asked him if he had a BM every single time, and he said that...
I just would like to add a HUGE "thank you!!" for everyone's help. You've made me think of things that never crossed my mind, and have been an immense help with all of your input and suggestions!...
The more I research things the local GI said, the more I believe he is the wrong doctor to go to. He went so far as to discourage my husband from coming to his office for instructions, etc. on his...
I'm not sure what his pain scale is, but thank you for pointing that out; I'm going to ask him to rate it so I can hopefully get a better grasp on what he's feeling. He is VERY weak and dizzy, which...
He is actually working with 2 GI doctors, the preferred one of which is 140 miles away...we don't trust the local GI doctor he sees (whom he saw yesterday), but his preferred doctor says he will...
The only lab work he had done yesterday was a TB Gold test, hep test, valley fever test, as well as a stool sample test. Not sure if anemia shows up in the stool test or not? Currently, his...
He is currently on 30mg of Prednisone, which isn't working, so he will be switching to Humira next week. Prior to the Prednisone, he had been on Llialda and then Apriso for 8 years before that...
All I know is my husband looks like death-his face is so pale that it worries me. He often feels like he is going to pass out...hasn't really been out of bed in 3 months. Took him to his gastro doc...
Is it true that the only thing the hospital can do for someone with UC is rehydrate them? I asked doc yesterday how would I know when things are serious enough to go to emergency room, and he said...